Leaderboard

...try the search function here and ch.com for emgality et al...mixed bag but worth a try ...especially if covered by ins or coupons... ...there are whole sections on mooshies...check the new members banner above and member only forums... ....the "price" I paid sclepping O2 to work (e tank/cart) for 25 yrs, when in cycle, was the best investment I ever made...saved sanity, perhaps life, and enabled a job and career. When traveling arranged for delivery at destination multiple states/locations. Fortunate that it worked 70-95 percent of time greatly aided by caffeine/energy drinks ....100 percent with Zomig NS as abort of last resort. .... extremely important to have proper non rebreather mask, enuff flow (15-25 lpm recommended.... but really individual) and proper technique (also highly individual dependent and based on trial and error) ...have you considered the D3 regimen? Best Jonathan

...a doc that knows about shadows is somewhat remarkable and a good sign...many physicians have NO clue on CH period... ....not gonna be able to help with your question....we're all different and you will only know through experience...in my case it changed, at one point (ECH) a shadow was an ill omen always predictive of a full hit...later (CCH) just a 'bother" that I got used to (no choice...sometimes constant, not predictive, relatively "mild" and unresponsive to O2 and energy drinks) On occasion naproxen (Aleve) was helpful.... best jonathan

I did the Emgality thing for 4 months. 1st try was only 200mg and it cut my clusters just about in half that month. The next month dose was the full 300mg and it had no change on my monthly cluster count. same for the 3rd month. the 4th month of Emgality about 2 hours after my 3 shots to the stomach I started getting hit with a nice bout of clusters that lasted a few days. so I never went back to it. I am not saying it does not work, it just did not work out well for me. After that first dose I thought I was in good shape but like most other things I have tried in the past.. I am still here looking for solutions with the rest of us all. If you can get it I would say give it a try. Here is a link for the savings card. https://www.emgality.com/savings?utm_source=google&utm_medium=ppc&campaign=6506846331&adgroup=79794815964&ad=382852916392&utm_keyword=kwd-528836136696&utm_id=go_cmp-6506846331_adg-79794815964_ad-382852916392_kwd-528836136696_dev-c_ext-_prd-&gclid=EAIaIQobChMIj-aK1Ibj6QIVE9bACh3M0wEHEAAYAiAAEgLmI_D_BwE

I’m into my 5th. week of an episodic cycle. I just got my second month 300mg Emgality shots. I have been totally pain free since week 2. I’m optimistic. My cycles usually last a minimum of 3 months. I have to pay $600 a month for the shots, but if it continues to work this well, I’m good with that. I even went away this last weekend without an O2 tank. I would have never done that with any other cycle. The neurological center I go to (Michigan Head pain & Neurological Institute - MHNI) was one of the trial centers for Emgality. They say test results were very successful. I have to agree, so far.

….Henry Ford used to say " whether you think you can...or you think you can't...you're right"....always a good idea to solicit opinion...but there is only ONE way to truly know....every med and every strategy I ever tried I went in believing "THIS is the one"....that way I knew if it didn't work it wasn't because I didn't give it a FAIR shot....