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Showing content with the highest reputation on 06/13/2020 in all areas

  1. No. Just no. This is rather like saying 'Lets kill our liver with Tylenol today!' In many states Robitussin is kept behind the counter at any pharmacy, due to people taking it for the so called 'high'. We know that opioids do not help CH. The 'quote' from Clusterheadaches does not produce a return if clicked on and was from 2003. I am fairly sure that you could find many totally unsuitable ideas on many boards if you care to invest the time to hunt for such posts. If this was valid and valuable information, after 17 years, there would be current posts reflecting the success of doing this. This is bad advice. I highly doubt that members are looking for a new way to get high. What they are looking for is pain relief. Not a cheap high that might prove deadly. fillzeros - Did you take this for CH? Cut and paste quotes are fine, but not as a stand alone trying to prove the efficacy of a destructive treatment. Dredging up old posts is ok to support your point. However, your point seems to be to get high, not get pain free. It works for you? In looking back over your posts, I do not find one which states that you have CH and have used Robitussin to conquer CH. Just this one which does not state that it made you pain free, but that it made you high.
    4 points
  2. ...............advising 4-8 X typical dosage of ANY med is irresponsible.........
    4 points
  3. Yes, Ketamine is used for CH. We have members who have received this treatment from their physician. We would never encourage any member to take 2 bottles of cough syrup. There are many side effects, even at the recommended dosage, so why jump in for two bottles and risk a major problem because you are taking MAOI's or other necessary meds for other conditions? Robitussin in not without risk in the first place. And is not for those who take certain drugs on a daily basis. The 'proper' place for this post would be under Research &Scientific News. Members are always interested and read the posts there regarding what is happening to help our community. This would be a great place to put links you find interesting to the community. That would be an actual help. Would you like me to move this for you so that you are fulfilling your goal of providing help to those who suffer from CH? It would not be buried in a thread that would not be seen by many. Adding the Shroomery Sponsor page is not needed or appreciated. I am asking you to not include such links and to delete it from your post. Since you evidently do not suffer from CH, you really cannot contribute your own experience on Share Your Busting Stories or Theory & Implementation. Those threads are for people in pain. Read them? Of course. Be sympathetic? Yes. Offer suggestions for treatment? Not a great idea. We do appreciate that your stated purpose is to help people in pain. I am asking you to use that desire to post in a way that will help the community.
    3 points
  4. Dehabel I've been here a few years now and this is the 1st I've heard of chugging robotussin for clusters. So take some of what you read with a grain of salt and feel free to ask before you try something that isn't proven.
    3 points
  5. Monica, I have been a side sleeper since puberty. Dr J - You can get caffeine in capsules online. I have 200mg ones in storage for times when coffee is not an option. That may be an aid for you that way. So, if coffee is out, perhaps give that a try. I have dumped the powder on my tongue when in a bind and needed quickly.
    2 points
  6. dehabel - That cold stream running down your neck is not very pleasant! I've labelled peas that were returned to the fridge as "CH' so they don't get eaten by mistake.
    2 points
  7. Benadryl is proven to help. Just be advised there are some that will come here and say cure. There isn't one ,but you can find ways to make clusters tolerable and life worth living. You will also find someone who can relate with your experiences here. Welcome
    2 points
  8. My kids at a very young age learned to get me bag of frozen vegetables...I hate it when they defrost in the bed!
    2 points
  9. Benadryl is a first line allergy treatment that has been around for decades. It alone crosses the blood/brain barrier. That is why it makes you sleepy. And why it helps with CH. Zyrtec will help with allergies. Not so much with clusters. So, how about take Zyrtec for your up/work time and then just take the benadryl at night? Many only take it when they go to bed and get good relief that way. So, your bedtime would be the ideal time to take it. I take Singulair for allergies in the morning and benadryl for my head at bedtime. Allergies can make your sinuses swell with yuck and cause pain in your teeth. So can a sinus infection. Many CHer's have had teeth pulled from the pain and wound up without one or two teeth and still have the pain. The Trigeminal Nerve feeds your entire face nerve wise. And the front quadrant of your head on that side too. The pain is from the nerve, not the teeth unfortunately. So, pulling teeth does not end the pain. Nor does sinus surgery that many of us have already gone through before arriving here. If you have an infection, antibiotics will help with reduce the pain of swollen sinuses due to an infection. They swell up, push on the nerve and now you hurt. As you most likely know, allergies gunk runs clear or perhaps milky white. Infection makes it turn yellow or green. So, you might want to keep an eye on that. Hugs!!!!
    1 point
  10. Hi Monica, I'm new here too but have also observed similar changes. My jaw seems out of line and anywhere near a hit my teeth on CH side become hypersensitive to any temperature up or down; for the last month everything I've eaten or drank has been lukewarm. I already had weight issues pre-CH involving hypothalamus so I found it interesting that from my first attack on I've lost all appetite. I have to force myself to eat to manage my blood sugar and I suspect low blood sugar contributes to my shadows. I am also not a fan of pasta or potatoes yet those are some of the few foods I can tolerate right now and suddenly really like. Screens and lights don't bothers me, although I'm exhausted after an attack and don't like it too bright then. My most interesting observation has to do with vagus nerve. I was extremely sick 6 years ago and was left with several symptoms associated with vagus signaling, which in some diseases has a relationship between gut and brain. Of course vagus nerve signaling is linked to CH as well, which makes me think my original illness may have contributed to my development of CH. Checking for triggers has become really important for me. Sadly I think pot may be one for me as with several others. It never touched the pain but it helped with the sense of distress and agitation that comes with it. Nitrates from cured meats are on my list. And this week I'm testing caffeine for final confirmation. This is huge blow, I love coffee, particularly since everyone seems to use energy drinks at a treatment but it's the other way around for me at the moment. Any hint of coffee and I'm shadowing within minutes, the more I drink the stronger/longer the attack comes on. Interestingly when I was pregnant, caffeine triggered morning sickness - which made me the weirdo of the pregnant crowd at the time - so I don't wonder if it's just that caffeine and I have a funny relationship. I'm sorry we're on this journey together but here to support. julie
    1 point
  11. If you like coffee, I suspect you will enjoy the cold brewed version. Easy and less bitterness to it. I use this daily now at about 7pm. I am not in cycle. but I will get a shadow some evenings. I have found that a cup of 'preventative' coffee helps ditch the shadow before bed every time for me. And hey, we have to live with this, so buying really nice coffee for that after dinner glass of iced coffee is being nice to yourself. You deserve it!
    1 point
  12. Thanks spiny. I’ll have to try the cold brew coffee. I hate the energy drink sickness! I’ve definitely rubbed many cold drinks on my head. Funny that we can all relate to that.
    1 point
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