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DTSTART;TZID=America/New_York:20260627T080000
DTEND;TZID=America/New_York:20260627T170000
DTSTAMP:20260405T141142
CREATED:20200520T155636Z
LAST-MODIFIED:20230124T200938Z
UID:10001806-1782547200-1782579600@clusterbusters.org
SUMMARY:Clusterbusters Annual VIRTUAL #CureforCluster 5k Run/Walk
DESCRIPTION:Every year\, Clusterbusters hosts a virtual 5k event in June. The #CureforCluster 5k gives people affected by cluster headaches the opportunity to raise awareness for the debilitating condition and provide funding for research into effective\, long-lasting treatments. Clusterheads around the world wear their #CureforCluster t-shirts while they run or walk 3.1 miles (5 kilometers) in their neighborhood\, through a park\, or anywhere that’s easily accessible. Participants do the 5k on the same day and post their photos using the hashtag on social media outlets.  \n\nSign Up | Donate \n\nWhat is a Virtual 5k? \n\n\n\nA virtual 5k is a 5k (3.1 miles) that you run or walk outside or on a treadmill. Clusterbusters encourages runners and walkers to get their family members\, children\, and even their pets involved. Most can monitor how far they’ve gone using the built-in pedometer on Smartphones or fitness watches\, but you can also map your route using Google Maps. \n\n\n\nSafety is an essential aspect of the virtual 5k. Many participants need access to oxygen during the race or have comorbid conditions with cluster headaches that can make it challenging to run or walk a 5k. In the past\, some clusterheads have wheeled their oxygen tanks with them for the #CureforCluster\, and others make sure they have abortive treatments on hand such as sumatriptan injections and ketamine or Zomig nasal sprays.  \n\n\n\n#CureforCluster participants are sent a swag bag with their t-shirt\, which also includes some basic first-aid necessities for minor injuries that can occur\, such as blisters.  \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nHow Does the #CureforCluster Virtual 5k for Cluster Headaches Work? \n\n\n\nThe #CureforCluster Virtual 5k process is simple and straightforward:  \n\n\n\n\nSign up to participate on the Race Website. \nInvite your friends and family to sign up with you or donate on your behalf for the 5k. \nYou will receive a package in the mail from the Race Director a few days before the #CureforCluster event. International participant packages are sent earlier to account for shipping delays. \nOn the third Saturday of June (June 20\, 2020)\, wear your #CureforCluster t-shirt and run/walk a 5k wherever it is easiest for you. \nTake photos in your race t-shirt and post on Facebook\, Twitter\, and Instagram using #CureforCluster in the post. You can tag @Cluster_buster on Twitter. \n\n\n\n\nThe Friday before the #CureforCluster starts the occasion off with a Facebook Live event on the Clusterbusters page where the Race Director goes over the 5k details and discusses why it’s important to raise awareness and funding for cluster headaches. The day of the 5k starts with another Facebook Live event where we kick off the run-walk from St. Joseph\, Michigan\, at 9 am EST. Participants have the option of starting their 5k at the same time as the Michigan group. Determine your time zone in relation to Eastern Time.  \n\n\n\nAny questions you have about the event can be asked through the race website.  \n\n\n\nThe History of the #CureforCluster 5k Event \n\n\n\nIn 2016\, we hosted the first-ever 5k run/walk in Denver to raise funding for cluster headache research and spread awareness of this debilitating condition. We had a great turn out in Colorado but realized we could increase our reach by turning the event into a virtual one\, so clusterheads around the world could take part. The number of runners and walkers increases each year exponentially\, growing from just 27 in 2016 to more than 100 in 2019 in seven countries.  \n\n\n\nThe next #CureforCluster virtual 5k is slated for June 20\, 2020\, and we hope to expand even more. The event has helped us fund research into the burden of cluster headache and the issues facing many clusterheads today\, including suicidality and access to oxygen and other treatments. \n\n\nSign Up | Donate
URL:https://clusterbusters.org/event/clusterbusters-annual-virtual-cureforcluster-5k-run-walk-2/2026-06-27/
ATTACH;FMTTYPE=image/jpeg:https://clusterbusters.org/wp-content/uploads/2019/11/5k.jpeg
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
END:VEVENT
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DTSTART;TZID=America/New_York:20270321T080000
DTEND;TZID=America/New_York:20270321T170000
DTSTAMP:20260405T141142
CREATED:20200514T152249Z
LAST-MODIFIED:20200520T152647Z
UID:10001803-1805616000-1805648400@clusterbusters.org
SUMMARY:Cluster Headache Awareness Day—March 21st
DESCRIPTION:Cluster Headache is a misunderstood and under-recognized primary headache disorder. On March 21st\, we celebrate Cluster Headache Awareness Day to share the realities of this neurological condition nicknamed “Suicide Headaches.” This day for awareness started in the United Kingdom in 2018 by OUCH – Organisation for the Understanding of Cluster Headache. United States organizations\, including Clusterbusters\, have since adopted the day because this is the time of year patients see an increase in attacks or start an episodic cycle due to the Spring Equinox. \n\n\n\nSeasonal changes and cluster headaches seem to go hand in hand. The difference in the amount of daylight triggers changes in the hypothalamus that impact “clusterheads\,” and recent research has shown a periodic hypothalamic dysfunction in patients. The Spring and Fall are the primary seasons when clusterheads see an uptick in attack frequency or the onset of a cycle\, which causes many to avoid making plans and experience signs of post-traumatic stress disorder (PTSD). \n\n\n\n#UndertheHat Photos Spread Awareness & Hope\n\n\n\nAinslie Course\, 54\, Glasgow\, Scotland. ECH since 1985\n\n\n\nDarin Holmes\, 58\, TX. CCH since 2005\, now ECHCheryl Madelle\, 55\, Denver\, CO. ECH since 1988Phil Battle\, 58\, Sea Cliff\, NY. ECH since 2010Dick Wilson\, 66\, TX. ECH and CCH since 1969 Jeffrey Rowland\, 61\, Pontiac\, MI. ECH since 1990\n\n\n\nPart of the international day for cluster headache awareness is the #UndertheHat social media initiative\, where clusterheads post a photo wearing a hat using the hashtag and share their experience living with the condition. These photos and stories help to put a face to cluster headaches and give hope to those who are in the midst of a terrible attack or not responding to treatment options. Cluster headaches were historically thought to be a middle-aged Caucasian man’s disease\, but people of all genders\, ages\, and ethnicities can have these debilitating attacks. \n\n\n\nThere are other ways to get involved\, such as starting a fundraiser or awareness event in your hometown and donating to the cause. Cluster Headache Awareness Day is not the only time of the year that Clusterbusters and other headache nonprofits advocate for the condition. The annual patient conference by Clusterbusters each September brings together hundreds of patients and their loved ones to learn and share their experiences. We also have an event every June\, the #CureforCluster VIRTUAL 5k run/walk\, that invites people worldwide to participate and raise funding for research. \n\n\n\nThe Basics of Episodic and Chronic Cluster Headaches\n\n\n\nThere are three categories of primary headache disorders: Migraine\, Trigeminal Autonomic Cephalalgias\, and Tension-Type. Cluster headaches are the most common form of the Trigeminal Autonomic Cephalalgias\, affecting around one in every thousand people. The attacks come on quickly and are likened to a hot poker or ice pick behind the eye and temple. Medical experts have said cluster headaches are “probably the worst pain that humans experience.” The most extensive survey ever conducted with cluster headache patients found that respondents marked cluster headaches as worse than childbirth\, kidney stones\, pancreatitis\, gunshot wounds\, and migraine attacks. \n\n\n\nCluster Headaches come in episodic and chronic form\, with some clusterheads switching between the two and dubbed “Chronisodic.” This condition involves strictly one-sided stabbing pain with precise timing of daily attacks that last 15 minutes to 3 hours (rarely longer) and can occur eight or more times in a 24-hour cycle. The pain is severe enough that clusterheads can’t sit still\, often pacing\, rocking\, and screaming. The attacks peak within a few minutes and come with autonomic symptoms on the affected side of the head\, including: \n\n\n\nRed and/or tearing eyeSwollen eyelidA constricted pupil and/or drooping upper eyelidCongested or running nostrilFacial and forehead sweating\n\n\n\nView the Diagnostic Criteria for Cluster Headache by the International Headache Society. \n\n\n\nDespite having a distinct clinical picture\, cluster headaches are often misdiagnosed as migraine disease\, sinusitis\, allergies\, and other more common conditions. It takes an average of 5.3 years for a patient to receive the correct diagnosis and often longer for appropriate treatments\, which may be partly due to the unawareness of cluster headaches. \n\n\n\nCluster headache treatments are unique with high-flow oxygen being the most efficient\, and psilocybin mushrooms and LSD are a surprisingly effective treatment for both preventing and treating attacks. \n\n\n\nCelebrating Cluster Headache Awareness Day helps people worldwide understand the impact the condition has not only on patients but on their loved ones and livelihoods. \n\n\n\n*Video content may be difficult to watch.
URL:https://clusterbusters.org/event/cluster-headache-awareness-day-march-21st/2027-03-21/
ATTACH;FMTTYPE=image/jpeg:https://clusterbusters.org/wp-content/uploads/2019/11/bands-min-scaled.jpg
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
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DTSTART;TZID=America/New_York:20270626T080000
DTEND;TZID=America/New_York:20270626T170000
DTSTAMP:20260405T141142
CREATED:20200520T155636Z
LAST-MODIFIED:20230124T200938Z
UID:10001807-1813996800-1814029200@clusterbusters.org
SUMMARY:Clusterbusters Annual VIRTUAL #CureforCluster 5k Run/Walk
DESCRIPTION:Every year\, Clusterbusters hosts a virtual 5k event in June. The #CureforCluster 5k gives people affected by cluster headaches the opportunity to raise awareness for the debilitating condition and provide funding for research into effective\, long-lasting treatments. Clusterheads around the world wear their #CureforCluster t-shirts while they run or walk 3.1 miles (5 kilometers) in their neighborhood\, through a park\, or anywhere that’s easily accessible. Participants do the 5k on the same day and post their photos using the hashtag on social media outlets.  \n\nSign Up | Donate \n\nWhat is a Virtual 5k? \n\n\n\nA virtual 5k is a 5k (3.1 miles) that you run or walk outside or on a treadmill. Clusterbusters encourages runners and walkers to get their family members\, children\, and even their pets involved. Most can monitor how far they’ve gone using the built-in pedometer on Smartphones or fitness watches\, but you can also map your route using Google Maps. \n\n\n\nSafety is an essential aspect of the virtual 5k. Many participants need access to oxygen during the race or have comorbid conditions with cluster headaches that can make it challenging to run or walk a 5k. In the past\, some clusterheads have wheeled their oxygen tanks with them for the #CureforCluster\, and others make sure they have abortive treatments on hand such as sumatriptan injections and ketamine or Zomig nasal sprays.  \n\n\n\n#CureforCluster participants are sent a swag bag with their t-shirt\, which also includes some basic first-aid necessities for minor injuries that can occur\, such as blisters.  \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nHow Does the #CureforCluster Virtual 5k for Cluster Headaches Work? \n\n\n\nThe #CureforCluster Virtual 5k process is simple and straightforward:  \n\n\n\n\nSign up to participate on the Race Website. \nInvite your friends and family to sign up with you or donate on your behalf for the 5k. \nYou will receive a package in the mail from the Race Director a few days before the #CureforCluster event. International participant packages are sent earlier to account for shipping delays. \nOn the third Saturday of June (June 20\, 2020)\, wear your #CureforCluster t-shirt and run/walk a 5k wherever it is easiest for you. \nTake photos in your race t-shirt and post on Facebook\, Twitter\, and Instagram using #CureforCluster in the post. You can tag @Cluster_buster on Twitter. \n\n\n\n\nThe Friday before the #CureforCluster starts the occasion off with a Facebook Live event on the Clusterbusters page where the Race Director goes over the 5k details and discusses why it’s important to raise awareness and funding for cluster headaches. The day of the 5k starts with another Facebook Live event where we kick off the run-walk from St. Joseph\, Michigan\, at 9 am EST. Participants have the option of starting their 5k at the same time as the Michigan group. Determine your time zone in relation to Eastern Time.  \n\n\n\nAny questions you have about the event can be asked through the race website.  \n\n\n\nThe History of the #CureforCluster 5k Event \n\n\n\nIn 2016\, we hosted the first-ever 5k run/walk in Denver to raise funding for cluster headache research and spread awareness of this debilitating condition. We had a great turn out in Colorado but realized we could increase our reach by turning the event into a virtual one\, so clusterheads around the world could take part. The number of runners and walkers increases each year exponentially\, growing from just 27 in 2016 to more than 100 in 2019 in seven countries.  \n\n\n\nThe next #CureforCluster virtual 5k is slated for June 20\, 2020\, and we hope to expand even more. The event has helped us fund research into the burden of cluster headache and the issues facing many clusterheads today\, including suicidality and access to oxygen and other treatments. \n\n\nSign Up | Donate
URL:https://clusterbusters.org/event/clusterbusters-annual-virtual-cureforcluster-5k-run-walk-2/2027-06-26/
ATTACH;FMTTYPE=image/jpeg:https://clusterbusters.org/wp-content/uploads/2019/11/5k.jpeg
ORGANIZER;CN="Clusterbusters":MAILTO:info@clusterbusters.org
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