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Showing content with the highest reputation on 10/16/2016 in all areas

  1. I wonder if your 'Cluster knot' is pressing on a nerve? Mine forms just below the skull on the CH side and stays for a full cycle if it is a bad one. Just prior to a hit, it would really start to hurt. Seems logical as the nerves exit the spinal column and go to the arms.
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  2. The low level of the "normal" range of vitamin D [25(OH)D] is 30 ng/mL in the US. "Batch" (who has developed, improved, and closely tracked the D3 regimen) says this in the document I referred you to: >>CH'ers who have used this regimen and experienced a significant reduction in the frequency and severity of their CH or gone pain free and then had this test have had an average 25(OH)D serum concentration of 81.4 ng/mL. min = 34.0 ng/mL, max = 149.0 ng/mL.<< So you might be in the normal range but still have a "deficiency" regarding treating CH. Because so many people with CH get relief from O2, and because it is very very rare for anyone who tries high flow rates (25 lpm or more) with a good mask (such as this one: http://www.clusterheadaches.com/ccp8/index.php?app=ecom&ns=prodshow&ref=clustero2kit)to not have success, and because O2 makes such a huge difference, I would urge you to give O2 another shot. You'd have to buy the higher-flow regulator and the mask, but it might be worth it. And please don't completely dismiss busting.
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  3. Oxygen can be hard to get, because way too often doctors don't prescribe it even though it's the #1 medically recommended abortive for CH. Nearly everyone here or at any CH site will tell you it's the lifesaver, the must-have. You might have great success and long remission again and not need it, but you might not. Ending a cycle with one dose and getting six years of remission are not common occurrences. Strongly recommend that you give O2 your best shot with your medical professionals, and check with us. The most typical pharma approaches are verapamil as a preventive, injectable sumatriptan as an abortive, and a course of steroids to buy you some time while a preventive kicks in. Sumatriptan and steroids will block busting; verapamil not so much. Plenty of undesirable side effects from all those, of course. The best way to "research" energy shots and melatonin is probably to try them.
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  4. 80mg doses of Prednisone is a fairly hefty dose. Yes, some do 100mg and then taper, but 80mg should do the trick. I would bet that if 80mg didn't stop the attacks then 100mg isn't going to neither. Also, I hope that I misunderstood, but it looked like someone said you had taken 60mg of Prednisone a day for years ?? OMGosh! That would be deadly and side effects would happen fairly quickly. Like the others did say, Prednisone should be used sparingly for short terms and must be tapered correctly. To answer your question: I've done a TON of steroids, too many in fact. I know first had their benefits and their nasty side effects. Thru all my years of using it, I don't feel like it's ever made my CH worse. My advise is to use it as a lifeline only. Try to get back to something else that's worked before (MM ??).... and maybe seek another doctor that's willing to do more than write a script for Prednisone. Good luck !
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  5. Do the mm in smaller doses that don't effect yer work...Small tastes...not recreational shit...chew tiny pieces ..almost imperceptible...and live PF.
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  6. Hi Dreamer, I always wait a few weeks to do the alcohol test. I have not found that it prolongs the cycle. But if the cycle is not gone it will surely trigger a hit. And I have had alcohol trigger a random hit a few times over the years.
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