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Showing content with the highest reputation on 01/26/2016 in all areas

  1. Clusterbusters is very excited to announce the dates and venue for the 2016 Conference. Dates: September 15-18 Location: The Holiday Inn Austin Midtown - 6000 Middle Fiskville Rd, Austin, TX 78752 Those that have attended before will tell you what an amazing experience this is. This is an opportunity to bond in a unique way with those that really understand. There will also be updates and reports on advocacy efforts, education, and the latest information on current research. You don't want to miss it! We will have lots of future announcements about the schedule, speakers and events planned, so stay tuned. Rooms, Rates, and Registration: We have arranged a block of rooms starting at $119 per night. In early January we will open up registration and provide a link for booking the hotel. We have been able to keep the registration fee the same at $125 for attendees and $95 for spouse/companions. We hope to see a lot of you in Austin! Eileen Conference Chair
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  2. No. But I have aged out of most trials. Congrats and hugs and thanks if you get to do it! We all will benefit from the new knowledge gained.
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  3. Don't do it. I meant to comment on the other thread but never got around to it. There are a number of surgeons offering a surgical 'cure' of migraine and occasionally cluster headache as well. It appears this man ligates arteries, branches of the external carotid, and in addition can remove certain small facial muscles. Unfortunately this is all nonsense to me. These are brain disorders, and such procedures could never produce a 'cure' and it is very hard to find a biological rationale for improvement either. I have seen victims of migraine surgery but not cluster surgery like this...as yet. This man likely knows very very little about headache medicine- he is a surgeon with NO training in headache medicine and does NOT manage headache patients. I am open to odd treatments if there is some biological rationale but it is nonsense here. Happy to discuss further if needed. 'noninvasive surgery'- is n't that an oxymoron? It is easy to think that such procedures should only be last resort- but that is wrong- they should not be done at all. Sorry if I am stern here, but I do not like vulnerable people being taken advantage off by, at best, misguided physicians. Peace. BostonHeadacheDoc :-/
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