birdman

Another awesome story for a D3 regimen. Awesome!!!

I'm not to educated on much besides the mushiness and the vitamin d3 and even that is limited. Never was a science guy but will do some reading on the cannabis oil. First, I gotta kill this cycle before it kills me

Glad to see you are upbeat. Once I get this damnable cycle behind me I would love to meet you. As I have stated before, I have only meet one other sufferer in person and it would be great to talk to someone again who knows the pain.

I should have said I am a fellow Nyc res. I went to school at Hofstra and loved to hit the beach on weekends. Now if I could only get out of cycle.

Wow, seems you have a lot to handle besides the CH and that's enough for anyone. As a fellow NYer I am sorry to say I heard about the accident which resulted in two fatalities, driver and passenger. I am so glad you had the strength and commitment to make the conference. I missed it as I am currently in cycle but it doesn't seem like you let that stop you. And that's a good thing. I finally got correctly diagnosed at Montefiore and credit them with saving my life as well. I hope you can continue your efforts and thanks for sharing!!

Good to know as nighttime seems to be my biggest issue lately. Heck, if you said sleeping velcroed to a wall I would try it. Hey, there's an idea. Lol

Definitely a better mode of thinking for your neighbor. That's one down and a few billion more to go. Lolol

As you mention sleeping with low levels of o2 I thought back to my previous wish. O2 pumping into the house like they say the casinos do. Set up in my bedroom would be great. Sorry, rambling. Enjoy the conference and please keep updating. Thanks jeebs

Always thought about the recline versus laying down thing. No recliner in the house but maybe tonight I will give the couch a try with my feet up. Can't hurt. Vent away vent away

I feel for you as I too am mostly now only experiencing nocturnal hits. Frustrated is a nice way to put it

If I had a nickel for every time I said to someone that I get cluster headaches and hear, oh yeah, I've gotten them...I would donate all proceeds to a cure. I have only personally meet one other clusterhead in my almost 30 years of living with this. ONE!! I have to get to the conference one year

It's not my temper that gets me it's my anxiety and lack of patience. The fact that we suffer like this in 2014 with all the medical research in neurology makes me insane. My calming mechanism, besides Ativan, is my faith, family and friends. Over and over till I'm through dancing with the devil.

Definitely please keep everyone up to date. It is a very interesting subject.

Get the seeds, never hesistate. Like ever

I am doing GREAT!!! Hope not to jinx it. Think about you guys and hope things are going well.

Awesome news, hope you punched it in the face

Been thinking about you guys and sending positive vibes your way. I hope he gets the best results possible, we suffer enough that we can be a little greedy. Please keep us posted on his progress and I will keep sending thoughts your way.

Thankfully, still pain free. Busting and D3 appear to have been awesome. Lets hope we are close to getting BOL ready. Hope all are well!!!

All the best, you way of coping with this condition may take a major change for the better. Be well!!

My amateur opinion has always been...if you can hold off for at least three days then wait. If you can't...bust. Worst case, you may not get full effects. Everyone has to make the choices they think they need. With oxygen, I have always been able to wait but would never hesitate if things got bad.

Thinking and praying for Jan and his upcoming surgery. I hope the current relief continues.

Wow, I hope it brings about some serious relief. Please keep us all updated, glad he has gotten some rest.

Thanks Elly and glad to hear good times for Jackie. Hope a lot of pain free days ahead.

Still pain free and looking to stay in touch. On the vitamin D3 regimen and have M ready for a maintenance dose. Life is good right now, hope all fellow cher's are getting some relief.

AWESOME news!!! Happy for you folks and hopefully some normalcy in your life.