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This is something to hope for Jon. The other side of your post that seems scary is the erratic part. I like knowing when I'm going to hell for a stent (don't know exactly why) maybe it's because I'm a bit OCD in that way or maybe it's because I can mentally prepare? I've heard so much about aging out and I'm unsure if I can trust that (not that you are inferring as much. I don't want to give myself false hope as I am somewhat new to CH and received a diagnosis fairly quick with comparison to most (I was a tyrant thinking I would surely die from the hits). I am 42 and started having CH at 38 so as much as I would love to believe that maybe in my 50es I might go into remission I don't want to set myself up if that makes any sense? Anyhow I have been blessed by finding this site and all the amazing people on her so I take that as a win!

Yea not good bej . Probably thinner than skinny oops spiny

A very few uf u kno that ive been going thru some rough times - on top of these chas. I saw doc thursdsy, and theyd snuck in a pysch person as an 'intern'... I happened to explain being extremely hypothyroid and un.tx. Bs levels tank when asleep n last thing ur body does is shoot out adrenaline so u don't die. I used to awake as id be scratching to get thru the walls. Taking thy t3 at nite stopped it. Eventually t3 + armour got me going. Then i mentioned clusterbusters - and? Wallah! The intern *knew* abt chas!!! And the nurse had heard of microdosing!! U cldve knocked me over w a feather. Ive been in a fight to keep my home, the sheriff is a constitutional sheriff? And so he'd seal alll his arrests so he cld seize properties.... i was forced to sign a blank resttraining order.... w a solid leo background? Having these shaky, at best, court things against me? Was stressful.... i was bring forced out of a doctor.'s care.. i mean most any n all doctor's care.... to travel over 120.miles to see a doc... facing losing my home, and a sheriff who things he is - i kid u not- a king who runs soc services and everything... if u dont like it? He'll bend the law and arrest u -:indefinite stay in jail is 1 luxury he imposed. The judge retired when i started bitching abt ex parte communications. The pub def got jetked out. Then 3 days after my court? The sheriff put in his retirement notice (nov 2022). Pub def #2 - i found his obit online. He died of brn cancer 2020. He grew up mesa cnty where sheriff n his buddies grew up. Is my pub def #2 dead? Its like a bad lawyer joke - but rather off color. I dont know...., but everything else @ heres gotten very rotten. Jurys out on #2. Judge #2 seems like a rather nice passive female. Quiet, didnt answer my objection to blank r.o. and didnt answer when i told her I'd fired #2 and needed a lnew awyers advice. TY for clustetbusters. And TY for "microdosing"... as i said? Then met another nurse there suffered w chas also. It was a surprise that 2 ppl were undetstanding of chas. In a sea of ignorance? U find 2 knowledgeable then a 3rd who also suffers? It takes awhile to have it hit home. Thank you to everyone for the bits and peices, large and small, that u bring here? And that u take out into the world. Thank you.

Not sure exactly what you’re looking for, Sue’, but I assume it’s some kind of confirmed information (“What we know”) as opposed to just ”what we think.” There have been two major large interview-based studies of people with CH: Todd Rozen’s in 2008 and one by Larry Schor and others around 2018. The first two articles here are from Schor’s work. The second two are recent studies that seem applicable to your thinking. The last three are related to Rozen’s work. https://headachejournal.onlinelibrary.wiley.com/doi/full/10.1111/head.14237 [epidemiology, 2021] https://pubmed.ncbi.nlm.nih.gov/33337540/ (pain, 2021) https://journals.sagepub.com/doi/full/10.1177/03331024211018138 [diagnosis, 2021] https://www.nature.com/articles/s41598-020-59366-9 [effects, 2020] Rozen’s big study (2008): https://pubmed.ncbi.nlm.nih.gov/22077141/ (“Eye color: the predominant eye color in cluster headache patients is brown and blue, not hazel as suggested in previous descriptions. ") Spin-offs from Rozen’s big study Women: https://jnnp.bmj.com/content/70/5/613 Tobacco: https://pubmed.ncbi.nlm.nih.gov/29536529/

I have LITTLE, beady eyes officially classified as blue, but what I would describe as something more like grey/blue - they never were close to being in the Bradley Cooper / Paul Newman class, which come to think of it must explain why Hollywood agents have failed to pursue me all these years.

Me to Jono same dates for 39 years until this years extra cycle that started end of July

...or BOTH. 23 yrs of clockwork regularity here, cycles and hit times...then cycles and hits became (thankfully) less and generally erratic for years more. my personal belief, backed by nary a whit of scientific support so wild-ass speculation, that the "aging out" of CH that every one of us has been "promised" (and some achieve) may be due to aging changes in our circadian rhythms...or, more likely, the CONTROLLER of same...the hypothalamus.

...fixed it for ya Shaun...

...old ch.com JOKE..."wimmins don't get CH"...it's kinda funny in a morbid way, when talking about clueless medicos quotes...

I'm a masochist in the BDSM lifestyle, and I tend to play pretty hard. Well, hard in respects to other people in the lifestyle, still pretty tame compared to a cluster attack. I think I've had a sadist top out at around 4 on my cluster pain scale. And that was pretty serious play. After, and during such play, the endorphins take us to a place we call 'subspace', which is similar to deep mediation. You become detached from the body and the mind can flow freely. Of course there is also often (not always) a sexual element at well, and orgasms can be pretty mind blowing. I find it very interesting to play with extreme pain in a good way, while also hating extreme bad pain such as migraines and clusters. I truly have a love/hate relationship with pain. But when I can control it, it's pretty amazing. Mox

I gurn loads just before an attack the missus notices and always will say that she knows a good 15 mins b4 I get hit. I can't really afford to lose the weight as I'm stick thin as it is . I've never been above 154 pound . After my most recent cycle I dropped to 112 pounds.