fireface

Did You ? Get stung by a bunch of bees twice in the same week and had an allergic reaction you never had before? Remodel an older home where you may have been exposed to lead paint, mold, fumes, asbestos ? Work around electromechanical, electronic, digital equipment for years ? Have well water in your home ? Grow up in S. Fla. where airplanes flew over every morning back in the early 60's spraying for mosquitoes and fog trunks came around your hood and you rode your bike in the fog behind them ? Get abducted by aliens ? Play a lot of golf where you might pick up fertilizers off your ball ? It's a long shot...but I figure with this many of us assembled in the same place... at some point we may find a common denominator. I have shingles and it amazes me someone figured out it's because I had chicken pox when I was a kid... Virus lays dormant for years and decides to come out and mess with you 50 years later. Throw out "out of the box" stuff..and let's see what happens. I saw a post somewhere about an acne medication...some responded with basically "who cares..deal with the here and now".. We're all doing that...but if we could find root cause to prevent our Son's, Daughters, or anyone else for that matter from having to suffer from this...LETS do it. All of that stuff above has been a question in my mind...except for the alien thing..that was just to see if you were paying attention... maybe you have questionable events that we've all had. Dave

Bomba Shack ??? Isn't that in Tortola...where they have the shroom full moon party every month ?

I'll jump on the Doc bash wagon. I've been to four different Neuro's. One fairly renown... and not one of them gave me a reasonable explanation as to the process that was causing the pain. I had done enough research on my own to know the basic, even some very detailed, conditions that exist causing the pain to know they were BS-ing me. I don't know if they thought I wouldn't understand or if they didn't understand. It was like they all just opened up their med book...looked up CH and prescribed the first preventative and abort drug on the list. I went to ER one night a few weeks ago because I had k10's coming one right after the other...One nurse came in and said "oh, you're having Migraines" and I said "no, Cluster Headache"..and she said.."well what's the difference?" rather smugly..so I started rattling off the differences...she turn and walked out and never came back..Like I insulted her or something. I really believe they just don't know what it is. By the way..I had 4 k10's... each lasting about 40 mins during an 8 hour period in ER and they never even came in the room for 3 of them...even tho I buzzed them right away..until after they were gone. They just gave me Dilaudid every 2 hours and that didn't even touch the pain...after the 4th one I said unhook all this crap...I'm out of here...They were PO'ed that I left and made me sign a statement that I refused treatment. I thought that was the perfect opportunity for them and me to try different aborts in real time and document start/stop times..pain levels all that...They didn't document anything. I was really disappointed. Sorry to be so long winded, but the medical field in general just doesn't seem to get it.

Forgot to add...I did get o2 today...big H tank, but they didn't send the o2ptimask with it just the regular cheesy one..I ordered the optimask today. Haven't had any luck with o2 in the past...hopefully the optimask will make the difference.

Hey Scott... Actually doing pretty good today..no hits yet..I did do an Amerge (Triptan) last night and slept all night. In retrospect I don't think I was stable enough to dose. The more I read the more I realize the difficulty of busting during a chronic high cycle...should have waited for things to settle down a little more. Probably wasted that dose, but it let me know what to expect. I don't have a scale..I just took what I had ready..threw them in a blender w/frozen orange/pineapple juice..mixed them up and swiged it. I had 10 average size shrms..8 dryed/2 fresh..guesstimated 1.5 to 2 g's. According to a scale I saw..I hit level 3 buzz. Things were warping and curving. I went out and jumped on the lawn mower and ran the sea of grass. Had the headset radio on.. I't was pretty cool... I just wasn't that into it because I was in such bad shape leading up to it. I'm going to regroup and give it another shot when I'm not taking hit after hit. Thanks for asking, Man Dave

Not good...tried to sleep... got hit within the first 1/2 hour with a 5/6...two hours later a shadow...just had a 7...I'll never make it through the night...going to have to do an Amerge. That will give me about 5 hours sleep....this doesn't feel like it's going to stop. I was doing pretty good the last few weeks...down to 1,2,3 hits a day...I may have rebounded from stopping the meds to detox. Last couple of days have really ramped up. I got about 6 hours relief from the dose...but noway was I going to sleep during that. Dave

I did my first dose this morning in an attempt to break a horrendous cycle I've been in the last couple of months. I joked about it over on the share your stories board but since deleted it as it wasn't really a joking matter. Detox was hard...had to endure 5 k8's last night because I was going to dose this morning... The experience was alright... frankly, I would have preferred to skip to whole Hallucinogenic & nauseous thing... seems to be working so far...I can feel it trying to come out ..but it hasn't yet...I'm exhausted...concerned about trying to sleep and have that trigger an attack that will break through the dose. Talked to Hipshot and he suggested go for it while I can...Have o2 coming tomorrow w/optimask...hopefully that will hold me over until next dose....sign me up for BOL. Thanks for listening... Dave

Hi Kaboom I was reading some of your posts and you said something about using 1.5 tab + shrooms...stuff like that...I was wondering what the tabs are your referring to... if you don't mind. Thanks.... Dave

Also, I should add... nowhere else during the night did I register PLMS during stage 1 or 2.

Just got the actual charts of my sleep test. I was only asleep for 20mins. when I woke up with HA. During that time I went from stage 1 to stage 2 back to stage 1 and then woke up. What's really interesting is during that 20 mins. I had a very high level of PLMS (Periodic limb movements of sleep (PLMS) consists of sudden jerking movements of the legs which occur involuntarily during sleep and which the affected individual may remain unaware. It may involve kicking, twitching, or extension of the legs. It tends to increase with age and often accompanies restless legs syndrome (RLS).... and I wasn't aware of it. Of course during the attack my heart-rate jumped from 70 to over 100 and after back down to 70. My o2 level increased slightly during the attack then back to 90%..which is normal. After the attack I fell into stage 3 sleep for a couple of hours then awake and asleep several times after that... I think that was just because I wanted out of there. That PLMS registration is kind of interesting. I had a couple of other PLMS hits during stage 3, but not nearly as active as the one before I woke up with HA. I guess it's time to do research on PLMS and CH...see if there is any correlation. Dave

Thank You, Thank you..Les. I think you hit it on the part of being more active, stretching, those types of things...I'm in a real emotional/energetic funk right now... like I'm just sitting around waiting for the next attack to come. I do need to get out and do the things I usually do. I have tried o2 without much luck in the past, but after reading all these posts I'm going to try again with the optimask..just order a H tank. I think that may help with these lingering shadows. Thanks again, Les. I would have just moped around not knowing what to do next. Dave

I'm about 3 weeks still coming off the worse "high cycle" I've ever had... 5,6 up to 8 one day for several weeks... all on the left side and really deep burn throughout the entire Tri nerve. I'm down to 1, 2 sometimes 3 a day, but I still have a constant ache... like a sinus ache..all day long. When I drink something cold the nerve endings on the roof of my mouth back by my throat hurt. I'm thinking anything that hurts that much, that long, has got to leave a scar. I tried Prednesone as an anti-inflammatory... didn't do anything. I'm not sure if that's what you guys refer to as a shadow... I know... I shouldn't be a cry baby about some little nagging ache in my face... it's just different then anything before. Dave

Thanks FG... I saw that post and was going to ask if that guy was for real... Thanks for cleaning up.. Dave

That's heartbreaking...I see Richard hasn't been back on since mid April. You Guys are the BEST.. I've only been on here for a couple of days and already feel as tho I have a ton of friends supporting me. I always thought my HA's were 10's. After looking at your Kipp scale...I realize I'm only 8 or 9... Richard hit 10. I figure my body started this crap and I'm going to get it to stop it... one way or another... no giving up here. My heart goes out to all you people that have to go to work and deal with this...

Good stuff... Mystina & Ron.. I'm going to BOL for BOL.. "Be On the Lookout" for "2-Bromo-LSD".... Too bad Entheogen isn't a public company... I'd be buying some of their stock... When I first found this site, a few years ago, I was a little skeptical about the claims of relief from LSD or Shrooms, but the more research I did, outside of this site, the more I became convinced it may work. The question then was... where does Joe average find this stuff ? Entheogen can provide the solution. You guys have helped "Joe Average" Thanks...Dave

Hi DG... After reading through some of the posts.. is does look like the term I use as frenzy is "high cycle". Might take me awhile to catch on the the lingo... I'm still trying to figure out BOL... I'm pretty sure it's not " Be On the Lookout" Dave

Tingeling: You made me bring out the tissues. I'm going to copy and paste your post as my wallpaper. I plan to get over to Chi, also. Thanks..... Dave

A little background... I started when I was fifty...3 years after I retired... Had a high stress job and when I started ..it was vacation every day...maybe that had something to do with it..Smoked more...Drank more ??? Don't know. First couple of attacks were on the left side...scared the hell out of me..for last 8 years..most have been on the right side. My GP & I tried to figure out what it was...Thought at first it was Trigeminal Neuralgia...and finally discovered CH after 3 years of research...I'm not as bad as some of you all... it's Chronic with periods... about once a year... of Major episodic periods lasting weeks to months. Interestingly, when it goes into ...what I call a frenzy...they are on the left side...and they are a deep burn...worse...if you can imagine ..then the right side. I know you guys have all experienced and heard these stories...Every year it goes on...I VOW to do something about it. I've done all the drugs, Chiropractor, holistic crap... This year I'm GOING to bust. Thanks for listening..... Dave

Already, I appreciate the wit and humor combined with the seriousness of this site...

..... [ch9835] and the ones that Doctors give you don't do anything at all [ch9834]

Just spoke with the neurologist office and they want me to come in for another test..They suspect sleep apnea, but it was well after the attack... I'm sure the first test didn't represent a normal nights sleep. They had me hooked up to all this stuff and I laid there thinking ...They're watching every move I make, every breath I take and wondering if I popped a stiffy... would they know that. I'll give it another shot...but don't have big hopes for anything definitive......Dave

Thanks Guys.... I have to admit... I'm a little more then nervous... I haven't fed my head since Surrealistic Pillow back in the late 60's.... Deep breaths ... you can do it. It's what the doctor ordered... Maybe I'll paint a mural on the back of my garage that day...

Oh Boy... Hope I didn't get everyone's expectations up too high. They didn't run me through a cat scan or Mri...I was just hooked up to monitor brain waves, o2 levels, breathing, temp, heartbeat.... stuff like that. I expect them to say... yep... we see during this period of sleep it started...but they still won't know why the neurotransmitters send my Trigeminal off the deep end. I'll keep ya posted.... Dave

Hi Folks... Although I've referred to this site for the past few years.. I just signed up yesterday as a new member. THANK you everyone for all the good information. I just had a good read on the Scientific page about the mechanics behind CH and the affect Psychedelics, with what still sounds like limited research, has on the process. I'm the kind of guy that likes to know... at least something...about what I'm doing and why. I guess the 64k question still is : How did the Hypothalamus get deranged in the first place ? At any rate... I'm going for the re-boot with shrooms. Thanks in advance for all your support.... I know you all will be there..... Dave from Mi.

Barbara... Thanks for asking the question & thanks to everyone who responded. I have been 8 years chronic and just coming off a really bad cycle.. 5,6 up to 8 a day for the last 4 weeks... I too am ready to try a shroom bust... a little nervous.. This feels like my last hope.... I'll be devastated if it doesn't work...so, I want to do it right, also.... Dave