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Psiloscribe

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Everything posted by Psiloscribe

  1. Psiloscribe

    Conference Rooms

    Hi Darrell, The 22nd is Sunday night so the price holds for you if you want to leave Monday....so I'm a liitle confused. Did you want to stay Monday night also? Let me know and we'll check out whatever you need. Bob Hoping to see you there
  2. Psiloscribe

    Discouraged at the sister site CH.com

    It's not always easy being the messenger. Especially when the message can be bad news. When people say (and mean for the most part) that they'll do anything to get rid of the pain, side effects don't always matter. People don't like to hear that 9 people died from Imitrex the first year it was on the market. There is now plenty of evidence about the adverse side effects of the meds we use to treat clusters. Even Goadsby has admitted that all the prescription meds can make things worse in the long run. This includes Verapamil. The truth is not guaranteed to elicit positive responses and a thank you. It's a complicated issue and all you can do is offer your honest thoughts, do your best to differentiate between facts and opinions, and understand that people will react based upon their history, not yours. Bob
  3. Psiloscribe

    Botox?

    Yes and the best part is that although we could easily get along on our good looks alone, we also have the brains to go along with it. Not to mention our modesty ;-) Bob
  4. Psiloscribe

    Botox?

    Thanks for posting this. Botox has shown some success with migraines and also has helped some people with clusters although its really hit and miss and takes time testing it in different areas of the scalp, face. Dr. Robbins who presented at last years Clusterbuster conference has probably don't the most in the US with testing out Botox for clusters. One more clue to help detail the whole vascular headache mystery. It's also very difficult to get insurance companies to cover it for treating headaches in the US. Bob
  5. Psiloscribe

    Psilocybin study

    Professor Nutt and A. Fielding are aware and interested in our work and the relationship between clusters and the positive effects psilocybin has on them. I think they would be very interested in getting their hands on a cluster subject for their imaging work. Professor NUtt was a top government official on drug laws and was eventually ousted when he took the unpopular/anti-goverment stand that drug laws should be rewritten with penalties based upon actual harm rather than perceived harm. His list had alcohol near the top, LSD near the bottom and psilocybin OFF the list. Hence the reality that there is little to no room for common sense and truth in government think. Bob
  6. Psiloscribe

    Reason #2 - Portland

    We realize that Portland is a long way from home for many of you. We try to move the conference around so everyone can have a chance to have one nearer to their part of the country (USA) One day we hope to be hosting them internationally. We do have many members on the west coast so this one is for YOU. Hopefully many of you can take advantage of this years location. Whether its close by or if its in a part of the country you've wanted to visit. It is a beautiful area with many things to offer. Just think......people will be flying thousands of miles to be there. You might as well hop in the car and stop by to say hello!!! These conferences have been very important to our growth and to the advancements we've been able to make. Its our opportunity to introduce ourselves to mainstream medicine as well as local and national/international media outlets. Just attending the conference makes a statement and people are sitting up and taking notice more and more. I hope to see many of you there. If you're going to be there, or would like to but can't this time, let us know in this thread. I know a lot of you will be there but haven't yet filled out the registration forms. its getting o that time when we need to begin getting a head count to plan ahead. Bobw
  7. Psiloscribe

    Rant

    Between stopping some meds and loading up on others, it's not surprising that you're stuck in a headache rut. Hopefully you did taper off the prednisone, but even tapering off can land you where you are headache-wise. You shouldn't mix imitrex and "sputs" as they both increase serotonin levels so be careful. also, using small doses of any of the psychedelics as "SPUTS" will have an effect on the next full dose and block it at least partially. I know how it is when you want to grab anything available to stop the pain but sometimes less is more. I've had those all day bangers where nothing works. At that point I would take a couple aspirin (Excedrin Migraine) and tried to sleep it off. I would suggest nothing but 02 until it breaks....and it WILL break. As Mad6string said, if you stopped a large or long term prednisone regimen cold turkey, that is not good. It has to be tapered or the doc has to give you a shot to restart your adrenal gland. Just a reminder to everyone.... Always discuss stopping or starting any medications with your doctor. Bob
  8. Psiloscribe

    BOL - Bromo

    The number of people in the study needs to be determined early on before the study is even accepted and approved. A "protocol" is designed and approved by all necessary agencies and review boards (IRBs). The original BOL study was designed for 6 people, all to receive BOL and everyone knew what they were getting. This is called an "open label" study. Once the 6 people got the treatment, the study was closed and results tabulated. The next round(s) should have more people. Some may get a placebo and no one will know what they got until afterwards. Placebo controlled trials are much more accepted as far as how well the tested drug does. So, once the number of people in the study has been determined and it has been approved, the money needs to be there to begin the study. Once a study is open, the doctors/researchers running the study will advertise (if need be) for participants. People applying to be in the study will then be interviewed and complete surveys to see if they meet the criteria set up in the protocol design. Similar to what Matty described. Bob
  9. Psiloscribe

    BOL - Bromo

    No, it really can't work that way. Although it is a reality that many times, the people with the money get to the head of the line, this isn't fair to everyone nor does it put need first. As wih all studies like this, people will need to complete questionaires to see if they fit certain criteria. At this point, these criteria are unknown and will be set up by the researchers. People will not know if they meet all the criteria and medical guidelines without applying to be included in the study. Bobw
  10. Psiloscribe

    BOL - Bromo

    Here is some of what is happening on Bromo-LSD at this time. Reporting on this type of research has to be done carefully and details need to be released at certain times depending on which early stages are complete. That said, the next round in Europe is being planned and worked on now. Study design and approvals are being worked upon. The research investigators have been pulled together. We are excited about some of the people that wanted to get on board with us. We don't have a time table yet but this is moving forward very well. We are also working on a couple different fronts for getting started in the states on a BOL (Bromo-lsd...just so you know they are the same thing). This would hopefully be a larger study than the 6 person study in Germany. We are looking at, and working on, different options so that we get this underway as soon as possible. Once again, as details are finalized and we are able to announce certain milestones, you'll read it here first. Hopefully we will have many more details ready for release at the conference in Portland. Some of the researchers will be there. One thing we will be doing is supplying the BOL for the studies. Additional funding is being sought by the research teams to cover much of the costs as these studies will be expensive. The more people that are included, the more the costs involved so everyone is working to make these rounds as large as possible. All of these steps are being worked on at the same time so there is no lost time. The BOL for the first study in Hannover Germany cost Clusterbusters $10,000.00. These funds were raised by our members making donations of $10.00, 25.00 and $100.00, or simply by purchasing an auction item for $5.00 at a conference. We are hoping to be able to do the same for the studies mentioned above. If anyone would like to be a part of this fundraising effort and help us move this forward, please feel free to hit the donate button and mark in the notes, BOL. All funds marked as such will go toward Clustebuster's supplying the BOL necessary to make these studies happen. I will be making some continuing fundraising posts as we are at a critical junction so I hope you don't get tired of me holding my hand out. I know everyone does what they can and we understand that this work needs all sorts of participation. It's not just about raising money as important as that is. It takes people helping each other, people posting results, people spreading the word of what we're doing, people stepping up and lending a hand. I want to thank everyone for years of support. We've been able to make slow but steady and important progress and have only been able to do that with your continued support. thank you all, Bob
  11. Psiloscribe

    Tragedy

    If the following link doesn't explain why we need to push for more effective treatments, nothing will. I spoke with Will several times. I wish he'd called me Sunday. I dislike so much about the new direction and focus of conventional medicine being surgery. They tell the patient that "this is your last option, we have nothing else." When that doesn't work, what is a 24 year old kid to think? That he can wait until he's in his 50s and maybe grow out of them? What the medical community had to offer was an occipital nerve stimulator and high doses of oxycontin. As you all know, that regimen doesn't lend itself to being able to try our methods successfully. will took his own life on Sunday. The rest of the details I'll leave out with due respect to the family. http://www.legacy.com/obituaries/houstonchronicle/obituary.aspx?n=will-erwin&pid=142883042 Bob
  12. Here is the report on this years conference for all of you that couldn't make it. Thanks very much to Marsha W. for all the note taking and to Nell Cox and Sandi S. for helping put this report together. 4th Annual ClusterBuster Conference September 18-20, 2009 Chicago, Illinois Sponsored by ClusterBusters, Life Gas and the University of West Georgia 2009 ClusterBusters Conference Report September 18 – 20, 2009 Chicago, Illinois Saturday, September 19, 2009 Dr. Doug Wright: Doug Wright, conference chairperson, opened the conference on Saturday morning. After a brief overview of the agenda and reviewing the location of the oxygen tanks, Doug then gave a short description of CH and advised the newcomers and non-headache people what they might see during the weekend should someone experience an attack during the day. Next was a quick mention of the soon to be released ClusterBuster message board, which can now be found at: http://clusterbusters.clusterheadaches.com/ Bob Wold: The first speaker of the day was Bob Wold, the founder and President of ClusterBusters. Bob almost didnÂ’t make it to this yearÂ’s conference with some health issues, so an enthusiastic crowd welcomed him. Bob gave a heartfelt summary of his early years dealing with Cluster Headache, the 4-year delay in diagnosis before attending the Diamond Headache Clinic and being properly diagnosed with CH. Of note, one of the speakers later in the day is Dr. Fred Freitag who is now the Co-Director of the Diamond Headache Clinic in Chicago. Bob then talked about going from episodic CH to chronic and later back to episodic. He recalled some of the endless trials of 75 medications he had taken for his CH over the next 20-years. This was a tale many in the audience could relate to, evident by the nodding heads seen throughout the crowd. While considering invasive surgical techniques to deal with his pain, he one day found ch.com on the web and soon conversed with 2 men that would change his life and that of so many others with CH, 2 people on the site named Flash and Pink Shark Mark. Through these people he learned that using low-doses of magic mushrooms could end the pain of CH, it had for some and might for others. Soon after, ClusterBusters was born. From there progress was made, information was collected, gathered, sorted and compiled, theories and ideas were developed and ClusterBusters began its mission: “Our mission is to investigate indole-ring entheogens as possibly the most effective treatment yet found for cluster headaches, and to educate physicians, medical researchers, sufferers, and the public on the efficacy, advantages and disadvantages of this, and other treatments”. Later with the guidance of DrsÂ’ Sewell and Halpern, the first article on treating CH with low-dose hallucinogens would be presented at the National Headache Foundation Research Summit and eventually lead to publication in the journal Neurology. Later many other journals and papers would pick up the story from Clusterbusters. The word spread slowly and the reports kept coming in of countless successes using this treatment. Bob then touched on the newest avenue of approach; a small treatment study using a non-hallucinogenic compound called bromo-LSD (BOL) that was being conducted in Hanover Germany. Recent, yet unpublished results were very promising and exciting. Dr. Halpern would be speaking on this topic in greater detail later in the conference. Dr. John Halpern: Dr. Halpern is Board Certified in General Psychiatry, teaches on addiction psychiatry within various HMS-affiliated training programs, and is also the Associate Director of Substance Abuse Research of McLean's Biological Psychiatry Laboratory. He has direct clinical research experience administering controlled substances, including now leading MDMA-assisted experimental psychotherapy sessions for patients with severe anxiety related to advanced-stage cancer diagnosis. Dr. Halpern has been working closely with Clusterbusters for 4 years plus now and this collaboration has led to the first publication on the use of psilocybin and LSD for CH, the first cluster headache specific headache diary (available for free at the home page of Clusterbusters), and the discovery of Bromo-LSD (BOL) as a potential non-hallucinogenic treatment of CH. Dr. John Halpern provided an update on the study that he is in the process of submitting to Harvard/McLean for approval. The study proposes including 5 episodic Cluster Headache patients from the Boston area who typically have two cycles per year. Sub-hallucinogenic injections will be used on day 0, day 5, and day 10 on subjects who have been recently identified to be in cycle. There will also be an increase in dosage level on each treatment day: day 0 - one dose; day 5- two doses; and day 10- three doses. Dr. Halpern is hopeful that if this study shows treatment efficacy a larger randomized study will follow. Dr. Larry Schor: Larry Schor is a psychology professor at the University of West Georgia and a licensed professional counselor. He is also a cluster headache patient. In addition to being involved in the training of psychotherapists, Dr. Schor has been a Disaster Mental Health counselor with the American Red Cross since 1997 and has published numerous articles about working with trauma. His latest project, www.georgiadisaster.info is the official disaster mental health website for the State of Georgia. Dr SchorÂ’s presentation discussed the psychological and emotion impact Cluster Headaches can have on the patients and their families. Dr. Schor pointed out that Cluster Headache is, perhaps, the only non life threatening condition in which people with no underlying clinical depression have been known to kill themselves simply to stop the pain. Moreover, Cluster Headache patients may be reluctant to seek psychological counseling and support fearing mental health professionals may not understand the feelings of despair and consequent behavior associated with their condition. Dr. Schor also led a group discussion in the evening aimed at identifying psychotherapeutic interventions that may be helpful for Cluster Headache patients and their families. The session was well received by all those who participated. Dr. Schor hopes to develop a clinicianÂ’s guide to understanding cluster headache patients. Dr. Frederick Freitag: The next speaker was Dr. Frederick G. Freitag who is a co-director of the Diamond Headache Clinic in Chicago as well as Clinical Assistant Professor in Family Medicine at Rosalind Franklin University, Clinical Instructor of Family Medicine at Midwestern University and Clinical Lecturer in Neurology at Loyola University. http://diamondheadache.com/ Dr Freitag provided an overview of Cluster Headaches as summarized below: Cluster Headaches were first described in the literature by Gerhard van Swieten in 1745. Cluster Headaches age of onset is typically in the late 20Â’s primarily in males but the female incidence is increasing. The cluster cycles typically involve 1 to 2 cycles per year, lasting 2-3 months. The remission periods usually last 2 years, but remission periods of two months to 20 years also have been reported. The youngest diagnosed has been reported at 1 year of age and the oldest sufferer 80+ years. Cluster Headaches involve circadian and circannual features. The two most common periods on onset are 2 weeks plus/minus the summer and winter solstices. Attacks typically occur on a circadian basis, often at night and near the end of a sleep cycle. Women and Cluster Headache: Women have a higher coexistence of cluster and migraine, have an earlier age of onset 27 vs. 30 in men, have a higher mean age of onset of chronic cluster compared to men and have more migrainous symptoms than men, e.g. nausea and vomiting. Chronic cluster headache is distinguished from episodic by the following factors: loss of circannual features; no period greater than 2 weeks cluster free; loss of circadian patterns; higher frequency of attacks; and resistance to common therapies. Dr Freitag suggested some self-help approaches to possibly lessen the number of attacks while in cycle: decrease tobacco to ½ a pack or less, avoid alcohol, increase aerobic exercise and to stay up all night. Common abortive agents used to treat cluster headaches include oxygen, Sumatriptan, Dihydroergotamine mesylate, Zomatriptan, Ergotamine tartrate, lidocaine, and 5-10% cocaine solution. Preventative treatments used to for cluster headaches include cyproheptadine, lithium carbonate, verapamil Nimodipine, Divalproex sodium, topiramate, and Indomethacin. Other miscellaneous treatment include Melatonin, Greater Occipital nerve blocks, Botox, Clonidine, Tizanidine, Baclofen, Methylphenidate, and Histamine. Cluster headaches are one type of trigeminal autonomic cephalalgias (TACÂ’s). TACÂ’s involve strictly unilateral pain near the eye or temple, prominent cranial parasympathetic autonomic features, specific patterns in the timing of the attacks and the TAC subtypes differ in duration of attacks, frequency of attacks and response to treatment. Other types of TACÂ’s include: Paroxysmal Hemicrania: This headache is characterized by frequent strictly unilateral periorbital/temporal pain, autonomic features, shorter lasting headaches 2-30 minutes, increased frequency more than 5 a day, is more common in women, no predilection for nocturnal attacks and absolute responsiveness to indomethacin. SUNCT: This type of headache is characterized by attacks of unilateral short lasting pain orbital or periorbital. The pain is described as burning, stabbing and much briefer than those seen in any other TAC (seconds). It is often accompanied by prominent lacrimation and redness of the ipsilateral eye. The typical age of onset is 40-70 years. Hemicrania continua: This headache is a strictly lateral continuous headache of moderate intensity with superimposed exacerbations of severe intensity. Trigeminal autonomic feature are present as well as eyelid swelling or twitching. It is predominantly in females and has absolute responsiveness to Indomethacin. Hypnic headaches: These are characterized by being woken from a sound sleep, occurring at the same time each night, usually only one attack per night, no autonomic symptoms and the pain is not as severe as cluster headaches. The treatment is caffeine (50 to 100 mg qhs) and 150 mg of Lithium at 7 PM. Nani After a busy morning of speakers and presentation, lunch was served in the room. Over the lunch hour an auction was held, led by our own Nani (naaaa-neee). She did an amazing job of raising money through the auctioning of many wonderful gifts and items. ClusterBusters cannot begin to thank the many people that contributed items to the auction, there were so many and their generosity to us is outstanding. Remember, that all money raised through the auction and at ClusterBusters goes to helping in research and development of the treatment of cluster headache. Please remember that Clusterbusters Inc. is a IRS-approved 501 © (3) non-profit research and educational organization. Our operations and the eventual scope of our work depends completely upon donations. If you would like to help, your tax deductible donations are not only appreciated, but essential in meeting our mission. Donations can be made online at the website, www.clusterbusters.com There is also a link on the new message board at Error! Hyperlink reference not valid. Bruce Sewick: The next speaker on the Saturday afternoon was Mr. Bruce Sewick, LCPC, RDDP, CADC Bruce is a noted author, teacher and therapist, his interest in mental health started with exploration of altered states of consciousness in the 70's while an undergraduate at the University of Illinois (Chicago). He received a Bachelor's degree in Psychology in 1974 and a graduate degree in Clinical Psychology from Roosevelt University in 1997 and his LCPC licensure in 1999. For more information on Mr. Sewick, please visit his website http://www.brucesewick.com/ His presentation was titled Psychedelic Medicine: Chemical Input, Therapeutic Output. Over the next hour in a unique combination of factual presentation and humor, he delivered an educational and informative review of how psychedelic “drugs” went from being a viable medicinal treatment of many conditions to their current status as a class I drug, “of no medicinal value” and on to recent efforts and studies looking into these medications once again. His presentation began with a historical perspective of how politics influenced the drug laws and carefully examined the obvious discrepancy between the facts as they are/were known and the public misrepresentations, misconceptions and misperceptions that followed. Bruce explained that many of the early studies involving psychedelic drugs involved conditions that until then were deemed untreatable or at the least, poorly treated. He took the audience through several of these early experiments and trials. Where once psychedelic research was extensive and full of potential, the medical benefits of their use became entangle in the counterculture movement of the 1960Â’s and soon all research was halted when the governments withdrew any and all support and funding for research in this area. However, in the last 10 years there has been many well designed clinical studies in the use of psychedelic compounds and much of this recent work confirms what was known to scientists long ago, that there may be significant therapeutic benefit in the proper use of these “drugs”. Bruce discussed several of the clinical trials now being conducted around the world; these offer promise once again in the treatment of in the treatment of anxiety around dying, addictions and some intractable conditions. Dr. Tom Roberts Thomas B. Roberts (Ph.D. Stanford) investigates psychedelic mind body states for the leads they provide for learning, cognition, intelligence, creativity, mental health, and abilities that reside in them. In Psychedelic Horizons: Snow White, Immune System, Multistate Mind, and Enlarging Education he presents multistate mind theory. He specializes in psychedelics' entheogenic (spiritual) uses: as in Psychoactive Sacramentals: Essays on Entheogens and Religion and the online archive Religion and Psychoactive Sacraments http://www.csp.org/chrestomathy. He co-edited Psychedelic Medicine: New Evidence for Hallucinogenic Substances as Treatments. He has taught Foundations of Psychedelic Studies at Northern Illinois University since 1981; this is the world's first catalog-listed psychedelics course at a university. He has lectured on psychedelics internationally, published many articles, chapters, and book reviews. He originated the celebration Bicycle Day. His website is: http://www.cedu.niu.edu/lepf/edpsych/faculty/roberts/index_roberts1.html Dr. Tom RobertsÂ’ presentation was: Beyond Medicine: Psychedelic Enhancement of Cognition, Values, and Religion Dr. RobertsÂ’ presentation discussed the following: that when used with screening, preparation, and careful controls, psychedelics offer ways to increase intelligence by solving practical problems and adding new programs to our cognitive repertoire, thus expanding mental self-management (intelligence). Experimental studies show that they also provide a next step for religion by democratizing mystical and intense spiritual experiences, often giving a sense of meaningfulness. Dr Larry Robbins: Dr. Larry Robbins was the next speaker on the agenda. Lawrence Robbins, M.D. is considered to be one of the top experts in the country on management of headache medications. Robbins Headache Clinic is located in Northbrook, Illinois and Dr. Robbins is also an Assistant Professor of Neurology at Rush Medical College. His website is www.headachedrugs.com Dr. Robbins presentation was on Treatment of Refractory Cluster Headache. This is a poorly understood aspect of CH, the cases that seem to be unresponsive to any treatment. He explained that management of these cases is difficult as the patient has usually tried many treatment options with limited or no success, resulting in extreme frustration and sometimes a total loss of hope. His presentation was interesting in explaining his approach to treating those patients that have not responded to other means. Dr Robbins began his presentation with a discussion of Refractory Chronic Migraine. This diagnosis is determined if the following are present: diagnosis of Chronic Migraine; headaches must decrease quality of life and patient functioning; failed trials of two or more classes of preventative; and failed abortives: triptans, DHE, NSAIDs, and analgesics. Patients must have worked on triggers and lifestyle changes. Psychiatric and personality disorders in combination with headaches greatly influence the treatment plan and may guide selection of the medication. The prevalence of personality disorders is increased among pain and psychiatric patients. Dr. Robbins also reviewed the common preventative drugs for treatment of Cluster Headaches, the use of opioids for those with refractory clusters, the use of stimulants in addition to the opioids, and surgical procedures (occipital stimulation, radiofrequency rhizotomy, gamma knife radiation, and hypothalamic stimulation) sometimes performed for refractory clusters. Dr. Robbins ended his presentation with some good news for some in the audience. Long term studies have shown that as the length of time a patient has had clusters increases, remissions become more likely. Sunday, September 20, 2009 Dr. John Halpern Dr. Halpern is Board Certified in General Psychiatry, teaches on addiction psychiatry within various HMS-affiliated training programs, and is also the Associate Director of Substance Abuse Research of McLean's Biological Psychiatry Laboratory. He has direct clinical research experience administering controlled substances, including now leading MDMA-assisted experimental psychotherapy sessions for patients with severe anxiety related to advanced-stage cancer diagnosis. Dr. Halpern has been working closely with Clusterbusters for 4 years plus now and this collaboration has led to the first publication on the use of psilocybin and LSD for CH, the first cluster headache specific headache diary (available for free at the home page of Clusterbusters), and the discovery of Bromo-LSD (BOL) as a potential non-hallucinogenic treatment of CH. Dr. Halpern discussed the case series completed in Hanover Germany using Bromo-LSD (BOL) to treat 5 patients with Cluster Headaches. One patient (S2) with episodic cluster headache, who was in an active attack period, and four patients with the chronic form participated. All but one patient (S1) had symptoms for more than 10 years. Patient S2Â’s cluster period terminated after BOL with a long-lasting remission period of six months (at last follow-up) and continuing. Patients S3 and S5 reported pronounced reduction of attack frequency, including full remission for more than 1 month indicating transition from a chronic to an episodic form. Cluster attacks resumed after a 2 month remission for patient S5. In 9 months since BOL treatment, patient S3 describes ongoing remission of cluster period, reporting only a few solitary sporadic attacks. Patient S4 reported a profound reduction in attack frequency, though without 1 full month of remission and attack frequency increasing approximately 6 months after BOL treatment. In addition, patients S3 and S4 found the pain intensity of remaining occasional attacks so improved that they no longer administered an acute intervention as they had prior to BOL. Although patient S1 did not experience pronounced attack reduction similar to the other 4 patients, he indicated a decrease of attack intensity of about 30% within the first 4 months. It is likely relevant that patient S1 continued to drink alcohol (contrary to advice), a known and common trigger for attacks. The result of this small case study appears very promising as a possible new drug for treatment of Cluster Headaches. Dr. Halpern hopes to have the results published in a medical journal and larger studies to follow. Growing Edible Mushrooms for your Kitchen: The last session for the conference was presented by two cluster busters who have proven successful methods for growing edible mushrooms for your kitchen. Each presented their own unique method for growing mushrooms at home and the audience was clearly impressed with their methods and the pictures providing proof of their successful mushroom harvest. Bob Wold: Bob Wold provided the closing statements for the conference. He thanked each of the presenters for their contribution in making this conference a big success. He also expressed his gratitude to Doug Wright and Sherri Lynn for organizing the conference and for keeping the conference running smoothly over the weekend. Bob also thanked the rest of the conference attendees, over the course of the weekend there were approximately 80 people in attendance, those with Cluster Headaches, supporters, university students and medical professionals. Last, Bob announced that the next Cluster Buster Conference would be held in Portland, Oregon in 2010, an exact date to be determined. Notes provided by Marsha Weil with thanks to Nell Cox and Sandi Suddaby for their help.
  13. Psiloscribe

    Hi, new here. Questions bout detox and seeds.

    Psilocybin and OCD http://www.maps.org/research/psilo/azproto.html http://www.msnbc.msn.com/id/16304852/ Bobw
  14. Psiloscribe

    Hi, new here. Questions bout detox and seeds.

    The oxygen is very important if you can swing it at all. It's always best to do everything you can to get ready for these treatments to give yourself the best chance. It can change the way you treat your clusters for a very long time. So, its best to take the time to get it right the first time. On another note, I don't know if you've read any of the research on OCD but it could be that you could end up finding an improved treatment for that also. I don't want this to sound like one of those commercials selling the cure all for everything from constipation to male pattern baldness.......but.... Psilocybin has been studied as a treatment for OCD and they have had some very impressive results. I could point you to some of the study results. Also, you don't need to detox from the Prozac. Bobw
  15. Psiloscribe

    New Website Release

    Hello friends, Our new Clusterbuster Corporate website is now open for viewing. The site will be the place to go to get the latest on our research and news. The site is still located at the old address; http://www.clusterbusters.com/ A big thank you to Doug, Sherri and Michelle for all the hard work that went into bringing this new site to life. As you may know, most of the old files that contained the information on the different treatments, including the FAQS, can still be found on the Clusterbuster message Board in the "Files" section. http://clusterbusters.clusterheadaches.com/ The 5th annual Conference is coming up. I hope to see a lot of you there. I know there are many options for you and finances are tough for many these days. Doug and Sherri are putting together an excellent program again and we'll be presenting the latest work on Bromo-LSD as a treatment and update everyone on the latest research studies. http://www.clusterbusters.com/convention5.htm Bob
  16. Psiloscribe

    through the family album

    About 10% of people with clusters have some family history of clusters. Compare that to the general population of somewhere around .3 to .5 percent. Looking at it the other way, 9 out of 10 of us are the only member in the family that ever had clusters. So, it seems that if someone in the family has them, it's more likely that they'll show up again than in the general population, but, what part of that may be from genetics and/or environmental factors, who knows. Bobw
  17. Psiloscribe

    top 5 spore prints for CH

    The easiest cubensis strains are probably; Equador B+ Hawaiian can grwo pretty large Puerto Rican can produce large numbers but usually smaller They are all very similar in potency. Bobw
  18. Psiloscribe

    have last minute questions

    1. we usually suggest starting around 10 just to make sure you dont have any advrse effects from them. A couple people (out of ?hundreds) have had a little difficlt time tolerating largerdoses. There are a few things in there besides LSA (ergot related molecules). That said, 30 has been a good place to start for the vast majority of people. 2. All it takes is a couple ounces of water. Doesn't taste real good so the more water, the more you need to get down. 3. Baggie in the fridge best of luck, Bob
  19. Psiloscribe

    Any reason WHY we get these?

    As to what has been mapped in our brains, the only thing so far is that we have a slightly increased hypothalamus mass. Whether that is a result of something else or a primary factor, who knows. As to the question of prior use possibly being a factor, you can cross that one off the list, BA. The vast majority of people trying this treatment had never before used psychedelics. I would venture a guess based upon discussions with hundreds (thousands?) of people with clusters, that the percentage of people that have clusters and had used psychedelics prior to onset, matches the national averages of psychedelic drug use. I think its less than 10% of US adults have used them and I'd think that number would match with cluster people. Bob
  20. Psiloscribe

    clusterheadachesfree

    Wow,,,,,,,all that comes to mind is....... I dunno.
  21. Psiloscribe

    Tragedy

    CArl, You know I couldn't agree more. Bob
  22. Psiloscribe

    Travelling and dosing

    Oxygen will be available at the conference. I usually take a small maintenance dose right before flying. never had a problem on a plane since doing that. Bob
  23. I think this is a very good idea. Thanks for bringing it up. I dont know if the Insurance companies here would go for it but your idea of a related association just might fly. With the changing landscape on health care here in the states, its certainly something that common sense says would be a good idea. We will take a look at this. Any and all help on this is appreciated. Bob
  24. Psiloscribe

    extending my hand too all

    I'm very happy to hear you've put the gamma knife on hold. I did the same about 8 years ago when they had only tried it on about 6 people with clusters and I was already scheduled. i decided try mushrooms first and havent looked back since, except to thank my lucky stars. I'm actually pretty upset about the direction of some of the cluster medical community (doctors, researchers) devoting all their resources toward different surgeries. They all continue to show poor results. Two separate 6 person studies on the DBS have each caused the death of someone in the study, yet they continue. One has to wonder if the $150,000.00 price tag has anything to do with it. I actually though they had given up on the Gamma Knife some time ago. Bobw
  25. Psiloscribe

    Happy Birthday Psiloscribe!!

    All I can say is Thank you all very much. I do appreciate all the well wishes and kind words. And Fun Guy, there is always Portland to make up for your gluttony. ;-) Thanks again everyone, Bob
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