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Showing content with the highest reputation on 08/10/2022 in all areas

  1. I'd suggest you look in this file under the heading "Treatments without O2 . . . " https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ Some of the abortive strategies might help you if you need them. I would say that after caffeine/energy shots, the most effective are inhaling cold air from an air conditioning vent, or some variation of the hot water strategy (feet in it; maybe whole body in it . . . ). I'm not sure what you mean by that. If you're out of it, that's one thing. But if you feel like you can't use more than two injections in a 24-hour period, maybe you could split an injection so you're using just 2 or 3 additional mg, not the whole 6mg. https://clusterbusters.org/forums/topic/2446-extending-imitrex/
    5 points
  2. Hot soaks in the tub work like a charm for me.
    4 points
  3. Not really a lot to add as you have had the best advice possible, but I will add 1 more thing , if you have a car with air-con , when you feel the onset of an attack get your lips round 1 of the air vents in your car , turn the air-con on and get sucking, your next door neighbours will think your mad , but that's nothing new to us folk with CH . Good luck buddy hope the o2 arrives soon
    4 points
  4. .....when caught in the woods a couple times without ANY aborts...and while contemplating how dumb i was for being unprepared... i hyperventilated to dizziness. am sure the fear adrenaline of what was gonna happen helped...but dang, it was near miraculously successful... ....note that Batch has recommended a pre hyperventilation head start on your way to the O2 tank. his remarkable descriptions of the biochemistry involved are fascinating....
    3 points
  5. Thank you everyone for the advice, I appreciate it. I was able to find some non-caffeinated ginger tea and I also have a jar of powdered ginger I can tinker with. Hopefully I get lucky with a night of remission.
    2 points
  6. Hi everyone, pf wishes to you all. I wanted to ask whether anyone is supplementing with Taurine daily as a preventative? I see many talking about it as an abortive (via an energy drink etc) but wanted whether it was worth trying as a preventative? I'm testing the D3 regimen (still tweaking after 2 years on it which hasn't seen success so far but one wants to keep hoping) and thinking if adding Taurine is worth while / harmful / hopefully someone has some insight.
    1 point
  7. Thank you. I ordered following Vitamin K from Amazon. I hope this one is good as its from same company but not sure if dosage matches with the earlier one. https://www.amazon.com/dp/B07TFBGDPH?_encoding=UTF8&psc=1&ref_=cm_sw_r_cp_ud_dp_53WBV8C4CMD64C1NCEZJ
    1 point
  8. Sure pulling for ya. CH is no fun at all. I hope your oxygen arrives with a quickness! Stay strong!
    1 point
  9. I'm not big on the taste of ginger but it works pretty well for shadows and to some degree I think it helps keep the cluster bunny at bay with higher doses (2,000 mg or so). I use this product on a daily basis, two 500mg am. and two 500mg pm. I eat a keto friendly yogurt prior to the am dose as they are a bit hard on the stomach. You should be able to pick this up at a local supplement shop or at least something comparable.
    1 point
  10. Monster, redbull, 5hr drinks all can help and tend not to keep people awake when used for clusters. You can also try strong coffee at room temp, ginger tea, candy or chew fresh. feet in very hot water and ice pack on your head on the cluster side. hyperventilating like you have your oxygen tank on full blast. Vigorous exercise like pushups, running jump n jacks. Any one of the things listed can help but can also make it worse, only you know your system but try it all out and find something that will help out as much as you can. Best of luck to you
    1 point
  11. Ginger!! Tea, candy, chews, etc. Ginger is great for shadows.
    1 point
  12. Yep, Energy drinks! Or coffee. Have you had any yet?
    1 point
  13. My neurologist prescribed Verapamil (120mg 2x/day) at the onset of a cluster period when I first saw him five or six years ago. Now that we know my body handles it well I still take the same dosage but I start it in the spring before any sings of a cluster since my CH usually stats in April. This seems to help a lot since it takes a while for verapamil to start working effectively. I saw a new headache specialist this year and she prescribed a tapered prednisone treatment on top of verapamil at the first sign of oncoming CH. I have had pretty good success with limiting the frequency, severity and duration of my headaches when using one or both. I seem to get much less of the teary eye, runny nose symptoms during attacks when I am on these drugs. Hopefully you found success with your treatment.
    1 point
  14. Are you asking if you will need more and more of the vitamins dose over time? Likely not. You may need to up your D temporarily at times, but then you take it back down. The others have remained the same. I've been taking it for years now and never an issue with needing to add more except D during certain times of year. So, not a worry.
    1 point
  15. I have thought about this as well. I have never taken it alone, only in energy drinks. I think the addition of the caffeine in the drinks along with the taurine is what helps but I have never heard of anyone trying it alone as a supplement along with the D3
    1 point
  16. At the pharmacy today, I saw a big display for Astepro, which is the first antihistamine nasal spray available without a prescription. I have no idea whether this would be preferable to a pill, for people who are taking antihistamines to supplement @xxx's anti-inflammatory regimen (the "D3 regimen"). It seems that it works faster than a pill, but speed really isn't the primary consideration for people with CH. Also, it's not Benadryl's active ingredient, diphenhydramine, and some concern has been raised about whether other anti-allergy medicines are as effective as diphenhydramine (but some people have said that Claritin worked fine for them in a CH protocol). Just tossing this out.
    1 point
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