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Dallas Denny

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  1. Like
    Dallas Denny got a reaction from xBoss in Pain down neck and into shoulders   
    Quite common among clusterheads to get a "cluster knot" in their neck and shoulder on their cluster side and I am most definitely included in that group!
    Dallas Denny 
  2. Like
    Dallas Denny got a reaction from ThatHurtsMyHead in Interesting info on legalization   
    Yuppers... Oregon is next!!  Who'd a thunk we'd see this...EVER!!!!
  3. Like
    Dallas Denny reacted to BostonHeadacheDoc in New here but not new to the evil!   
    Hi bobcat, 
    Well that sounds rotten. Certainly not CH as the headache is all day, also CH is strictly one sided- sounds like yours is not? Not CH in which case verapamil is not going to help at all at all. Indomethacin is non specific, certainly a good anti-inflammatory, beware known to be very irritating to the stomach. Best avoid using the term cluster-migraine as it causes mass confusion and it is mostly used by folks who know not what the attacks are. 
    Your story at the gym (at least you were lifting a dumbbell) and sudden headache- that is often one of 2 things, a thunderclap headache- which can be a syndrome known as reversible cerebral vasoconstriction syndrome (RCVS) but that only lasts- days to weeks; or could have torn a muscle, ligament or other neck hardware resulting in a cervicogenic headache (caused by neck problem). I totally understand why they thought of low pressure headache- can present with quick onset headache focused at the back of the head (can be thunderclap). Low pressure/low CSF volume headache is generally positional - you get much better quickly lying down, with head down, only for the pain to come back quickly when upright.
    Out of control high blood pressure can also present like this- as you have high blood pressure you had better be measuring your blood pressure at home (with a home BP kit) to make sure it is not very high). Botox is not going to help you.
    I was recruited to the Graham Headache Clinic at Brigham and Women's Faulkner Hospital April 15th. Fell free to PM me if you have any Qs or bmcg@bu.edu 
  4. Like
    Dallas Denny got a reaction from CHfather in Make this site as accessible as possible. :)   
    G'evenin ya'll!
    Many good points here!
    As Chf stated, much has changed in the years since we both became involved with clusterbusters.......all of the information in the busting files is based on the anecdotal evidence and surveys from the first few years.....and we've now added another 10 years of folks experience and anecdotal evidence with no new surveys or significant rewrites to the original information.
    I've spent many, many hours cleaning up the corruption caused to the numbered buster files by the migration from the original yabb powdered board....however, it's not possible to pin them in numerical order so I've pinned just the "Clusterbusters Files Content" page with current links to the numbered files.
    I'm also going to meet with Bob W at the conference to discuss updates and changes to the board along with staffing..... I ain't no sprang chicken, Spiny is recovering from surgery,  we've completely lost bejeebers,  Jeff (That hurts my head) isn't here as much as in years past, and everytime I talk to Bob W he's headed to another conference or presentation on our behalf so we are rarely graced with his presence.
     At any rate, please continue with suggestions in this thread and I'll use it for notes when Bob and I meet up.
    DD
  5. Like
    Dallas Denny got a reaction from CHfather in Make this site as accessible as possible. :)   
    G'evenin ya'll!
    Many good points here!
    As Chf stated, much has changed in the years since we both became involved with clusterbusters.......all of the information in the busting files is based on the anecdotal evidence and surveys from the first few years.....and we've now added another 10 years of folks experience and anecdotal evidence with no new surveys or significant rewrites to the original information.
    I've spent many, many hours cleaning up the corruption caused to the numbered buster files by the migration from the original yabb powdered board....however, it's not possible to pin them in numerical order so I've pinned just the "Clusterbusters Files Content" page with current links to the numbered files.
    I'm also going to meet with Bob W at the conference to discuss updates and changes to the board along with staffing..... I ain't no sprang chicken, Spiny is recovering from surgery,  we've completely lost bejeebers,  Jeff (That hurts my head) isn't here as much as in years past, and everytime I talk to Bob W he's headed to another conference or presentation on our behalf so we are rarely graced with his presence.
     At any rate, please continue with suggestions in this thread and I'll use it for notes when Bob and I meet up.
    DD
  6. Like
    Dallas Denny got a reaction from CHfather in Make this site as accessible as possible. :)   
    G'evenin ya'll!
    Many good points here!
    As Chf stated, much has changed in the years since we both became involved with clusterbusters.......all of the information in the busting files is based on the anecdotal evidence and surveys from the first few years.....and we've now added another 10 years of folks experience and anecdotal evidence with no new surveys or significant rewrites to the original information.
    I've spent many, many hours cleaning up the corruption caused to the numbered buster files by the migration from the original yabb powdered board....however, it's not possible to pin them in numerical order so I've pinned just the "Clusterbusters Files Content" page with current links to the numbered files.
    I'm also going to meet with Bob W at the conference to discuss updates and changes to the board along with staffing..... I ain't no sprang chicken, Spiny is recovering from surgery,  we've completely lost bejeebers,  Jeff (That hurts my head) isn't here as much as in years past, and everytime I talk to Bob W he's headed to another conference or presentation on our behalf so we are rarely graced with his presence.
     At any rate, please continue with suggestions in this thread and I'll use it for notes when Bob and I meet up.
    DD
  7. Like
    Dallas Denny got a reaction from CHfather in Make this site as accessible as possible. :)   
    G'evenin ya'll!
    Many good points here!
    As Chf stated, much has changed in the years since we both became involved with clusterbusters.......all of the information in the busting files is based on the anecdotal evidence and surveys from the first few years.....and we've now added another 10 years of folks experience and anecdotal evidence with no new surveys or significant rewrites to the original information.
    I've spent many, many hours cleaning up the corruption caused to the numbered buster files by the migration from the original yabb powdered board....however, it's not possible to pin them in numerical order so I've pinned just the "Clusterbusters Files Content" page with current links to the numbered files.
    I'm also going to meet with Bob W at the conference to discuss updates and changes to the board along with staffing..... I ain't no sprang chicken, Spiny is recovering from surgery,  we've completely lost bejeebers,  Jeff (That hurts my head) isn't here as much as in years past, and everytime I talk to Bob W he's headed to another conference or presentation on our behalf so we are rarely graced with his presence.
     At any rate, please continue with suggestions in this thread and I'll use it for notes when Bob and I meet up.
    DD
  8. Like
    Dallas Denny got a reaction from Brain on fire in Research on new tryptamine option   
    If.... IF....they're saying the have 5 Meo Dalt available then it is definitely a scam!
  9. Like
    Dallas Denny got a reaction from ThatHurtsMyHead in Micro Dosing   
    G'mornin Phil 
    As a guy about to turn 72, I can so relate....unfortunately, in my opinion, there's just not enough anecdotal evidence yet to show that micro dosing is an effective treatment for clusters.....a scant few claim success but 1/10th to 1/20th of a recreational dose (175 - 350mg) is not enough for most folks to reach a therapeutic trip level !
    Dallas Denny 
  10. Like
    Dallas Denny got a reaction from CHfather in Any input   
    Hey teach!
    I'm sorry but I can't remember what your ch history is off hand but if you've had clusters for a while and are now in a 4 month cycle that coincides with your neck injury, you may well have acquired a 2nd diagnosis of cervicogenic headaches as well!!  
    They mimic clusters in many ways.....my good buddy Hollywood Dan of NatGeo fame has both dx's.....the good news is that he is able to get relief from the cervicogenic hits with nerve facet injections every few months!
    DD
     
  11. Thanks
    Dallas Denny got a reaction from dmlonghorn in Traveling (driving) with an Oxygen Cylinder   
    Hey dm
    If it's a large cylinder with cga-540 connection, you need to remove the regulator and transport with the neck cap on.  I've carried my large weld ox tank in strapped down in the bed of my pickup many times......I could get pulled over, hook up the regulator, and be huffing in short order!
    DD
  12. Like
    Dallas Denny got a reaction from Clusternana in Cluster headaches and crying   
    Hi clusternana!
    Prior to finding out about oxygen in 2007 and busting in 2009, when my hits were still in that 45 to 90 minute range, the more agitated I got included crying the worse the attack got.....since combining O2 and busting, I've experienced just 3 or 4 crying, snot slinging Kip 10's......the vast majority of hits over the past 10 years never got above 3-4 and were easily aborted with O2 and hot coffee or tea in 5 to 7 minutes and oftentimes less than 5 minutes.......still the same on agitation though as far as exacerbating the intensity of a hit!
    Dallas Denny 
  13. Like
    Dallas Denny got a reaction from Freud in Cluster rules   
    Just when ya think you've figured the Beast out, he's gonna morph.....the one consistent thing about ch!
    And I agree with all of your other rules as well MG!
    DD
  14. Like
    Dallas Denny reacted to jon019 in Cluster rules   
    ….it won't kill you...no matter how many times you wish it would....
  15. Like
    Dallas Denny got a reaction from Brain on fire in Congress is Useless - Paid Political Hacks   
    Lmao!  BOF, I just looked back to find the thread "10 years of preventative success"......actually posted 7 years ago yesterday by jammin who is one of the original busters!!
    He told us about Bomba's shack and his special shakes.....and warned us that if your girlfriend goes with you and Bomba asks her to sit on his lap that she shouldn't do that!
    And yeah, coming back to the world to be spit on and ridiculed sucked.....but it wasn't long before the cold hard truth slapped me in the face and I became an active member of Vietnam Veterans Against the War and dropped out, tuned in, and turned on!!
    DD
  16. Like
    Dallas Denny got a reaction from Brain on fire in Congress is Useless - Paid Political Hacks   
    Lmao!  BOF, I just looked back to find the thread "10 years of preventative success"......actually posted 7 years ago yesterday by jammin who is one of the original busters!!
    He told us about Bomba's shack and his special shakes.....and warned us that if your girlfriend goes with you and Bomba asks her to sit on his lap that she shouldn't do that!
    And yeah, coming back to the world to be spit on and ridiculed sucked.....but it wasn't long before the cold hard truth slapped me in the face and I became an active member of Vietnam Veterans Against the War and dropped out, tuned in, and turned on!!
    DD
  17. Like
    Dallas Denny got a reaction from JJinNJ in Congress is Useless - Paid Political Hacks   
    To be perfectly honest Batch, I've had no use for politics or gub'mint since they sent 50,000 young men like you and I both were at the time to fight and die in a war under false pretenses.....just to put another dime in their feckin pockets!!
    And it's the same damn thing here.....big pharma, tobacco, insurance, ect own all of them!
    IMHO, only 2 scenarios can bring about any meaningful change to the quagmire we're in......term limits, ain't no way Congress is passing that......and armed insurrection, and we both know that things are gonna get real ugly with that option before it gets better....if it does in fact get better!!
    IDK, there's been several times in the past couple years that I wish I'd made the choice to go to Canada instead of Nam!
    Hell, I've taken to turning the news on when I know it's just about time for the weather so I dont have to hear about all the bullshit that's goin on!!
    DD
  18. Like
    Dallas Denny got a reaction from JJinNJ in Congress is Useless - Paid Political Hacks   
    To be perfectly honest Batch, I've had no use for politics or gub'mint since they sent 50,000 young men like you and I both were at the time to fight and die in a war under false pretenses.....just to put another dime in their feckin pockets!!
    And it's the same damn thing here.....big pharma, tobacco, insurance, ect own all of them!
    IMHO, only 2 scenarios can bring about any meaningful change to the quagmire we're in......term limits, ain't no way Congress is passing that......and armed insurrection, and we both know that things are gonna get real ugly with that option before it gets better....if it does in fact get better!!
    IDK, there's been several times in the past couple years that I wish I'd made the choice to go to Canada instead of Nam!
    Hell, I've taken to turning the news on when I know it's just about time for the weather so I dont have to hear about all the bullshit that's goin on!!
    DD
  19. Like
    Dallas Denny got a reaction from Freud in Portland Oregon sufferers?   
    Hi Monica!
    I have several longtime clusterhead friends in the Portland area.....just chatted with one on Facebook messenger who's just south of you in Corvallis.....she told me I could share her contact information with you if you'd like to shoot me a PM
    Dallas Denny 
  20. Like
    Dallas Denny got a reaction from Freud in Portland Oregon sufferers?   
    Hi Monica!
    I have several longtime clusterhead friends in the Portland area.....just chatted with one on Facebook messenger who's just south of you in Corvallis.....she told me I could share her contact information with you if you'd like to shoot me a PM
    Dallas Denny 
  21. Thanks
    Dallas Denny got a reaction from Into Light in 2019 Patient Conference   
    Hi Into light!
    I know I recieve a registration email every year and I'm fairly certain that all members here do as well!
    DD
  22. Like
    Dallas Denny got a reaction from Brain on fire in Suna syndrome or cluster headaches?   
    Welcome to the forum Katrina 
    I have to agree with Freud here.....you might research one of the other TAC headaches called SUNCT........15 individual cluster attacks in 24 hours is the most frequent I've ever heard of!
    DD
  23. Thanks
    Dallas Denny got a reaction from Into Light in 2019 Patient Conference   
    @jherbertartist
    Travel scholarship application info is usually posted around Mar/Apr
    DD
  24. Like
    Dallas Denny got a reaction from Elliott in PLEASE HELP - Bangkok, Thailand   
    There's a place called Bomba's Shack on the island of Tortola in the BVI that sells shroom tea!
    DD
  25. Like
    Dallas Denny got a reaction from CHMom in Oxygen supplier   
    Always love hearing about a good O2 supplier Freud!!
    I loathe the taste of ALL energy drinks so I keep a cup of Joe in the microwave at all times when I'm cycling.......at the 1st tinge I nuke it for 60 seconds and while its warming I hit the O2.....when hot, I shut down the O2, hold the cup where I can slip on it and blow on it which blows the hot steam up on my right eye....after a minute of doing this I jump back on the O2.....my average abort time is 5 to 8 minutes using this technique and often times under 5 minutes!!
    One of our other mods, Spiny, uses the same technique but with cold coffee!
    DD
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