Jump to content


  • Content count

  • Joined

  • Last visited

  • Days Won


Posts posted by eileenbunny

  1. Hi all,

    Here's an updated list of speakers. More to come.

    Dr. Brian McGeeney

    Dr. Elizabeth Loder

    Ms. Christina Treppendahl

    Ms. Nicole Hemmenway

    Dr. Emmanuelle Schindler

    Mr. Kevin Lenaburg

    Dr. Nate Bennett

    Dr. Mark Burish

    Dr. Shivang Joshi

    Mr. Dennis Pohlenz

    Mr. William Mingus

    Mr. Bob Wold

    Mrs. Eileen Brewer



    14th Annual Cluster Headache Patient Conference

    Talent Show

    September 19, 2019

    We are excited to showcase some of the most talented Clusterheads at this year’s conference. If you sing, dance, play an instrument, or do anything else exciting (and suitable for an audience), we want you to audition!

    • The top 10 will perform on Saturday, September 21, 2019 during the Clusterbusters Farewell Dinner.

    • You must be available and plan to attend the conference in order to apply.

    • We may be limited in the A/V equipment we can supply so please plan accordingly.

    • We will post results of the auditions on Facebook and our website event page on July 30, 2019.

    We will also be providing a display area for anyone that wants to display their talents. Let Tim know at the above email address if you’d like to display your visual art. Space may be limited. We’ve witnessed a lot of great talent over the years and we’d love to have you share it with the rest of the community.

    Let’s show The Beast what we can do!

  3. On 3/9/2019 at 2:22 PM, Brain on fire said:

    Would one who can't afford the conference without a scholarship complete registration after the scholarships are awarded?

    Yes, registration will be open until the event and people can even register on site. You will have plenty of time even if you wait for the scholarship. If you would like to attend, you may want to reserve a hotel room though. Those tend to go quickly. You can always cancel in June in the unfortunate event that you do not receive a scholarship and cannot attend.

  4. On 8/17/2018 at 5:21 PM, Tweezer said:

    I live in Denver as well. Altitude and clusters are mutually exclusive. 

    @eileenbunny, I've never attended this conference but have attended numerous technical conferences over the years. I read over the tentative schedule. Are there descriptions of the speakers themselves and their sessions? 


    Yes, there will be a syllabus at the conference, and we've been releasing brief bios about the speakers on FB and Twitter. We're still doing them at about a pace of one a week. We are picking up the pace now as the conference gets closer.  Please remember though, this isn't a technical conference. This is a patient conference. This is a space for patients, caregivers, and supporters to learn, but also a space to bond. We are not as formal as a technical conference because that isn't the right atmosphere for forming the type of family style connections that are integral to making this conference a success.

  5. 14 hours ago, MAMAHLF said:

    I'm seeking information on transportation from the airport to the hotel?

    Peace n Blessings ... LadyLuv



    I am going to be sending out an email to all those who have registered for the conference in a couple of days and it will include transportation information. I'm sorry I haven't gotten to this yet. I will also be posting it on the conference page.

  6. Hi everyone,

    I'm sorry I haven't checked in. It's been a rough summer. Our conference is less than a month away. Here's an updated list of speakers and a draft of the agenda although this isn't the final yet, so I'm only posting it here and not everywhere yet. I'm pretty excited about our lineup. One note is that we will be having some program activities on Thursday which is new for us other than the registration and reception. There will be an oxygen demonstration before registration for those that would like to learn about it prior to the formal beginnings of the conference and consider signing out a tank. Also, during the reception we'll have some announcements and possibly a speaker. Check it out.  Also, to the person that asked about scholarships like a month ago and I didn't respond to, yes, the deadline to apply had long since past. I'm very sorry. We generally try to award scholarships by the beginning of June at the latest so that people have plenty of time to make travel arrangements while fares are at their lowest.

    Here is the list of speakers we have confirmed at this point:

    Dr. Brian McGeeney
    Dr. Larry Schor
    Mr. Eric Diamond
    Ms. Valerie Nivar
    Mr. Mark Massullo
    Mr. Andrew Cleminshaw
    Dr. Joanna Kempner
    Mrs. Ginny Hall
    Dr. Emmanuelle Schindler
    Mr. Dan Ervin
    Mr. Bill Mingus
    Mr. Carey Turnbull
    Dr. Mark Burish
    Mr. Stuart Pearson
    Mr. Jeff Handibode
    Dr. Christopher Gottschalk
    Dr. Shivang Joshi
    Mr. Bob Wold
    Mrs. Eileen Brewer

    2018 Conference Schedule - Sheet1 (3).pdf


    Clusterbusters is pleased to offer travel scholarships for our 13th Annual Patient Conference. If you need assistance in order to attend this exciting, educational, and life-changing event, please consider applying. We won't be able to accommodate everyone, but we will do our best to help as many as possible. If you have the means, please consider donating to our scholarship fund. https://clusterbusters.org/donate/ Thank you.