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didgens

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Everything posted by didgens

  1. I wish doctors would spend more time finding the cause instead of throwing darts as a cure.
  2. hey MG .. thanks for the reply. I had thoughts on that level. Right now there is a nasty Compost/Manure fire in our area mucking the air up. I am definatly going to make note of when I smell the other smell and weather or not this affects him. then try to nail down what the chemical is be it nature or the city gardeners doing their quarterly insecticide spraying.  I did find some interesting articles along this path which contain all kinds of medical jargon. Also causes of CH's in other people that are unreladed to chemicals but have other issues. I am planning on sifting through all that and posting what I find in some form of English that the commoner (me) can read and understand. Maybe some here, once I get it together, can take it to their doctors and ask to be checked for these conditions.Â
  3. ok heres the sad part ,, I had a thought in my head when I asked you ,, now for the life of me I can remember why ?? holy cow.
  4. I hope you don't mind ,, I'm making this thread my own little repository of information to refer back to.. lol Naphthalene is a carbon-based chemical that is most commonly used to make mothballs. It has the chemical formula C10H8, and is known within the scientific community as a polycyclic aromatic hydrocarbon. This chemical is found in nature but scientists can also synthetically create it in a lab. In addition to mothballs, it is used to make insecticide, many resins and solvents, and a range of lubricants and household products. Many cigarettes contain it, too. People who are regularly exposed to the chemical often experience negative health consequences. ItÂ’s usually considered safe for use in small amounts, but when ingested or constantly inhaled it can lead to nausea, headaches, and organ damage. Main Sources In most cases the compound starts out as a white solid with a very distinctive smell. It is sometimes also marketed as naphtha, nafta, tar camphor, or moth flakes, depending on the purpose for which itÂ’s being sold. The original sourcing for this compound comes from nature. A few substances naturally contain naphthalene; it is found in trace elements in many fossil fuels as well as in the ash of timer and tobacco. Scientists frequently isolate it through a straining and filtration process, and it is sometimes also created synthetically. Man-made copies usually have the same chemical attributes but are often easier and faster to isolate.
  5. Hey Drix .. can I ask what area of the country you live in ?
  6. just in case your taking any of these meds http://umm.edu/health/medical/altmed/supplement-depletion-links/drugs-that-deplete-vitamin-d
  7. anti seizure medications are used to treat camphor overdose. anti seizure medications are used to treat CH's. I think im going to take my son and get a blood serum allergy test done to see if they can specifically test for this.
  8. The bit about making airways more sensitive to cold air is intriguing. http://www.livestrong.com/article/111501-camphor-dangers/
  9. How about this http://nj.gov/health/eoh/rtkweb/documents/fs/0334.pdf
  10. And so I will continue on my blog here. Yes I came home from Las Vegas to the smell of fire. My youngest said there was a big fire in Ontario east of us the smoke smell was very strong. I was concerned my son would have a CH because of this. I went to work and the smoke smell on campus and in particular in my office was so bad I had to breathe through my shirt until the air came on. My son is a student on campus, low and behold around 11am between classes he was hit. I am now 99% convinced it is some particulate he inhales.
  11. Yes ,, October - Jan/Feb - Late June/July We have winds and fires here now .. so will have to see,, I havn't had a chance to talk to him since I got home from Vegas. I did smell that smell again but it didn't seem to trigger one that evening. interestingly enough one of the Gals I spent the weekend with's husband is a Neurologist, she said I could have some interesting conversations about Cluster Headaches with him if I wanted to. I think I will have to drive over some afternoon and chat with him. Although I told her I doubt theres much he could tell me that you all haven't already told me or I've found on my own. sigh :-/
  12. Oh I told my husband that it might be something the city contracted gardeners use he said "call them" so I have their number and will persue this after my vegas trip.
  13. Update - last night we had some pretty strong winds around 10 PM when they started to kick up I smelled that smell again ! I got up and went to the window and sure enough It was comming from outside. I went to my sons room and told him to close his window because I could smell this whatever it is and he said " mom that doesn't have anything to do with it". Sure enough at 2:30 this am he's in getting his oxygen that's 2 for 2. Please any comments. ??!!
  14. Some of you may remember that my son has, like clock work, reacted to what I believe are the fumes left from our Fourth of July fireworks that we can light off here in the street ? Well I just found a camphor oil link -- what the what ????? Modern uses include camphor as a plasticizer for nitrocellulose, as a moth repellent, as an antimicrobial substance, in embalming, and in fireworks. Solid camphor releases fumes that form a rust-preventative coating and is therefore stored in tool chests to protect tools against rust.[9] Some folk remedies state camphor will deter snakes and other reptiles due to its strong odor. Similarly, camphor is believed to be toxic to insects and is thus sometimes used as a repellent.[10] Camphor crystals are sometimes used to prevent damage to insect collections by other small insects. They are also used as a cough suppressant. Camphor oil was one of the ingredients used for ancient Egyptians mummification[11]
  15. what I have learned Monoterpene Ketone Umbellulone Monoterpene - something found in tree bark. it doesn't change from season to season (per one study I found). its found in pines and other trees. found in tree resin. Monoterpene Ketone - can be added to food in the form of Menthone - peppermint oil ( added to chewing gum, gelatin, baked goods). other monoterpene ketones are Thujone which produces a camphor-like smell. excessive consumption of Thujone leads to confulsions with brain and liver damage. found in the plant Tansy ( I wanna say what I was smelling was a camphor smell) fenchone ( a tree oil) - also camphor like smell. bitter tasting can be found in fennel oil. and of course the Umbellulone - or ketone from the laural or "headache" tree what if it has nothing to so with sunlight but everything to do with trees ?? we all know what trees do in spring and fall ,, maybe they give off something each season to bring this on ? or when these ketones are used in food or other applications .. more research and does anyone on here live in the desert ,, you know where there aren't any trees at all ??
  16. of course I have no idea what that is so I will have to look that one up along with " It is well known that a variety of agents, cinluding alcohol, histamine, and trinitrine (?), can trigger cluster headache attacks, although their ability to produce such an effect is usually confined to cluster active periods." don't know what trinitrine is
  17. I know this is a random question ,, but how many here with CH have a direct family member who has or had suffered from Alzheimers later in life ? thanks
  18. so I read one of these papers published by this doctor that said that this plant contains a strong camphor-like odour that when extracted from the leaf oil and administered to laboratory animals, affects respiration, heartbeat and blood circulation eventually causing death. This is because the leaves contain a volatile constituent, the monoterpene ketone umbellulone.
  19. I found a link to publications made after this article were published by Dr. Silvia Benemei from the University of Florence.. im hoping they are in English ,, I havnt tried to read one yet. http://www.researchgate.net/profile/Silvia_Benemei/publications/2 here is a thought though ,, lets say the CH is brought on by something inhaled (an allergen or irritant of some sort),, it hits the sinus passages or back of the throat and causes a cascade reaction and Voila a CH is born. ( I know I know it doesn't explain why it happens an hour after falling asleep ? or does it ,, maybe that's when our mouths fall open and we start to snore or breath with our mouths open,, anyway I digress).. We know that using a SPG block can stop the pain and relieve pressure for a while ,, but what if there was some kind of an inhalant/mouthwash etc that would coat that area keeping any kind of irritant from being recognized by the skins surface to begin with thereby stopping the process before it starts. those that are episodic know that something at a certain time of year is a trigger. hmmm .. and hmmm thanks more later
  20. Hi Spiny, CHF, Jeebs ,, well I must have looked awfully odd to my neighbors walking around sniffing the plants in the neighborhood yesterday. I walked around the corner to the sidewalk that borders the neighborhood and started smelling crushed leaves ,, stems etc from the bushes they just trimmed to no avail ,, I could not replicate the smell that overpowered the neighborhood Saturday into sunday. I was actually going to ask my son if he would be willing to risk bringing on a CH with a smell test but I never found the culprit. THe strong smell was only sat night - sunday evening ,, then it disappeared. However that being said ,, I was driving back from the YMCA with is about 3 or so miles away and on a different street ,, caught a wif of the same thing ,,, I am now thinking that it might be a "weed killer" chemical that the city gardeners lay down after trimming and working in an area ,, more to come of this .. also I am interested in the doctors that were in the article above ,, the ones in Italy that were going to try to examine the molecular structure of this bay laural and see what in it the brain might be reacting to. I'd be interested to see if anything came of it since the article is a few years old. Thanks CHF for the kudos on God member status ... off to vegas this weekend ,, maybe I can win enough money to just sit home and do research on this and lung cancer .. I seem to spend most of my day researching one or the other anyway !!!
  21. Im thinking this may be the culprit ?????? its a type of bay laurel hedge... wow ..
  22. I seem to be posting on my own post .. anyway for those that missed it .. here is the link that CHFather first posted.. im going to go around the corner and break off some of the branches I saw them "chain sawing" as state garderners will do to public areas and see if that smell that was so pungent and coming into my sons room was in fact this plant. http://www.oregonlive.com/health/index.ssf/2010/03/oregons_suicide_headache_tree.html
  23. I wonder what the percentage of CH sufferers have a parent that suffers SUNCT syndrome or migraines is. My son has CH, his father has SUNCT syndrome, and his fathers grandfather had Migraines. My other son however does not have CH. and he does in fact resemble my side of the family so I would say if it is hereditary ,, you're probably in the clear.
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