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Showing content with the highest reputation on 05/19/2017 in Posts

  1. Rsrsrs, I was there to. Horrible place indeed! Yes, for sure it did fuck up my live deep but not for ever At the end of the day, after 5 years of hard struggling I suddenly found this site and great relive going into PF time. Not curet, probably never will but I'm pain free 99% due to the great people from this portal. Sometimes a tool fails. This is when is just switch to one of the other well known techniques from CB-site eventually switching back later. Obviously one neurologist can't accumulate all the know-how offered here? There is no way one could achieve this by himself. A whole/big group is needed in order to verify/proof techniques and results given. I personally call it Crowd-Development. Probably the best term defining what ist going on here... So I just chimed in order to give a strong and positive statement. Stick firmly with tips/answers from all the fellow CH heads here. I'm sure seeing you soon getting substantial relief and of course getting your live back in order to have pain free time. We can't offer cure but pain free time and attacks cut to near 0.0 There are Hunderts of stories like yours ending very well, so please go on BluesFan85
    1 point
  2. Hey I was there. Same story. You can get your life back there is hope. Read this whole site the answers are here the support is here. Read through the clusterbuster files and decide on a treatment you are comfortable with. People are here to help. Will they be cured probably not but you can find ways to get more of you life back.
    1 point
  3. G'mornin Nick! I've a good friend who's an Aussie clusterhead.....I'm sure he's in bed asleep right now buy I'll send him a message and see if he'll drop by and hook up with you. He's one of the admins of the Aussie facebook clusterhead support group so I'm sure he could put you in contact with other ch'ers from down under as well. Dallas Denny
    1 point
  4. Jacob, The 'breathing deeply' while you pace is likely the key to it helping. I do deep breathing as soon as I feel the hit. In deep and out with force and a crunch at the end. This has helped shorten O2 time and is really great if I am stuck in public with a hit. Lately I found out that I am not the only doing this and having it work. Our most esteemed Batch wrote about it recently. You are getting rid of the Nitrogen and that is what helps.
    1 point
  5. troller. making our site less than it should be. i vote delete this fool.
    1 point
  6. Hi Blues! Well, I can identify with your frustration. Almost all of my hits are nocturnal. For me, they hit 15 minutes after falling asleep and run for 2.25 hours without O2 or an abortive. If you have a recliner, you can lie back in that to sleep if you keep your head above your heart. Also there is the pile some pillows on a table and sit in a chair with your head pillowed to sleep method. Taking Melatonin at 9mg up to about 20mg at bedtime can buy people some sleep. Trying those should buy you some rest. For many, a nap will set off a hit. Maintaining a steady sleep schedule is best. I understand being tired after a hit or ten. The idea of maintaining a sleep schedule seems impossible right now. What abortives do you have? O2? Imitrex? A bit of background can help. Have you tried slamming an energy drink at the first sign of a hit? It can be a big help. Please let us know what you take for your CH and if you have had a diagnosis and scans done. It will help us help you. I can tell you for starters that you need O2 and use the proper breathing method to abort those screamers!
    1 point
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