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ClusterHeadSurvivor

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Posts posted by ClusterHeadSurvivor

    Short Term Memory

    in General Board

    Posted

    I had a 6.5 hour assessment at a university hospital. Their conclusion was that when my attacks stop my short term memory wont get worse.

    They said it was from constant trauma to the brain.

     

    I was extremely upset. And said lady there is no cure.........long pause on the phone.

    "OH" she said.

    End of conversation after a day at a hospital with 3 doctors, a video camera and hours of questions.

     

     

    A lot of us Cluster Heads have short term memory loss. One of my old jobs I had required me to have an impeccable memory to do my job. I wouldn't last 2 min doing that job now.

    Charlie Sheen has cluster headaches

    in General Board

    Posted

    This and Terrance Knighton with the Washington Redskins.....

    Although I am not a fan of any sports unless it has wheels and a motor I am grateful he has spoken up.

     

    I have reached out to Terrance personally and althought his response was brief, I am sure the line up of cluster heads reaching out is long.....

     

    Whether you are Charlie Sheen, Terrance Knighton. Dan, Bob, me, you or anyone. We are all equals. No one is superior in this fight  and we all must support one another rich famous poor or whatever.

     

    I am a tad disheartened and with no disrespect to Terrance or Charlie but sadly the public only gives a sh*t when someone famous is sick. 

    We must not give up. We must continue to fight and reach out.

     

    PF wishes all of you.

    • Like 1

    Dr Elliot Shevel

    in General Board

    Posted

    These people RELENTLESSLY email me on my YouTube videos andconstantly try to post on my blog.....they do not give up.

    I prescreen all blog and YouTube video comments.

     

    If anyone ever wants to talk to me about surgery I am gladly willing to share my experience. I have never forced my choices on anyone. I share my experience with people and let them make their own mind up based on their beliefs, not mine. 

     

    I have PTSD now thanks to brain surgery. Amongst an array of other side effects.

    recommended doctor list

    in General Board

    Posted

    Just wondering if anyone has had success with the Ontario, Canada doctors?

    I am new and just trying to figure out the site.  Grateful it is here.

     

    Dr.Paul Cooper-nuerologist at University Hospital London Ontario

    He is the best neurologist in Canada for Cluster Headaches.

    He won't offer you a cure or some BS story. But he is a kind caring man with a huge empathetic heart who knows whats Clusters are.

    The wait is about a year for first appointment(well it was for me).

    Here is Dr.Cooper and me.

    http://london.ctvnews.ca/video?clipId=553958

    • Like 1

    RIP Buster

    in General Board

    Posted

    46 days later. my eyes still water every time i think or look somewhere in the house where he is.

    its incredible how so many can be so compassionate and yet others tell me to quite my belly aching and to fix it is get another dog and replace him.

    I wouldn't replace my dad if he died so why my dog?

    dogs find us...we don't find them.

    we reply on dogs, not them to us.

    they don't love us, they only know how to love.

    i miss Buster so much and anyone who has loved and lost a pet knows the grief. You don't get over it, you learn to live with it.

    The only anger I have is the previous owners and how Buster was robbed of 80% of his life.

    Thanks for the kind words but i am no one special.

    RIP Buster

    in General Board

    Posted

    thank you kindly for the wonderful words.

    Everyday is getting better. Less tears and more smiles of him.

    normal for any loss in life.

    I still get signs everyday that point its him.

    I miss him to bits...oh wait. Ill cry....again. Its ok.

    Im sure he misses us too.

    thank you....

    hugs

    Trigeminal Neuralgia?

    in General Board

    Posted

    I have a friend with TM. We have the same neurosurgeon. She had 12 surgeries in 1 year. She still suffers daily with zero relief. Poor gal. My heart bleeds for her and you and anyone with TN.

    Pain free wishes

    RIP Buster

    in General Board

    Posted

    That is so kind....I did not post this for sorrow. If anything gets something from this...its to hug your dog and if you don't have one and want one....go to Animal Care and Control or Humane Society ask for the dog that has been there the longest and take that dog.

    thank you everyone.

    RIP Buster

    in General Board

    Posted

    Just the mere thought of him brings me to ears. The irony behind his name and me Busting is uncanny.

    I will be forever indebted to him

    I have had 10 dogs in my life. Still have one now. BUt for whatever reason This hurts the most

    I beleive it was because I did not give up on him as my wife did not give up on me where everyone else had.

    I lost friends, a career, relationships.....Buster was left for dead..No one cared but us. I begged my wife we keep him but I remember the day i asked I knew he would make me cry when he was gone.

    My dog was like a son to me, and ran to me during my attacks where others ran the other way.

    He was sick. so am I. We compliment eachother

    My facebook page has alot of videos. Some recent, My poor Bella girl wanders the house crying for him.

    This sucks ass soooooo bad. I miss him soooo much.

    A part of me died with him

    Thank you everyone

    RIP Buster

    in General Board

    Posted

    who in their right mind would let this animal go homeless?

    Let his teeth rot? Abuse and neglect this boy?

    Anyone who hurts, abuses,neglects an animal should rot in hell

    post-93-14384707525107_thumb.jpg

    RIP Buster

    in General Board

    Posted

    Some of you have met me in person.

    After my 4th brain surgery we arrived home. Had some company over and I could barely walk without falling over.

    I DO NOT DO SURGERY WELL, the side effects were bad for me.

    I just got home and it was day 5 after surgery

    Our friends came by. and a few hours later my wife had to work, as she was leaving she came running in the house and said hey there is a little dog in the driveway, he is so friendly and I dont want to run him over, can someone help.

    So we went outside and here was the little friendly dog.

    Unable to wag his tail verticle because his hair was dread locks. he stunk so bad. his haor was yellow and blood stained. He was in very bad shape. i went to pet him and all I could feel was bone. He was starving.

    We ran inside got him out dogs food and feed him. He ate it.

    he had no collar. And was obviously homeless This was Nov 18.

    Animal Care and Control doesn't pick up animals so our friend drove him there.

    I spent the next few days checking online, pet stores, trees,mailboxes, anywhere that would have a posting for a small dog missing. Nothing.

    I called Animal Care and Control.They said he was 9-11 years old minimum. They had de wormed him, de flea him. But he was going blind, deaf, had rotting teeth(hence the blood stains) and was very sick.They estimated he was homeless 3-6 months. Chances are he would be put down. No one adopts sick old dogs.

    By law we had to wait 5 days for owner to claim him. My wife and I had zero intention of raising another dog. But this little guy was long negleted and absued. That weekend it went well below freezing. He would have froze to death if he was homeless. So we went and got him back.

    Buster lasted 2.5 years. he passed away Thursday. He must have had something nuerological wrong with him. Because he lost his marbles in the middle of the afternoon. He had done it before but it was short lived, under 10 min. This time he did not sap out of it. I had to put him down. The vet said it was his time.

    In 2.5 years. he had 250+ vet visits. North of $7000 spent on him and I don't regret it and would do it again just to have him back.

    I knew he was sick. We knew he was going one day. I just didn't think it would hurt this bad. I didn't think that this loss would have hit me this hard.

    I went from seeing him in the kitchen to having to bury him in less than a few hours. It was the hardest thing I have ever done in my life.

    He was and will always be family to me.

    When we got him. I just knew he was a Buster. I myself had not Busted yet but the irony behind his name is incredible.

    He was beside me almost every attack. Always comforted me, never affraid no matter how much I yelled in agony. He always gave me kisses no matter what.

    I miss my Buster more than anything. This loss is deep.

    I am angry that we were robbed th 3/4 of his life. That he was long neglected and abused before he was homeless. My vet figured he was 15, and said that he was abused and neglected long before he ended up homeless. He should have been loved and taken care of like we did from day 1. I know we gave him a good 2.5 years. But it still hurts. :'(

    If you have a dog. Love him/her. Walk them, play with them, love them. One day they be gone and it will hurt equally.

    For me Buster.....rescued me.

    (thanks for reading)

    This photo was how we found him. His tail was so long he couldn't raise it, when it wagged, it swept like a broom. Groomer shaved him and took over a foot of hair off his tail....

    post-93-14384707523014_thumb.jpg

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