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Showing content with the highest reputation on 12/01/2018 in all areas

  1. Hey Dan Let me shoot a message to our friend dinmerced and ask him to stop by....he is the demand valve procurement guru.....comes across some great deals pretty regularly Dallas Denny
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  2. Hey Dandownunder, We ran a pilot study of the oxygen demand valve method of aborting CH back in 2008 with Seven (7) CHers (6 CCHers and 1 ECHer) collecting abort time and pain level data on every abort with this method of oxygen therapy for a period of 8 weeks each. I developed this method of oxygen therapy as a CH abortive in 2005 using a flow rate type oxygen regulator good to over 70 liters/minuet and modified it to work with an oxygen demand valve in late 2007. I also hold a patent for the method of oxygen therapy. An oxygen demand valve delivers oxygen on demand just the same as a SCUBA diver's 2nd stage regulator. The harder you try to inhale, the higher the oxygen flow rate. You basically control the oxygen flow rate with respiration rate at deep tidal volumes. The procedures I developed call for a respiration rate high enough to support hyperventilation. That respiration rate equates to an oxygen flow rate of roughly 40 liters/minute. 3 of the 7 CHers used a 0 to 60 liter/minute "InGage" regulator from FloTec set at a flow rate of 40 liters/minute with the Cluster Kit mask from CH.com with the 3 liter reservoir bag. We also had one of the CHers in this pilot study, very experienced in the use of oxygen therapy as a CH abortive, collect abort time and pain level data for a week using the standard disposable oxygen mask with 1 liter reservoir bag and an oxygen flow rate of 15 liters/minute (curve shown in red). The results are illustrated in the following graphic. As you can see, oxygen therapy at flow rates/respiration rates that support hyperventilation result in significantly shorter abort times and higher efficacy rates than that experienced at a flow rate of 15 liters/minute with a disposable oxygen mask. We used ≤ 20 minutes to an abort as the primary endpoint for efficacy. All but two aborts took ≤ 20 minutes so there were 364 successful aborts for 366 attempts for a 99.6% efficacy. The two failed attempts occurred when the CHer got trapped away from home and his demand valve system when his CH hit. He was either locked out of his home or away from home shopping. Both times he was unable to start this therapy until his CH pain level had already reached 10 on the 10-Point Headache Pain Scale. There were no differences in abort times between the oxygen demand valve and InGage regulator set at 40 liters/minute. Moreover, the mean abort time across all pain levels was 7 minutes flat for oxygen therapy at flow/respiration rates that support hyperventilation. This graphic also provided an interesting finding that no other study of oxygen therapy as a CH abortive has reported. The higher the CH pain level at start of therapy, the longer the abort time. This little factoid should make it obvious to start oxygen therapy at the first sign of an approaching CH while the pain level is still low. We also discovered a curious phenomenon where the frequency of CH increased for 3 to 4 weeks after starting the demand valve method of oxygen therapy. This up-tic in CH frequency continued to a maximum at week 5 of the 8 week long study then dropped to less than the starting frequency by week 8. All seven CHers in this pilot study experienced this same up-tick in CH frequency. All this happened before I developed and started taking the anti-inflammatory regimen CH preventative treatment protocol with 10,000 IU/day vitamin D3, Omega-3 fish oil and vitamin D3 cofactors in October of 2010. Since then, my oxygen demand valve has been stored in a zip lock bag unused. The anti-inflammatory CH preventative treatment protocol has proven to be effective in the first 30 days by 80% of the CHers who start this regimen. They experience an 80% reduction in the frequency of their CH from an average of 3 CH/day down to 3 to 4 CH/week. 50% of the CHers who start this regimen experience a complete and lasting cessation of all CH attacks in the first 30 days after start of regimen. This regimen is effective for both episodic and chronic CH although ECHers tend to respond at a slightly higher rate. You can download a copy of the anti-inflammatory CH preventative treatment protocol at the following link. Take a copy to your PCP/GP to discuss and ask for the lab test of your serum 25(OH)D. This is the serum level metabolite of vitamin D3 that's used to measure its status. The normal reference range for this lab test is 30 to 100 ng/mL (75 to 250 nmol/L) CHers with active bouts of CH tend to have a mean 25(OH)D serum concentration around 23 ng/mL at baseline before starting this regimen and a 25(OH)D serum concentration around 80 ng/mL (200 nmol/L) after 30 days on this regimen. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 There are plenty of CHers down under taking this regimen who will be happy to help you source the needed supplements. Take care and please keep us posted. V/R, Batch
    1 point
  3. This is my post. This is an update since August when I first posted this. I said, "I have not had another attack since April. This is the first year in 10 or more years that that has happened." November now and still PF. I take the CBD in a dropper under my tongue every day - I simply leave it in my car and use about 1ml a day The strength of the CBD varies a lot so in one bottle a ML might be 250mg and in another only 50mg. Read carefully and adjust your dose till you are conformable. Front load the dosage - ie double up the first 3 days. The oil is pleasant in a natural surfactant like a seed oil and I spend approx $60.00 every month. Not only has this aborted the April 2018 cycle but it carried all the way through today. I am still skeptical a bit as the Beast has penetrated everything else over the last 30 years. I will become confident if I get through say, May of 2019. In the meanwhile again its been over 10 years since I had any relief and my cycles are like clockwork virtually to the week every year. CBD oil is working for me. My thought is that it may not break a cycle in progress ie when the talons of the Beast have already been embedded in your head, but with my experience when I was in the very first episode of an impending cycle - I have been completely PF for 8 months. I will check in again in a few months. Merry Christmas to all my Clusterheads.
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