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Showing content with the highest reputation on 09/08/2016 in all areas

  1. I wonder if you could get to see Dr. Brian McGeeney in Boston. He's a great, great friend to people with CH. I'll PM you a way to contact him (he posts here using a screen name, but I don't like to put people's real names with their screen names). At the very least, I'm sure he'll be at the conference. I think everyone here will agree that prednisone is meant for short-term relief to allow other meds to kick in, NOT for long-term treatment. It's not exactly clear to me how much you're taking, but in my opinion it sounds like much, much too much. Your dosage of verapamil was very low. If there wasn't a medical reason not to go higher, you should have been trying two, three, and even four times as much verap. Depending on how much Imitrex you're using, that can be causing rebound issues, too. I'm glad O2 is working for you! Are you splitting your injections? https://clusterbusters.org/forums/topic/2446-extending-imitrex/ It's pretty rare that the D3 doesn't help. I'd consider trying that again. You can be directly in touch the the originator of the D3 regimen, Batch, who will do his 100% best to make it work for you. Batch will be at the conference, too. Mushrooms won't help while you're taking pred or trex.
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