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Showing content with the highest reputation on 08/08/2016 in all areas

  1. LTDTheOtherGuy, Sorry to hear you're having a bad go of this round. Have you tried the 'busting' substances discussed on this board? I don't have hard stats, but I'd be confident to say the vast majority of us get partial or complete relief from our CH by mushrooms, or LSA (legal seeds). I definitely sympathize with your feeling of pressure from your job. If it happens, it happens, and something better will eventually come about. I was let go some years ago from the most prestigious and lucrative job of my life, but really... It was great I was let go, because so many better things happened after, that never would have happened had I stayed. A lot of people are finding significant reduction in pain and frequency with the vitamin D regimen discussed in the 'busting files' section of the site. A lot of people have taken the round of vitamins and reported significant improvement. J
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  2. Thank you so much for this report. I have been wondering how that appointment went, and I'm sure that others have been, too. There's a lot to quibble with in her diagnosis, but at least none of it is plain wrong. (I'll say more tomorrow about my quibbles.) Did she look at any previous blood test results to see what his current vitamin D level is? Most basic panels include that information, and it would of course be helpful for knowing whether taking more D3 would be advisable. Yes, many docs are horrified by the amount of D3 in the regimen, but in part that's because the recommended daily allowance is far lower than it should be because of a math error in the original calculation. For adults, 10,000IU/day is regarded as safe, and the amounts that have to be taken to induce toxicity (which is reversible just by stopping taking the D3) are huge, over long periods of time. (As I'm sure you know, more than a few people have suggested some possible linkage between low D levels and autism. I'm only observing this, not trying to get into your business on that subject.) You can find information about D3 dosage levels for children here: https://www.vitamindcouncil.org/about-vitamin-d/am-i-getting-too-much-vitamin-d/ I guess it's also a little puzzling to me that it seems that all she gave you were dietary recommendations for migraines. It appears from those few articles that we could find that verapamil and sumatriptan are recommended treatments for pediatric CH. They are also treatments for migraine. So I wonder why, just in case her diagnosis was wrong, she wouldn't have given you some meds that treat both conditions. There could have been many good reasons to err on the side of caution and see first what the dietary recommendations accomplish. I just feel like too often docs, who aren't the ones suffering, don't really take that suffering into account when they prescribe. Even if it's "only" migraines, it clearly is causing suffering for your son. I feel the same general sense of frustrated dissatisfaction that I think you feel, and also the same "maybe she's right" sense that I think you are feeling about the diagnosis. Wish it was clearer or simpler. And wish I could be more helpful.
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