Jump to content

Leaderboard

Popular Content

Showing content with the highest reputation on 02/14/2020 in all areas

  1. Hey Vipul. I had sinus surgery in the 90's for sinusitis and deviated septum. I was having constant sinus infections. Post surgery, it would bleed with the slightest increase in pressure due exercise or heat. I had to wear a mask in welding class to avoid bleeding on my work. It would gush very quickly. At that time, I was in full remission. The bleeding continued for about 10 years post op. So, the sinuses are opaque. It was suggested by my primary care doctor to have repeat surgery many years later. That was not going to happen. It can be a rough surgery and recovery is longer than one would think. This was after I had had CH for 20 years. I did not have my CH reactivate till almost six years later. The trigger? I moved to a higher elevation. Currently, I cringe at the thought of another sinus surgery. My CH is under control and I don't want my head messed with thank you!!! If you think it will benefit you, then by all means have the surgery. But do not expect it to kill your CH. Many sufferers have had sinus surgery like mine for their CH on their docs recommendation. I do not know of a single person that it helped. Batch has already covered the rest for us. I do really wish that sinus surgery DID help with CH!!! Here, they are hot to jump on reaming out your sinus's for you. If you are concerned, you can take the results to an Ear, Nose, and Throat doctor. That is their area of expertise.
    2 points
  2. jon It is one patch per hit. you apply the patch to your arm when you feel the cluster coming one. They only gave me one for the study, could be the real thing could also be placebo. The way the study breaks it down for dosage is like this: They actually give you 2 patches and you will use both for one cluster attack 1.9mg consisting of one 1.9mg patch and 1 placebo patch 3.8mg consisting of two 1.9mg patches you have up to 48 weeks to treat one qualifying cluster attack after being accepted into the study and must report back tot he office within 4 or 5 days of your treatment. I have a doctors visit on the 24th so I am holding off to use mine until the weekend before. I am lucky enough to get hit every day so I can time it out like this. Saves me from taking another day off work for a doctors visit. Weather it works for me or not I am not even that interested in, I am not a big fan of any triptans, but if it can help someone else get through just one more day then it is worth giving it a try to be approved and moved to market. As far as the cost goes I figure the mor options on the market the more competition. I know that sumatriptan pills cost me around 20 bucks for a box of 9 and the injectables are 120 each shot. I figured a patch would maybe work much better then the pills do and not cost as much as the injections. I have no idea what it will end up costing in reality I just hope it gives another option for someone that can not afford the injections. Here is something I found on the study from migraine https://www.neurologyadvisor.com/conference-highlights/aan-2018-coverage/new-zolmitriptan-intracutaneous-system-safe-and-effective-for-migraine/
    1 point
  3. Yes...proceed with caution...had an ENT (accomplished surgeon) STRONGLY advise me (and only slightly facetiously) to "NEVER trust a surgeon... we think we can fix EVERYTHING by cutting".....
    1 point
  4. FT...thank you...very interesting! Not quite understanding usage procedure...one patch per hit?....or constant admin at low dosage as a prophylactic?...or ability to selectively admin for a hit?...dosage? Why do you think it would be a cheaper option? I paid basically the same amt for Imi and Zomig NS (after insurance)...with Medicare Adv now $125 copay per script.... Best J
    1 point
  5. Hey Vipul, The possibility exists that the sinusitis mentioned in your MRI DX is secondary to CH. In other words, the sinusitis is a direct result of multiple CH which cause all the sinus on the CH side to gush with mucus. On the other hand, it could also be just a coincidence with no real correlation. The possible involvement of the RCA (right superior cerebellar artery) with the trigeminal ganglia resulting in neurovascular conflict, mentioned in your MRI DX, is frequently associated with trigeminal neuralgia. This is where the RCA is physically wrapped around the trigeminal ganglia putting pressure on it and a creating a chaffing action that sensitizes the trigeminal ganglia stimulating pain very similar to CH. I'm a 75-year-old retired Navy fighter pilot so clearly not a doctor or qualified to read MRI imagery. That said, I read studies of CH voraciously. While there are clear cases of CH being secondary to lesions in and around the trigeminovascular complex, the majority of CH are primary. The human body is totally amazing in its capacity to heal itself if given the right nutrients. After all, it's been doing this for thousands of years before modern medicine or we wouldn't be here. I recall our family doctor telling me to remember the alphabet when it comes to vitamins (A, B, C, D, E). Take care and please keep us posted. V/R, Batch
    1 point
×
×
  • Create New...