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ClusterBusters

Psiloscribe

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Posts posted by Psiloscribe


  1. Each of my CH cycles seem to be somewhat unique and can be resistent to previously successfuly treatments.

    This is fairly typical.

    what I would like to know is....where is the evidence that imitrex has any long term or rebound impact on the patient?

    There are a couple studies out there that show this to be the case. I'll try to dig them out unless someone beats me to it.

    And if there is a rebound impact, who cares? Just manage my pain until the cycle is broken and I then don't have to worry about the rebound!.

    The reason it is an issue is because many people report increased frequency of attacks and extension of their cycles, that occurred after beginning Imitrex.

    Did you keep any records/headache diaries from the early years of your cycles?

    Everyone doesn't experience this rebound effect but many report that the cycles that used to last 6 weeks with 2 attacks per day, are now in cycles that last 3 months with 4 or 5 attacks per day...(examples only)

    My CH's started in 1984. Bless the doctor who 1st prescribed imitrex to me in 1995. This is the first year anyone has suggested rebound headaches.

    That's because for years, there were no studies proving the rebound effect. Not surprisingly, most headache research is funded by pharmaceutical companies. Just about all of which today offer one form or another of triptans like Imitrex.

    so why can't I be allowed to manage my pain until they break my CH cycle?

    Who is telling you that you can't?

    Bobw


  2. Well I have been researching BOL and found it has been around since the 1950's.  Phil

    Yep, it's been sitting around gathering dust since the 50s just like LSD, and for the same reasons for the most part.

    There is some question as to whether we can get it manufactured in the States without going through everything we have to go through for LSD.

    The reason being that to make BOL, you must first make LSD, which as we all know, is not legal to do.

    Hoops Hoops hoops....Where's Michael Jordan when ya need 'em.

    If you check out the 2-Bromo thread in this section, you'll find the info on Sansert vs. Bromo

    Bob


  3. Hope it's ready soon.

    The sooner we raise the funds for the next round of trials, the sooner it will be ready for prime time! Thanks for the plug for the paypal donation button ;-)

    No other side effects I wonder?

    Something somewhat similar was tried in the past and some people are still using it (mostly outside the US) called Sansert.

    I looked at this comparisson very closely with Dr. Passie to see what makes the BOL better and safer.

    Sansert can be a fairly effective preventive for some people but it needs to be used every day. There are relatively few side effects if Sansert is used for less than 6 months at a time. After that, it can have some very destructive side effects.

    BOL on the other hand is only used a few times to break the cycle just as the other "Clusterbuster" methods.

    Based upon earlier research with BOL, it appears very safe.

    Based upon our work at Hannover, BOL appears very effective. Much more effective than Sansert (or anything else for that matter) and only needing to be used rarely. It is not a daily preventive.

    Color us ALL stoked ;-)

    Bobw


  4. A review in the NY Times

    http://www.nytimes.com/2009/11/01/arts/01weekahead.html?_r=1

    Television

    Neil Genzlinger

    “The brown acid that is circulating around us is not specifically too good,” an announcer memorably intoned all those years ago at Woodstock, magnifying LSD’s already bad reputation among Establishment Americans. If hippie freaks were warning other hippie freaks away from it, it must be nasty stuff indeed.

    Now, as the 40th anniversary of Woodstock fades in the rearview mirror, the National Geographic Channel is giving LSD a second chance, as it were. On Tuesday night in its “Explorer” series, “INSIDE LSD” talks to scientists and therapists who are examining the narcotic anew, trying to learn specifically how it works in the brain and whether it might have uses that Jerry Garcia never envisioned. The program, as its narrator, Peter Coyote, says, is an attempt “to separate the myth from the molecule.”

    One segment explores the possibility that some form of LSD could help sufferers of cluster headaches, and its footage of one such sufferer in the throes of an attack leaves you wishing the poor fellow relief no matter where it might come from. In another part of the program, a woman with terminal cancer talks about how an LSD trip helped her break free of the anxiety about death that was consuming her final months.

    “It was my faith coming back to me,” she says, describing the feeling brought on by the drug. “My faith that there’s something out there."


  5. Hopefully it will be available elsewhere. There are a lot of people that won't get this channel.

    I imagine there will be DVDs available through NG and I know others will be recording it.

    Hopefully we will have more than a short piece at the end.

    Should be good!!!

    Bobw

    Welcome to the new board everyone!!  :)

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