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ClusterBusters

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Showing content with the highest reputation on 01/22/2020 in all areas

  1. 2 points
    Tim.... that's sobering...no migraines here....but I've seen 'em...and want no part of THAT! Sorry you've had to be a double warrior....one down, right?....let us know when you get this one... Best, Jonathan
  2. 1 point
    I have been getting Migraine headaches every day for the last month, yet I thank god that my Clusters are under controll!
  3. 1 point
    Personally I am not really into trying to compare pain or trying to "one up" others in the suffering department but this may help some vindicate themselves or at least give perspective when dealing with insensitive partners, colleagues and other riff raff. https://www.mylondon.news/news/health/nhs-pain-most-painful-conditions-15701223?fbclid=IwAR2zqmTNLdESNWJcLH5nM3yZAz6tqEsXQ0ezoQ6Tm2e03khiXiYeTpe-Lkk
  4. 1 point
    @Rush I think the 125 cu ft tank is the perfect balance between size and portability. The tanks are fairly large, but I can carry them around without issue. I fill my E tanks off of them and also have them set up for home use. The rough conversion is that a 125 cu ft tank has almost 3500 L of O2 (close to the volume of 6 E tanks), and that can usually last me a couple weeks. If I have a really bad hit (or get hit at night), an E tank is not quite large enough to kill it. Having the extra capacity in the house and ready to go is of great comfort when you're getting hit a lot. Also, I had a good experience getting an O2 Rx while traveling to Orlando a few months ago. I had absolutely no trouble getting E tanks delivered to my hotel room, and only had to fax them the Rx. The company is called Orlando Medical Rentals. They appear to be setup for serving vacationers paying out-of-pocket, so it might not be cost effective for someone who lives in the area. But I thought I would pass along probably the only good experience I have had getting service from an oxygen supplier.
  5. 1 point
    Daily Chronic Headaches, Chronic Migraines and Clusters are all Hell. Just different Hells. After awhile, pain is pain and it all makes you cry. Mox
  6. 1 point
    Here ya go wing_nut! http://www.clusterheadaches.com/wwwboard/messages/63158.html?fbclid=IwAR26DY-Zyy6hVnPkL-YkuVMcXDEiN6cEBAV0r3H8OUvlj9SE6fQKyBSDe54 Dallas Denny
  7. 1 point
    Hi All, thank you for your replies I have been diagnosed with Cluster back in 2002 or 2003 and had every year 2 cycles per year, every cycle 6-8 weeks with 2-4 attacks daily. I was given triptans (imigran nasal) and naratriptan to block the attacks and it worked fine. The doctors told me that my cycles are too short to put me on something else. This was until 2013. In 2014 I had Remission the whole year and the next cycle came September 2015 and was long (10 weeks) and really bad in terms of intensity of pain and number of attacks. This time my neurologist put me on 2x naratriptan daily + 480 mg verapamil retard (2x 240 mg). After a week on verapamil it got better and in November the cycle ended. In 2015, 2016, 2017 and 2018 I was completely free of pain, full Remission, 4 years long. I almost forgot how bad the whole thing was. Until Early November last year when it all started with weak attacks at night time and worsened by beginning of December with really painful attacks 2-3 times daily. Again Naratriptan and verapamil, until Christmas. Now I am pain free again, so the cycle has ended, but there is this weak background feeling around the eye, that makes me worry. I have MRI on February 14th, I hope it will be OK and these are just the last signs of the cycle... I used Oxygen only once, when the pain was so bad, couple of years ago I went to the emergency and they put me on O2, which I think to remember helped me really. I'm thinking about taking for some 2-3 days again verapamil to see if this background noise will disappear. Thank you all for your suggestions
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