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About homelessbychoice

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  1. Hi Sheri, my name is Rob. I am so very new here though I know debilitating pain very well and sympathize for you and hope you will be recognized by SSDI soon for your situation. Pain and lifes uncertain anguish is a bad combo. In my personal experience with SSDI I was denied, as mostly everyone is. I ended up getting an attorney and like most I was accepted. It's also relieving to know that everything is retroactive from the very first day you file. When I was denied I waited 14 months to do anything about it because I felt bad enough being so young, felt so bad, and gave up. I believe the
  2. As Long as he thinks he's NOT hallucinating, he'll be fine? Besides, maybe everyone else is hallucinating? Also, if having the runs while hallucinating, is having the runs a bad thing??? He looks like comedian Jim Breuer with those facial expressions. Comedy, music, and lots of BBC's Top Gear has seriously kept me going. Thanks Proffesor, Rob I would like to add that my new findings of the CB community, it's proffesionalism and what it stands for has become a part of that list also.
  3. Thanks Bejeebers. Being what I have become, I am constantly day to day cycling on living or getting out? At this moment since discovering ClusterBusters, by freak accident, I am so thankfully overwhelmed. I am not used to communicating, never, with people like myself. I have Massachusetts state insurance so Dr. Shapiro is out though I contacted his office to possibly speak to him? I have to at least be on the patient registry for that I was told but my message will be sent to him? As for Dr. McGeeney, I used to get from my garage in Springfield, Ma, travel, park and walk to my most favorite
  4. Hi, can anyone here tell me which Dr. Robert Shapiro is attending? I googled his name and a few MD's came up? One of these doctors are only minutes from me in Springfield, MA and another in Burlington, VT. Also close enough. I would love to attend this event but living on SSDI and coming up with $1,000 for room and air, counting if I only eat what's provided at the conference and hotel continentals, isn't easy. Just did a further search and VT is the answer? Anyone here ever met with him? Thank you in advance, Rob
  5. Hi, I was not aware of ClusterBusters until less than 24hrs ago. Though oxygen does not work for me and I have tried this on separate occasions thru out my 25yrs of cluster AND migraine headaches I believe in its values. Where ever I am, hospital or in contact within any medical professional I am asked every time, every single time immediately, have you tried oxygen. It's rediculus that in the past 25yrs oxygen is not recognized. Though unwanted, addictidive and not always by choice, approved by the FDA is good to go. It's their lobbiest and pure and utter GREED. Oxygen does work and their is
  6. I have both. Chronic cluster and migraine sufferer. My pain level is a consistent 3-4 on the migraine side daily and as far as clusters go, that's multi-daily. This has been since 2009 daily and between 1991 & 2000 from October thru January. The clusters make me want to pace, move, headbang and wrap a towel up and use like a vice to squeeze my skull but, the migraine side wants utter stillness, NO LIGHT (net even the most minute LED from electronics), no noise or contact not to mention vomiting. I feel so fortunate for having this combo? I'm like a Bugatti Veyron but, the SS version I s
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