Leaderboard

Pro2See, I had a suspicion your night time snack was one of the top triggers. For me dark chocolate is a faster / worse trigger than regular chocolate. You should start doing much better with the night attacks staying far away from any hint of chocolate. What you describe of feeling like an attack is coming but never really arrives, many of us classify those as "Shadows". Usually it's a bad 'feeling', but no pain. Sometimes might have small sliver of pain, but nothing like a real CH attack. Sometimes might be an ache in the neck (but no CH attack). I think we all get them, but some describe them slightly different. The common point is we 'feel' different and bad, but no CH attack. Take a look at the trigger list, and try to cut out everything you can. Maybe your first go around, don't cut out the bleached white flour and sugar as those are VERY difficult to avoid. Once you establish a new attack baseline (hopefully significantly less) without the main triggers. Then experiment with cutting out the bleached white flour. Happy to hear you got some better sleep without the dark chocolate bedtime snack. J

I used Verapamil to successfully end the worst cluster I have ever had, 4 months with as many as 7 in one day. we started at 180 mg a day and increased dosage in 60 mg increments until they stopped around 480 mg. but the side effects, mainly lethargic and a heart tic made me stop taking it after 2 months. THE GREAT NEWS! My headaches, while still occurring are much less severe, much shorter and much more infrequent. if they were 10's before. they are 1's and 2's now, duration down from 30-90 minutes to less than 10 minutes. Frequency from 3 to 7 a day down to less than once a day, usually nocturnal, about an hour after i go to sleep. It took about a month for all the side effects of the drug to wear off and now I feel like my old self, my energy has returned, I have returned to work and my life is great. I take absolutely no medication now and just deal with these little baby clusters now as a minor annoyance instead of a life altering disability