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Showing content with the highest reputation on 10/20/2019 in all areas

  1. ....your doc needs a haircut......and a clue!!
    2 points
  2. You can't get O2 from amazon. That's seems true. So sorry. Although at least you didn't get triptan pills. The spray will probably help you. (Others will answer your questions about that.) So tell him you got some oxygen from Amazon and it worked great and now you'd like that prescription. Here is more or less what the prescription should say, since it's a good bet he has no idea how to write it: "Oxygen therapy for cluster headache: 15 liters per minute for 15 minutes with non-rebreather mask." Have you looked at the suggestions here for getting by without O2. https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/
    2 points
  3. Welcome Marcelo! Very happy that you found us. There is a lot of info to read and absorb. Ask all the questions you want. There is a banner at the top of each section 'New Users - read here first' That will give a great start. What meds are you taking and do you have O2 with a non-rebreather mask? High flow? That is the main game changer. And check up on the D3 Regimen. Cheap, easy, and all good for you vitamins. It can lower your pain levels and slow down the ramp up. Living on two hours sleep for months will make you feel pretty rotten. Posts are not 'boring' nor are there any stupid questions. ATB!
    1 point
  4. Well Brian, I'm not going to go looking for those posts I'm going to ignore them. I refuse to believe it. Aging out is one of the great hopes and I won't allow you to destroy my vanity with the truth!!
    1 point
  5. Good luck with the Busting today!!!
    1 point
  6. Hi, That sucks. It might be related to how clusters often strike when our stress levels drop and we move into a more relaxed state. I rarely get bad attacks at work, or out socialising, because (I think) I'm worried about getting an attack then and my stress levels are slightly higher than normal. But when I get home and relax, or sit down to watch a film or chill for the weekend, BAM! attacks come then. Some have said they dread holidays because as soon as they arrive at their hotel and relax, they get slammed. But, I also think hormones have a lot to answer for in cluster attacks, so may be hormone related. Or just a perk of being you. Hope the bust goes well. Mox
    1 point
  7. Yes, it is an emergency. There was a PA or NP, I don't recall exactly, at the conference who wanted to treat CH in her own practice. Well, she went through a lot to get licensed and some additional education to allow it and a Neuro to attach to in whatever way they insisted on for licensing. She treats every Ch'rs call as an emergency! I call that very awesome! I think that she just does Ch, but perhaps other headache issues too. She was great. Patient first - this is an Emergency! They always get seen the day they call her office!
    1 point
  8. I posted a bit in Research Thread. It is two years old, but it is a lot more up to date than your Neuro! The Dr. McGenney is a member here. I would print it out, take it to that 'doc' and let him read it while you watch!!! The guy is killing you slowly with a ton of meds like that and no O2!!! He needs to get it together and know the proper way to treat CH today. O2 is the #1 abortive, triptans are there too, but in injection form. Or the nasal spray if shots can't be handled by the patient. Verap is the main preventative, and Pred is used in a short burst til the Verap kicks in. This is all stated in Ch treatment protocols!! If it is not working, dump it! Some have to be tapered, so do it with care if you decide to stop taking them. Is the doc doing EEG checks when your dosage was upped on the Verap? That is a hefty dose. What is your blood pressure now? Please read that piece and keep reading and asking questions! ATB
    1 point
  9. Interesting. I’ve noticed my drive for sex goes down when I’m in a cycle.
    0 points
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