What's next? in General Board Posted March 27, 2011 · Report reply What has been your experience with all of this, if I may? Have you managed to get it under control? It's one reason I'm not a "hero," Arcan.Â I don't have CH; I've just been trying to help my daughter and learning as much as I can.Â She's episodic (twice a year: when fall changes to winter and when spring turns to summer).Â RC and O2 made her last cycle a lot easier and seemingly shorter, and we're hoping that a combination of strategies might prevent or diminish the next one (which we'll find out about pretty soon).Â People here were wonderfully helpful to me/us in many ways; I stick around to learn as much as I can and to pay it forward. As for her, she has a very demanding, high-pressure job that she's been able to retain despite her CH (her cycles were typically lasting about 10 weeks), and she appreciates how precious life can be a lot more than a lot of her peers do. She has low blood pressure already, so she never could take verapamil; she reacted very badly to steroids (she and I are both pretty violently "allergic" to them); she hated the idea of injecting herself with imitrex.Â It is suspected that one reason the RC worked so well for her is that she never really had the "busting blockers" in her system (Les has a similar hypothesis about licorice root working better for people who have not used a lot of "mainstream" meds, or not used them in a long time.)Â Also, her doctors either didn't prescribe oxygen or misprescribed it (with cannula/concentrator), so she suffered needlessly for many years, which is one reason I tend to jump in here when there's an oxygen issue involved.Â If I can keep anyone from, as I say, suffering needlessly, it seems important to do it.