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Echo

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Posts posted by Echo

    The effects of oxygen

    in General Board

    Posted

    @ Dallas,

    My neurologist believes 7 to 12 L per minute is the range to try with and stated there is no point in going above 12. (I asked about that when I noticed it doesn't cut them off properly for me). By look of this website though, trying higher might well be worth it. My regulator allows me to go up to 25. Should I try that? I have a regular simple mask like this one:

    images?q=tbn:ANd9GcThmTivYZnn1DJj5VD9H_hmveVocRop6WpiNnE7r5q6rUC-0icY

    @ Bejeeber,

    I tried the energy drinks thing too and ended up drinking them all day every day, as I haven't had a headache-free day in over 6 months now, or night.  :( Unfortunately I'm now on verapamil and lithium at the same time and caffeine causes some nasty side-effects to flair up even more, so I'm trying to stay away from it and grabbing the oxygen again more often in the faint hope it works for a change. And yes  :P the doggy (still just a puppy really) was absolutely fascinated and tried to see if the thing was edible after the picture was taken haha well spotted!

    post-1016-1438470739863_thumb.jpg

    The effects of oxygen

    in General Board

    Posted

    Hello everybody,

    Really wish I joined this forum earlier, there is so much information and so much great feedback from people on questions. I have been looking around for experiences with oxygen, as it only seems to buy time for me, rather than stop the attack entirely. I'm interested to see how it affects people, since I've been hearing different experiences from different sources. So I've set up this poll (hopefully done it correctly) and hopefully we can compare. :)

    Mayo Clinic Minnesota USA: Experiences?

    in General Board

    Posted

    Hello everybody,

    Are there any CH patients here that are being treated at the Mayo Clinic in the USA? I was told today that they are the leading experts when it comes to CH. I was wondering if anyone has experience with them and knows what sort of treatment options they offer. Perhaps they even offer some experimental treatments other hospitals don't offer? Please let me know.

    Thanks for the feedback, it's greatly appreciated.  :)

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