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birdman

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Posts posted by birdman

  1. Wow, seems you have a lot to handle besides the CH and that's enough for anyone.  As a fellow NYer I am sorry to say I heard about the accident which resulted in two fatalities, driver and passenger.  I am so glad you had the strength and commitment to make the conference.  I missed it as I am currently in cycle but it doesn't seem like you let that stop you.  And that's a good thing.  I finally got correctly diagnosed at Montefiore and credit them with saving my life as well.  I hope you can continue your efforts and thanks for sharing!!

  2. If I had a nickel for every time I said to someone that I get cluster headaches and hear, oh yeah, I've gotten them...I would donate all proceeds to a cure.  I have only personally meet one other clusterhead in my almost 30 years of living with this.  ONE!!  I have to get to the conference one year

  3. It's not my temper that gets me it's my anxiety and lack of patience. The fact that we suffer like this in 2014 with all the medical research in neurology makes me insane. My calming mechanism, besides Ativan, is my faith, family and friends. Over and over till I'm through dancing with the devil.

  4. Been thinking about you guys and sending positive vibes your way.  I hope he gets the best results possible, we suffer enough that we can be a little greedy.  Please keep us posted on his progress and I will keep sending thoughts your way.

  5. My amateur opinion has always been...if you can hold off for at least three days then wait.  If you can't...bust.  Worst case, you may not get full effects.  Everyone has to make the choices they think they need.  With oxygen, I have always been able to wait but would never hesitate if things got bad.

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