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Posts posted by eileenbunny

  1. Stopping by to acknowledge all of those who suffer with cluster headache. Your bravery and hope is inspiring to me as Joe and I advocate  for better psychedelic legislation in New York. Don't forget to spread awareness about cluster headache today and every day.



    • Like 6
  2. For most people, mushrooms are not a cure. They are a treatment. We don't know as much about them for migraine as we do for cluster. There has not been a strain that has been identified to be better than others. Find one where you understand dosing and try following the busting protocol to see if it works. You can always adjust.

    • Like 1
  3. The truth is that we do not know what triggers migraine. We have guesses but the research isn't there to back up any of it. If put in an environment where you don't know what the weather is, you don't know what food you are eating, and you don't have any external stimuli, migraine is still unpredictable. Eat healthy, get exercise, stay hydrated. This is the best advice anyone can give someone who is living with migraine.

    • Like 1
  4. Applications for Headache on the Hill are open. If you haven't done this event before, it is empowering to share your story and your needs with your elected representatives. This event is for U.S. residents. Apply today: https://secure.everyaction.com/RW0G0XpWxkyku204SvBfyQ2


    Registration for our 1st Annual U.K./E.U. Patient Conference is open. We will be meeting in Glasgow U.K. for education, support, and fun. We hope you will join us. https://cbglasgow2023.planningpod.com/


    For more details, check out the sub-forum on events and advocacy, or just click on the links.

  5. May be an image of text that says 'We are growing Clusterbusters! Community Research Advocacy Please consider Clusterbusters when planning activities on #GivingTuesday, November 29th! ਵੇ CB'

    2022 was an amazing year of growth, and we are grateful for your support! Clusterbusters continues to advance research on cluster headache. We're expanding our advocacy to be more effective in supporting those with CH. We're planning 2023 in-person conferences in both the UK & US, as well as continuing with other smaller events such as camping, the virtual 5K, and our online support groups. Please consider Clusterbusters on #Giving Tuesday, November 29th.

    • Like 3
  6. First, to answer Angelbrz, this conference is in-person only. We may record some sessions and put them on YouTube for viewing later, but for now, it's just in-person.

    As for hotel rooms, the group rate applies if you stay all or part of the conference time. It also applies to the three days pre and post event in case you want to stay additional time. So feel free to book for as little or as many nights as you want, just do so in the next two days as the 24th is the last day to access the group rate.

    • Like 2
  7. Hi everyone,


    This is the site and registration for our 2021 conference in Chicago/Rosemont, IL, Sept. 23-26, 2021. I know several people have asked about a virtual option and I'm going to say I will try to do this. It's a heavy lift with an in-person event at the same time, and I don't currently have the manpower. If you would like to volunteer to help with technology (REALLY need people who are tech literate here) it will help to make this happen. 

    As we are in close contact during our conference, the in-person conference is intended for those who have been vaccinated for Covid-19. 

    We are looking forward to seeing real, live human beings again and hugging you all in September.


    • Thanks 1
  8. Hi all,

    Due to the pandemic, we have once again needed to postpone our Cure for Cluster Cocktail party in NYC. We'll be sharing more info about the new date soon.

    Also, we are having some challenges with arranging our camping trip due to the pandemic, so for now that is on hold. We hope to pick up the planning for that soon and it is still a goal for 2021.

    Our conference is still planned for September and as soon as we have details ready, we'll open registration for that. It's been a difficult time with event planning, but we look forward to getting together soon. We miss you all.

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