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Showing content with the highest reputation on 04/07/2020 in all areas

  1. You may be right about this Pebbles, we simply do not have enough information yet. What I know is the following, the headaches started with the infection. While they have most of the defined symptoms of cluster headaches, there are some differences, so it is possible that they are not classic 'cluster headaches'. Though as to that, I wonder if it is really possible to clearly define cluster headaches in that way or if like many other syndromes involving the human body such as anxiety and OCD, etc, or autism and Aspergers, etc, there is really just a spectrum with a lot of overlap in a lot of areas. While there are many people whose headaches match the cluster description perfectly, there may be many others whose headaches differ slightly in one way or another but who could still could benefit from busting. This has been true for me. I tried busting according to script but had difficulty because I was chronic and got headaches every afternoon or evening and so I found going 5 days meds free to be very difficult as the pain would increase in severity each day I didn't medicate to the point they would become a 24/7 event of ever increasing intensity. So I modified the protocol and it seems to be working. I started busting a minimum of every 2 days and I just busted more often figuring each bust might be less effective but hoping that there might still be a cumulative effect. It has now been a few months of busting several times a month and for the first time in YEARS, I am going up to 10 days PF with not even a shadow or a twinge or a suggestion of a headache. This is unheard of for me. Normal for me was to either be recovering from a headache, have a headache, or be getting a headache at all times. I consider 10 days PF a life-altering success and it is not important to me if I have classically defined 'cluster headaches' long as they are gone. I hope this is not an anomaly and I will continue to try and build on this success. Right now, just happy for what I got, and that is HOPE. To be honest, sometimes I feel like there is a proprietary feeling among some people on this site about who gets to be in the club, like having clusters is a badge of honor. No interlopers allowed. And then there are many many more who could not be more welcoming, supportive or generous. I am deeply grateful to those of you in the latter group. You helped me when I was really down and thinking I couldn't go on and gave me the information I could not have gotten anywhere else to get a foothold on this beast. Thank you, thank you, thank you.
    3 points
  2. That has been my experience exactly.
    1 point
  3. Great news!! Congratulations on your persistence, and thank you for letting us know. I wonder whether you could clarify this a little, to add to our knowledge. Did your PF time only start when you switched from busting a minimum of every two days to busting several times a month? Can you be more specific about what several times a month means? Roughly once as week? Every five days? How much of what substance were you taking? Are you doing anything else that might be helping -- the D3 regimen, for example?
    1 point
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