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Showing content with the highest reputation on 06/13/2017 in all areas

  1. 1 point
    Well, for starters... I cope with the thoughts by knowing that I have a good support system, and a lot of people who love and would miss me if I were gone... And that usually prevents me from doing anything drastic. Knowing that, and that I am needed helps. Then there's the fact that the attack -will- end eventually... I might have another one later, but the one I'm in, will stop. Knowing that also helps. But mostly knowing I am loved, wanted, and cared for is the best thing to help keep me from doing anything drastic. It helps anchor me. Knowing I have unfinished work on this Earth. I'm not sure if that's what you're looking for... But the fact I am useful keeps me here. So your love and support for your husband matters, so much, more than you even know. The thoughts do come, sometimes just as a "I'd do anything to stop this.". It just kind of happens. But knowing that we have our supporters is what keeps us going. The fact that you're trying to help him, will also help him cope, too. <3
  2. 1 point
    Thank you for the in depth, VERY useful reply! I see my neuro on July 1st, I will bring this to his attention. Thank you!
  3. 1 point
    Hey Mle and JenniDawn, There is sufficient evidence to say cluster headache (CH) is an autoimmune disorder just like MS. It also interesting to note that both disorders are highest among people who are vitamin D3 deficient... When was the last time you had your serum 25(OH)D tested? 25(OH)D is the serum level metabolite of vitamin D3 that's used to measure its status... The normal reference range for this lab test is 30 to 100 ng/mL... Unfortunately, too many physicians will interpret 31 ng/mL as "Normal." The real vitamin D3 experts say anything less than 50 ng/mL is insufficient and that 50 to 70 ng/mL is optimum for otherwise healthy adults... As a CHer, we need 80 to 100 ng/mL and some need even higher levels. Both CH and MS respond to a regimen of vitamin D3 and the vitamin D3 cofactors/conutrients if the vitamin D3 dose is high enough. I've been working with cluster headache sufferers (CHers) for over six years and have roughly 600 of them taking what I call the anti-inflammatory regimen with 10,000 IU/day vitamin D3, Omega-3 Fish Oil and the vitamin D3 cofactors/conutrients that include 400 mg/day magnesium 12 mg/day zinc, 1-3 mg/day boron, Vitamin B 100 complex, vitamin A (retinol) at RDA and vitamin K2 at 100 mcg/day. I also have a close friend and Vietnam buddy who's wife has RRMS. She's been taking the anti-inflammatory regimen with 10,000 IU/day vitamin D3 for over 4 years and has remained in remission the entire time. You can download the latest version of the anti-inflammatory regimen CH preventative treatment protocol at the following link. Be sure to share a copy with your PCP or neurologist. That way you're both singing from the same sheet music when you ask for the suggested lab test of your serum 25(OH)D, total calcium and PTH (Parethyroid Hormone). http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 You can also scan the following QR code with your smart phone and it will download a pdf copy of the treatment protocol to your phone as a ready reference. If you don't have the QR Code Reader App, it's free and It takes less than 10 seconds to download and install. The really important news for you deals with the Coimbra Protocol for MS developed by Dr. Cicero Coimbra, MD PhD, a neurologist in Sao Paulo, Brazil. His treatment protocol calls for much higher doses of vitamin D3 plus the cofactors. Where the anti-inflammatory regimen with 10,000 IU/day vitamin D3 works out to 100 IU of vitamin D3 per Kg of body weight per day, the Coimbra Protocol calls for upwards of 1000 IU of vitamin D3 per Kg of body weight per day... For a sleek rascal like me weighing in at 95 Kg, that works out to 95,000 IU/day of vitamin D3! What is also exciting is none of his MS patients on this protocol suffer from vitamin D3 intoxication/toxicity... There's a good reason for this... When MS patients start on this protocol, they need to avoid taking any calcium supplements and avoid calcium rich foods, i.e., dairy products... They also need to drink 2.5 liters of water a day to help their kidneys flush excess calcium from their systems. Nearly all of his MS patients find this a very acceptable trade off. You can read about Dr. Coimbra's work with his MS patients at the following links. He and his team of neurologists have treated over 3000 MS patients over the last 10 years and 95% of them are in complete remission. Many have reported their existing MS lesions are shrinking or have disappeared completely. https://www.vitamindwiki.com/Interview+of+Dr.+Coimbra+-+Vitamin+D+protocol+for+Autoimmune+diseases+–+2016 https://www.vitamindwiki.com/Multiple+Sclerosis+and+(lots+of)+Vitamin+D+-+book+by+patient+on+Coimbra+protocol+-+Feb+2016 There's also a very exciting study done by Dr. Jody Burton, MD et al. University of Toronto where she had 25 RRMS patients start an escalating dose of vitamin D3 from 4000 IU/day up to 40,000 IU/day and back down to zero on 6 week intervals for one year. This trial concluded with an averaged a vitamin D3 doses ~14,000 IU/day/year and 32/52 weeks spent at doses ≥ 10,000 IU/day: · • There was no hypercalciuria, hypercalcemia or parathyroid dysfunction o No radiological evidence of calcification o No clinical or biochemical adverse events o Significant reduction in RR and EDSS o Significant reduction in T-cell reactivity/proliferation · • Vitamin D3 intake up to 40,000 IU/day and prolonged intake of ~ 10,000 IU/day appears safe and is associated with improvement in clinical disease activity and T-cell reactivity. http://www.vitamindandms.org/researchers/burton/index.html Take care and please let me know if this information is of interest. V/R, Batch
  4. 1 point
    My greatest fear over 23 yrs of episodic was that it would become chronic. I was obsessed with the thought. Used to dismiss comments on ch.com that chronics preferred it to episodic.... thought they were nuts. Then it happened.... and the reality was FAR less than the fear of the unknown had led me to believe. Hits were lighter, aborts worked better, triggers were reduced or went away, depression lessened. It still aint no damn fun...but if ya got the right attitude, a plan and the right tools..... it's controllable. Best Jon
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