Patient perspectives on research gaps in cluster headache
https://pubmed.ncbi.nlm.nih.gov/41562498/

More about the PEACE Trial (The Psilocybin Efficacy and Acceptability on Cluster headache Episodes)

If you have a question you would like Dr. Haghdoost to answer regarding the above, or feedback, he is very receptive to input from the community. Please send your question or feedback to craigedstewart@gmail.com or submit anonymously here: https://forms.gle/k46Vz5CZigTRn8MJ8 and I will make sure he receives these ahead of time so they can be answered during the presentation.

I imagine there are hoops and lengths Dr. Haghdoost and his team need to jump through to get studies like this across the line so I am doing this to help raise awareness and hopefully he will be able to recruit enough participants and garner enough insights from our community to give the study the best shot.

Everyone is welcome - if you are interested but do not live in Australia or New Zealand and can accommodate the timing, you are welcome to register and join. Also I will try and make sure it is recorded and shared after.

Thanks everyone.

To get an invite you can message me your email address or fill out this form: https://forms.gle/kNpeB678DQzNyW9G7

The group will meet the 3rd Thursday of every month at 7pm CT. Feel free to drop in anytime!

This is our annual virtual gathering where Bob Wold, members of the board, and members of our community gather to chat, learn, and just be together. Patients, care partners, supporters, and friends are all welcome

https://us06web.zoom.us/meeting/register/jnmTEWaeQAela08Ij0PBTg

https://headachemigraine.org/coalition/
https://americanheadachesociety.org/events/2025-scottsdale-headache-symposium/agenda

Needing support? We have a group for you!

TUESDAY:
Do you live in California? Join Tuesday 7pm PT - message Clusterbusters or anna@clusterbusters.org for an invite link

WEDNESDAY:
Care Partners! Join Julia at 7pm ET - Register here: https://us06web.zoom.us/meeting/register/8AQ75ckZQn-ddzoYfreZbQ

8pm ET join Joe Stone - sign up here for the 2nd Wednesday of the month meeting: https://clusterbusters.org/get-support/

THURSDAY:
Do you live in Texas? Join the Texas group by emailing gary@clusterbusters.org for an invite- it meets at 7:30 CT

SUNDAY:
Do you live in New Zealand or Australia? 
New Zealand: 6pm
Australia AEDT: 4pm
Australia AEST: 3pm
Join Craig by registering here: https://us06web.zoom.us/meeting/register/jBEVM84QRs-RP6lgNdFCmw

*You do not have to live in the region of the group to join.

I'm considering starting a new local/regional support group for Illinois since we have a conference every other year in Chicago. Any ideas on days/times that would be good for attendance? Would a 6pm CT or 7pm CT on a weekday work well or a weekend day/time? I'd like to be able to advertise something like the 2nd Thursday of the month at 7pm type of time so it's consistent. 

Open to ideas and I'll lead it until someone else feels comfortable and I will always be available for support. Just thought this might be helpful and if there are people who have an idea of another location that could use a virtual/zoom support group, let me know. We have California and Texas and both have been really amazing groups.

New Zealand: 6pm

Australia AEDT: 4pm

Australia AEST: 3pm

Register:

https://us06web.zoom.us/.../register/jBEVM84QRs-RP6lgNdFCmw

After registering, you will receive a confirmation email containing information about joining the meeting.

If you have any questions, contact Craig at Craigedstewart@gmail.com or Anna at anna@clusterbusters.org

First - 

We would like to share a message from Ainslie.
Dear friends,
It’s is with great sadness that due to ongoing health concerns, I have made the very difficult decision to resign from my position as President of the Clusterbusters Board of Directors.
I have supported CB since its infancy in the early 2000’s, attended my first US conference in 2015, and was voted onto the Board in November 2019. I became Vice President in April of 2020 and President in April 2025 to date. 
I was honoured to organise the first U.K./European conference in my home city of Glasgow in 2023, followed by a second event in 2024. 
In total, 6 years as a very,very proud member of the team.  
I have been so fortunate to be a part of such an amazing organisation and to work with such wonderful people globally. This has brought me huge joy and wonderful life-long friendships. 
I wish Clusterbusters continuing success and each individual Board member all the very best in their new leadership roles. 
It’s quite the amazing team!
There will never be enough days for me on this earth to show my gratitude to Clusterbusters. They saved my life. 
With love and thanks,
Ainslie

We have appreciated Ainslie's leadership, not only in 2025, or since 2019 when she joined the board, but for her many years of being in our community inspiring HOPE. 
While it is with great sadness that she steps away from her position, we fully support her taking care of health. She is an amazing soul, who has given much to our community. She has put UK/Europe on the "map" and cultivated a community, maybe rather many communities. She has helped the cluster headache community in so many ways we cannot count.
Thank you Ainslie. We love you, appreciate you, and respect all you have done. With much gratitude....
Clusterbusters

● Understand how gammaCore works to treat cluster headache, including the science behind vagus nerve stimulation and its role in regulating pain signals.

● Learn strategies for incorporating gammaCore into your care plan and understand when and how to use it effectively.

● Have the opportunity to ask questions during a live Q&A session.
Register Now: https://us06web.zoom.us/meeting/register/SrvzB0d4RoiK4Dz8ITjvrQ

Free Webinar: Microdosing & Low-Dosing for Cluster Headaches and Neurological Disorders

The even is apparently free, but the link however does not work and i cannot find it on the website.

Can someone please provide a working link? 

Thanks

Katerina 

Our patient conferences are so important - there's no other place where you will see over 100 people gathered in a room who are affected by cluster headache. This is vital to those who experience cluster attacks but also to the Care Partners as well. There are clinicians who not only come to share their knowledge, but it's a time for them to sit with our community and learn as well.

We have it all in Grapevine, TX September 11-14th. Whether this is your first conference or your 20th, we want to welcome you! More information and register here: https://cbdallas2025.planningpod.com/.

IF you aren't sure - comment, message, email us and we can chat about it. It can be difficult to walk into a place and not know anyone, especially when you experience a disease that has you running to hide. We have a ClusterBuddies program and one way that program can help is we can pair you up with a longtime attendee so that you already know someone before you arrive.

Clinicians, we will be offering CME/CEUs! We are excited to have you with us as well. We want to get to know you and be able to help you feel better equipped to help your patients with cluster headache.

Pain free wishes to all

From the Board of Clusterbusters and our Founder/Executive Director Bob Wold

Pain free wishes to all and H.O.P.E.

Jefferson Cluster Center Symposium:  https://Jefferson.zoom.us/webinar/register/WN_pF0E7o9oQUqHJ-E5QnzJzg 

We will be starting at 8PM on June 24 (Tuesday) at 8PM. Dr. Michael Marmura will lead the discussion.

This will be recorded- register to get updates on the recording.

The event will kick off on June 7th and can be completed any time in the month of June. We look forward to seeing photos and awareness raised for cluster headache.

This year, we have partnered with Alliance for Headache Disorders Advocacy (AHDA) to support Headache on the Hill: A Visual Installation representing all headache disorders while our event continues to raise awareness and funds for cluster headache.

For info and to register:
https://runsignup.com/cureforcluster5k

If you meet this criteria and would be willing to travel to PA to speak, reach out to me and I'll get you connected for an interview to see if you might be a good candidate.

These are the qualifications:

Cluster Headache Patient

Male

Aged 20-40

Diagnosed with episodic cluster headache (cannot be chronic), preferably by a headache specialist (we have seen patients frequently misdiagnosed as cluster)

Currently prescribed more than 1 prescription medication option, multiple routes of administration (uses injectables or has past experience with injectables – no needle-phobia)

Past experience with DHE in a hospital/clinic setting would be ideal, but not mandatory

                                                               i.      If he has had experience with DHE in those settings, hopefully it achieved relief

September 11-14, 2025

We are very excited to celebrate our 20th Anniversary Conference with you. Join us for this long weekend of support, education, and community in Grapevine, TX near Dallas/Ft. Worth. Check out the event page for information about scholarships, tickets, programming, and booking a room at Embassy Suites by Hilton Grapevine DFW Airport North. The agenda and more details about the conference will be shared soon.

This is a great opportunity for those living with cluster as well as caregivers to socialize and connect about shared experiences in safe spaces. Saturday’s dinner and award ceremony theme will be the Roaring 20’s for those who choose to participate.

This conference is also appropriate for Healthcare Professionals who want to learn more about cluster headache and obtain CMEs for their education. We hope to see you there!

For more information and to register:

https://cbdallas2025.planningpod.com/

Headache on the Hill is the only federal advocacy day dedicated to improving the lives of all people impacted by headache disorders in the United States. Together we’ll meet with our elected officials to make our voices heard and impact change. To become a HOH advocate, you must apply by December 15th. Apply today at https://qrco.de/hoh2025 #HOH2025

Tony Taipale and the Finnish Horton Association are hosting an all-day Horton event on Saturday, 14th September, 2024 at Hotel Arthur in Helsinki. 

Details and registration here:
https://conta.cc/4fLRFen