Jump to content

Leaderboard

Popular Content

Showing content with the highest reputation on 10/11/2021 in all areas

  1. Hi to everyone on here I just wanted to express my thanks to everyone that kept me afloat for my last 3 month cycle. It was a hard one and longer then I've ever had to endure . I really don't quite know how to properly thank everyone. I haven't had spikes or the devil visit me in 2 and a half weeks so I dont want to jinks myself but I think and pray I will be in the clear for a bit. I believe it was @spinythat said to me life happend between the clusters and I have had a few days of life. Road my horse.. and am now at my retirement home that I haven't been able to visit in months.. a little life is worth living for!!! I want to send picks but the site keeps telling a different size so maybe later. Thank you all.
    2 points
  2. Bosco, I have not heard of anyone doing that. Alcohol is such an awful trigger, most avoid it altogether. Some can still inbibe clear spirits, say vodka, without getting slammed. If it triggers, most avoid during cycle. Just not worth it. Unless you are a hardcore alcoholic, I can't see it happening. I have heard of a couple of Cher's who partied hearty during cycle for a particular reason for one night. Even they went back to 'Nope!' It was just a special occasion that caused them to jump that fence for a night.
    2 points
  3. Hopefully the Smithsonian has both!!!
    1 point
  4. Chronic is a year with only 2 or 4 weeks pain free. Depending on which paper you read. So, stop sweating it. I had a dentist add a month to a cycle one year and a surgeon added 2 another. You get through it in one piece, dust off, and march forward. Grab some caffeine if possible and slam it down for the random mess. Carry ginger candy with you at all times and use it if needed. If the weather turns funky, you can get some hits. Not always a cycle by any means. The weather is going to shite? I hit the caffeine like I was still 25. Falling barometric pressure gets me a lot. As does pollen I am not accustomed to breathing. We need Dorothys' red shoes for you to click together!!! HUGS!!!
    1 point
  5. I dont know about changing the times of attacks but I have just kept myself awake all night because I would get hit less then when I fell asleep. I don think that is what your looking for but its all I have for ya.
    1 point
  6. WHOA - that was my typical sort of mistake - I made the overly long leap of a stretch and interpreted "MJ juice" as "marijuana juice" - as in a THC/CBD tincture or some such. Thanks for setting me straight, and never mind now about the MJ juice!!!
    1 point
  7. Intriguing concept! I haven't personally attempted such a switcheroo, so I got nuthin', but am now popping the popcorn for the viewing of any responses.
    1 point
  8. Woo hoo got a pick to upload (I think)
    1 point
  9. I so get this statement.. I am not chronic and pray I never become so, I have suffered a serious bout of depression from the "not knowing" when I will get hit as well as how many things I have had to stop doing when in cycle. Many times I have talked to my husband about not wanting to live like this or make him live like this. It is so easy to feel like a burden and in some degree at certain times we may be, however you seem to have a good grasp on the affection and love that your family has for you as well as the pain that would be inflicted on them if you left, my husband always tells me "don't leave me". I am located in the land of skittle farting unicorns (CA), and it is hard to get help unless you are compliant with many rules and regulations. Bottom line is that in the end there is always one moment worth living for. Maybe it will be a moment that you are not at a kip-10 and get to watch one more God given sunset, see a new baby be born into your family, hear your Mom or Dad laugh or just have a moment of brain peace. I wish I had more to offer other that being a friend but I don't . Hang in there!
    1 point
  10. My diagnosis from a neurologist was chronic paroxysmal hemicrania, atypical. I don't have the red eye or tearing. Indomethacin is somewhat successful in treatment, but headaches still sneak in most days. So I don't have clusters, I have chronic, cluster-type headaches, perhaps 9 days out of 10. Most headaches are fairly short in duration, around 10 minutes. But after them, my brain doesn't work well. Verapamil was tried, unsuccessfully. Mushrooms have no effect, medicinal or psychoactive. probably because I take Effexxor. I also need to take a benzo and trazodone, an SSRI, for sleep. I've tried to taper down on these meds, but it's impossible for me to do so without horrendous side effects. I'm going to try out some 100% oxygen in a can to see if that might help during the attack. Otherwise, 10 years in, I just live with them, on disability pension.
    0 points
×
×
  • Create New...