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Showing content with the highest reputation since 06/20/2019 in Posts

  1. 3 points
    Dana129

    New need info

    It really depends on the person, me personally, my worst period is the mid point of the cycle, it gradually lowers in pain intensity and frequency once I’m passed the mid point, everybody is different, though I have heard the worst headaches are at the end for a lot of people. I can imagine you’re having a very tough time right now, so i think you should look into the D3 Regimen. It’s a list of non prescribed vitamins taken daily, it’s highly effective with an 80% success rate of either complete pain free living or reduction, I suggest you research into this, it is cheap, safe and by far the best preventative for clusters, much better then verapamil or any other med a doc will give you, if you look on the new users tab, you’ll find some VERY helpful info to help you break the cycle, busting is also very effective, but I don’t have much knowledge on that personally, the d3 regimen is probably the best thing to ever happen to me, i started it 3 or so weeks ago and it has pretty much changed my life, I haven’t felt so great since before my first ever cycle, even my remmision periods were nothing like this
  2. 2 points
    I think they are very close to each other in the level of pain. I've not had Trigeminal Neuralgia, but have spoken to people who have, and what they've gone through to make it stop. If I had to guess, and it might be biassed, I'd say TN maxes at a 9 and CH pings a 10. They are both associated with the trigeminal nerve, just in different places in the face. But, pain isn't the element that makes something horrible. At least with CH, they don't often last longer then 3 hours, TN can last for days, and can be triggered by a smile. There is clearly more than one Hell. Mox
  3. 2 points
    Snazzy93

    Just diagnosed

    Welcome! I'm new here too, although I've had clusters for 9 years now. This forum and the people on it are beyond amazing. It's almost funny how close your history is to mine. From the times, and severity to the amount of time it took to actually get diagnosed. I really felt as if I was reading my own story lol! Did they prescribe you with anything to abort the headaches when you have them? Sure the main goal is to avoid getting them all together, but the sad fact with clusters is that they're very sneaky, and you'll probably end up getting them here and there despite preventative measures. Oxygen has been my go to. Before the oxygen, I had nights that were beyond miserable. My bedroom wall will agree. (Two holes, one from a fist, and one from my noggin...) It's crazy how these headaches literally make you lose control of yourself, they're a wicked monster, but they can be controlled. I would for sure scan this whole site, because there are so many stories and the advice is amazing. These headaches are different for everyone, so what works for someone else may not do anything for you or I. Best wishes! Being diagnosed and educating myself here were the two biggest steps towards controlling these monsters!
  4. 1 point
    ...nothing to add to that...…………...
  5. 1 point
    tmeseck77

    Freezing

    I sometimes get very flush during my headache, but almost always get cold on the downside, which is nice because 1 it usually means it's ending, and 2 I am so tired that being cold and kinda pain free, I can stop holding my face and rocking and lay down and sleep!
  6. 1 point
    Mr Freud, Brian? A half of a year later, and I am just about to harvest. Can you offer any advice, or directions, on dosing? When I was a pup I did these for fun, although I didn't grow them, now, I just want to do enough to beat the cluster.
  7. 1 point
    jon019

    New need info

    OXYGEN....………………………….
  8. 1 point
    CHfather

    New need info

    Dana' is right about different things signaling the end of a cycle for different people. D3 regimen (what FunTimes sent you and what you found work, too): http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 Frankly, it's very unlikely to help you with this cycle, but it will help a lot regarding future ones. Strongly suggest that you read through this to be sure you're doing all you can right now and in the future: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ OXYGEN, energy shots, Benadryl, melatonin, etc.
  9. 1 point
    FunTimes

    New need info

    That is correct.. You can also find info here https://vitamindwiki.com/Cluster+headaches+substantially+reduced+by+10,000+IU+of+Vitamin+D+in+80+percent+of+people
  10. 1 point
    Pmcali1

    Emgality Shot for Episodic Clusters

    I went to my neurologist today and she informed me it was approved yesterday by the FDA for CH and will be available for prescription (300 mL) Monday. She had samples of the migraine 130 mL doses that I took two of. Supposedly it takes a few weeks to a month to start working. I’ll keep you posted.
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