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Showing content with the highest reputation on 12/20/2018 in all areas

  1. According to this research, "there is no relation between CH attacks and specific sleep stages or between CH and breathing parameters" Also, overall sleep patterns in CH patients are the same out of cycle as in cycle. https://www.docguide.com/disturbed-sleep-cluster-headache-not-result-transient-processes-associated-cluster-period?tsid=5 BACKGROUND Cluster headache (CH) is characterized by severe, unilateral attacks of pain and a high nocturnal attack burden. It remains unknown if perturbations of sleep are solely present during the CH bout. Therefore, we aimed to investigate differences in sleep between the bout and remission period in episodic CH (eCH) patients, secondly to compare patients in the two phases with controls. METHODS eCH patients, aged 18-65 years, diagnosed according to the International Classification of Headache Disorders 2 nd edition, were admitted for polysomnography at the Danish Center for Sleep Medicine, in bout and in remission. The macrostructure of sleep including arousals, breathing parameters, limb movements (LMs) and periodic limb movements (PLMs) were compared with 25 age-, sex- and BMI-matched healthy controls. RESULTS There were no differences in any of the sleep parameters for patients in bout (n=32) compared with patients in remission (n=23). Attacks were unrelated to sleep stages, presence of apnea episodes, PLM's, LM's and arousals. In bout, patients had longer sleep latency (18.8 vs. 11.7 minutes, p<0.05) and REM-sleep latency (1.7 vs. 1.2 hours, p<0.05) than controls and sleep efficiency was lower (82.5 vs. 86.5%, p<0.05). Patients in remission only had a longer sleep latency compared with controls (17.5 vs. 11.7, p<0.01). CONCLUSIONS The results support the presence of a continuing or slowly recovering disturbance of sleep outside the bout rather than a disturbance occurring secondary to attacks. Further, we confirm there is no relation between CH attacks and specific sleep stages or between CH and breathing parameters. This article is protected by copyright. All rights reserved.
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  2. So I ran out of O2 and called Apria for a refill. They were here with in 2 hrs and the guy offered me an extra tank. Can’t say enough good things about my experience with them so far. So now I have 2 full M tanks ready to go. My experience with the O2 is mixed. Sometimes it aborts in 10-15 min and other times nothing. Same breathing technique.
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  3. Freud, Fair question and thanks for the kind words. I'm a 74 year old retired Navy Fighter Pilot. I was flying Navy fighters like the F9-F8 Cougar and F-8 Crusader, a.k.a., Mig Master before they started the first Top Gun class... I've a degree in Chemistry and at one point, was considering a career in medicine... I got a ride in a Navy trainer aircraft (T-34) my Junior year at the U of W, Seattle and that sealed the deal... The thought of flying Navy fighters appeared to be be a lot more fun than another 6 years of school so I joined the Navy to fly in 1965... I'm also a long time CHer (first CH attack in 1994), chronic since 2004. I've over 3000 hours flying Navy fighters and all of that flight time was spent breathing 100% oxygen from takeoff to landing (usually aboard an aircraft carrier). I can assure you, I was sucking down 100% oxygen at flow rates that support hyperventilation during high G-Force dog fights and combat maneuvering... like getting shot at by bad guy SAMs and AAA. I'm a patent holder for the demand valve method of rapid CH aborts method of therapy. I also have 15 years training in aviation physiology with most of that training in oxygen breathing systems. I'm a member of the American Academy of Neurology as a cluster headache researcher and I've had the opportunity to meet with some of the top neurologists in the world experienced in treating patients suffering from cluster and migraine headache. Bottom line... I'm here to help CHers avoid the terrible pain we all know so well by providing information outreach on safe and effective methods of controlling CH (oxygen therapy with hyperventilation as a safe and effective CH abortive and vitamin D3 therapy as a safe and effective CH preventative). I started doing this in 2006. You can find my web page at VitaminDWiki at the following link: http://is.gd/clustervitd 'Hope this answers your question. Take care, V/R, Batch
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  4. We did a pilot study of the oxygen demand valve method of aborting CH in 2008 with 7 CHers. 4 of the CHers used the oxygen demand valve breathing at respiration rates that produced the effects of hyperventilation. The other 3 used a 0-60 liter/minute InGage regulator from Flotec set at 40 liters/minute. Both methods produced the same rapid CH aborts in an average of 7 minutes to a CH pain free state across CH pain levels 3 to 9 using the 10-Point Headache Pain Scale. The seven CHers collected abort times and pain levels for a total of 8 weeks each. This resulted in data for a total of 366 aborts. One CHer collected data for a week using a standard disposable oxygen mask at an oxygen flow rate of 15 liters/minute. The results are illustrated in the following graphic. 364 of these aborts were effective in less than or equal to 20 liters/minute for a success rate of 99.4%. The two failures happened when the CHer got trapped away from his oxygen system until the pain level as already at 10 at start of therapy. As you can also see, oxygen therapy at flow rates that support hyperventilation produced much shorter abort times than a flow rate of 15 liters/minute. This chart also illustrates the higher the CH pain level at start of oxygen therapy at oxygen flow rates that support hyperventilation, the longer it took to abort the CH. This is the reason why we need to start oxygen therapy at the first indication of a CH attack while pain levels are low.
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  5. Hyperventilating with 100% oxygen is 95% effective for 95% of CHers. The down side of this breathing procedure is it consumes a lot of oxygen... like 250 liters per abort. The key is hyperventilating as that lowers arterial CO2. Accordingly, hyperventilating at forced vital capacity tidal volumes for 30 seconds with room air then inhale a lungful of 100% oxygen and hold it for 30 seconds is just as effective. Repeat this sequence until the CH pain stops. That usually takes an average of 7 complete cycles (7 minutes) and consumes roughly 25 liters of oxygen... One tenth of what's consumed hyperventilating with 100% oxygen. Sucking ice water through a straw from a glass filled with ice and water so it washes across the hard pallet on the CH hit side chills the hard pallet and sphenopalatine ganglia directly above it causing a mini brain freeze. This has the same effect helping to abort a CH as slamming a 5-Hour sports drink.
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  6. One VERY important key to using O2 is get on it before the pain kicks in. As soon as you feel the attack coming. Slam the energy drink, and get on the O2. If you can do that before the pain kicks in, I'd bet you the O2 will work better. For me, if I can't get to the O2 till the pain starts, it takes 45 mins to work, if it even works at all. J
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  7. CHF, Interesting read, though it seems the article may be grabbing at straws when it comes to CH. There's only a handful of individual cases and the writer's terminology uses "may be responsive" several times. Just based on this article and others that have tried it, I'd guess the responsiveness is no better than placebo. IMHO. J
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  8. Always love hearing about a good O2 supplier Freud!! I loathe the taste of ALL energy drinks so I keep a cup of Joe in the microwave at all times when I'm cycling.......at the 1st tinge I nuke it for 60 seconds and while its warming I hit the O2.....when hot, I shut down the O2, hold the cup where I can slip on it and blow on it which blows the hot steam up on my right eye....after a minute of doing this I jump back on the O2.....my average abort time is 5 to 8 minutes using this technique and often times under 5 minutes!! One of our other mods, Spiny, uses the same technique but with cold coffee! DD
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  9. Moxie...so sorry for your loss. Whether you celebrate the season or not.... just know you got family out here who care and are thinking of you! Best Jon
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