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No Escape Today is like any other, Yesterday, today & tomorrow, all blur together. Day in and day out, everyday the same, I wish I could escape this game. The Beast visits most when least expected, My face drains of colour, and I feel quite infected. Into one eyeball, always just the one, the Beast comes, Blinding and piercing like I’ve been poked hard, with a thumb. My eye seems to freeze as if turned to ice, And the pressure builds as if placed in a vice. My nose starts to run and my eye begins to tear, As my body is gripped with fear. Red hot nails, they pierce and twist in my eye, The burning is such that I wish to die. Sharp blades cut and rip through my skull, As I pace the room and bang my head on the wall. I can feel my cranium crack, As all my world turns to black. For one hour or maybe two, How long it really lasts, I dare not tell you. For all that time, I pace and I walk, Sat on my bed, back and forth I rock. I suck on oxygen and drink caffeine, I can be quite snappy and downright mean. But eventually the nails are removed, as are the blades, And the pain within, all but fades. I am drained, I am spent, My energy is at zero percent. I need water, I need food, But instead, I lay here unable to move. I take one deep breath, and maybe two, Before the next symptoms ensue. Then the crying truly begins, As my body shakes from my bones to my skin. I am racked with hot convulsions in wave upon wave, To this terror I am now but a slave. Eventually, even this fades to a whimper, As my body begins to shiver. Wrapped in a blanket I raise myself up, Sloshing some water into a cup. Today was like any other, Yesterday, today & tomorrow, they all blur together. Day in and day out, everyday the same, Oh, how I wish I could escape this pain.

When I was a smoker, I definetly used them to abort milder attacks when I didnt think imitrex was needed. A quickly smoked cigarette at the onset of an attack was usually enough to abort it for me. I relapsed many times from quiting smoking during my cycles because they gave me relief. Now I use oxygen to abort and it works better than cigarretes with no side effects. Not sure about herbal cigarettes, but I imagine they woulds have a varied effect, depending on the brand/ingredients.

I did wean myself off all stills meds. Next cycle I will try with the meds to bust. Just was so unsure and at the moment the beast is way worse than my messed up body so all I can focus on was stopping the cycle at any cost. Today bust #2. And tomorrow I’m going back on the stills disease med regimen. I keep asking why me this week. Just got To keep swimming!!

I am happy you are improving. As regards supplements and the fight against viruses (covid) I urge caution. Most of the info we have on things like vitamin C, zinc quercetin, and other supplements is confusing and incomplete. There is certainly no harm in using these strategies as suggested but please do not treat them as a protective shield and please practice social distancing and masking as appropriate. The pendulum of what works and what does not is swinging fast regarding covid and other viral infections. Knowledge is being transmitted faster than it is being vetted. Do everything possible to avoid getting infection and don't treat anything as though you are immune or impenetrable. Heck even if you have had a virus you can get it again in some instances. I don't wish this to turn into a covid discussion but caution is advised/needed.

Love reading this Bryan!!! Congratulations and a big happy dance! Batch's D3 has helped many people attain PF status, which is altogether amazing. Vitamins, right? Now ya gotta love them!

@Bryan yeah that’s awesome!!! Long live the D3 regimen

Yes I have O2 and sumatriptan injections. But the best way for me to beat the beast is through busting. But yes this makes some sense that the meds for stills would block effects of mm. Yes time to see the Dr. I think I will just need to taper off the prednisone over the next few days and try to dose next week again and until then I’ll fight like hell to win!!!!! Thanks , paula

This morning I had a cluster attack that lasted 15-20 minutes. And, it was maybe a KIP 4 or 5, nothing horrific. Bad enough that I curled up on the sofa for a bit. But, I felt totally drained for 2 hours afterwards and was in a brain fog for 4 hours. I couldn't concentrate or even look at a computer screen for more than a few minutes. Then, it just went away at the 4 hour mark, and I felt fine. Is there anything people do to help them get through these after affects? I find chocolate and caffeine helps a little. Here's my FaceBook post from this morning, might make 'ya chuckle. Random thought of the day. If you had a choice between going to Hell to be personally tortured by the Devil himself for 1,000 years, or having one really bad cluster headache... What would you say to the Devil after you spit in his face? I'd probably say something like, 'well, get on with it you weak arse loser who thinks you understand pain.' Yes, it's been that sort of a morning. Had a fifteen minute cluster headache at 9 this morning. 3 Hours later and my brain is still scrambled and I have no energy, my body temp is fucked and I'm not always confident which way is up. Mox

Definitely drained and in a fog for about 10 minutes or so and my eye will continue to tear up from time to time. Then I sit and think of what mean thing I have done to someone or something in the past that warranted that hit.