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Posts posted by CHfather

  1. Bob, I'm sorry . . . I was attempting to make a joke about the "dying" part.  As my mother always told me, people can't tell when you're kidding on the internet.  I will go back and edit that so it doesn't scare anyone away.

    As for calling a dealer to ask, well of course you wouldn't ask the dealer you were going to buy it from.  But if someone else who already has an existing relationship with a dealer asks an innocent question and then gets tanks filled as they have regularly done anyway, I don't imagine the dealer would stop selling to them because they asked the question.  Or there are many other possible scenarios -- e.g., they ask one dealer; ky goes to a different one.  They already have the tank to give him; he just needs to get it filled.  My primary concern was to think of a way that he could be comfortable enough with what he was getting to go ahead and do that.

  2. My doctor is a nice person really.She just does everything by the book. She's more like a human vending machine for prescriptions...as long as it has been medically proven.
      O2 is by the book, in Canada, in the US, in Europe....  O2 is medically proven.  The fact that your doctor won't bother to learn that while you are suffering makes her, to my mind, not really a nice person at all.

  3. Since this use of welding O2 is kind of "off label," I'm hesitant to push you too hard.  I can say that people here have obtained welding O2 from many different companies and used it successfully (or maybe the ones who died from it just stopped posting ;D ;D).  It's not unusual for people to get it from Harbor Freight, and there's probably a HF store near you.   

    If you search for something like [purity of welding oxygen] on google, you'll find 97% of people saying that welding oxygen is as pure as medical oxygen -- quite a few say that it's actually slightly more pure.  The O2 itself is definitely not denatured or mixed with other gases; the concerns that are expressed about purity have to do with the tank-filling process, and those are dismissed by most knowledgeable people.

    (Maybe your sister and brother-in-law might not mind calling one of their suppliers and inquiring about the quality of the O2?)

  4. If you have the resources to go straight to psilocybin and are comfortable doing that, then you should at least consider it. 

    Some things to consider: (1) You might of course "just" be having some post-dose hits, which even seems likely given the good results you seem to have had so far from the HBWR.  (2) While psilo will work better for some people than LSA, and vice versa, psilo is not overall a more effective agent against CH than LSA.  In fact, there are those who have a broad overview who say that LSA is better than psilo. And those same people say that if HBWR is better than RC, it is only by a very very slight margin, if at all. (3) I personally had a devil of a time figuring out what I was doing with HBWR--getting that husk open, finding and picking out those little seeds, etc. -- which is why I (and many others here) recommend RC over HBWR in terms of certainty and predictability of dosage.

    Is it time for you to look into setting up your own O2 system using welder's oxygen?  This doctor thing is upsetting and completely infuriating; maybe it's time to just act on your own?

  5. mrsg, most of us are here because we've experienced or seen busting work.  i suspect that about all we can say in this distressing situation for you is that it's likely to work for you, too -- and we are, in our own ways, praying that it will.  you deserve it, that's for sure.

  6. Monster Hitman works due to the fact it's 2000mg of taurine though. 
    Hitman also has a relatively huge amount of caffeine--240 mg, which is 80 mg per ounce.  RedBull energy shot has 80 mg total (so does an 8 oz RedBull), so the RedBull energy shot is "just" 39.4 mg/oz, and the standard RedBull is 9.5mg/oz.   Almost all Monster drinks have twice as much caffeine (160 mg.) as RedBull.  At least according to this chart: http://www.energyfiend.com/the-caffeine-database

    Yer right Pixie, the consensus is it's the caffeine/taurine combo that's most effective.
      I completely agree that that is the consensus.  For the sake of our "citizen scientist" explorations, I just add that one poster recently said that RedBull didn't work for him, whereas Monster did. He attributed that to an ingredient that is in Monster but not RedBull (don't recall what that ingredient was).  (And I do think I notice that of people who have tried both, Monster seems to be preferred--but maybe it's all that caffeine and not the "mystery ingredient.")

  7. 20 seems a low dose to me
      Since you're getting what look like slapbacks, I'd say 20 was a fine dose.  Not long ago, 20 (or even fewer) was the recommended first dose, and some people here have busted successfully with 10.  If you had no undesirable reactions from 20, you could up the number next time if you want to, just to be on the safe side.

    I can't really comment on the other effects, but others probably will.  A new thread, as Purp suggests, is a good idea.  Ginger tea helps many people with shadows, as do "energy drinks" such as RedBull and Monster.

  8. iPain, when your O2 is set up, be sure you're using your mask properly.  Here's the recommendation from http://www.clusterheadaches.com/O2/index.html

    >>>Notice the little round white disks on the side of the mask.  These control the exhaled air, and the outside air.  If there is not one on each side, either tape over the other one, or (as I do) place your thumb over the holes, during an inhalation, and then remove the thumb during an exhalation.  If these valves are not present, or in good flexible condition, you will not get the full 100% oxygen that is required....If you are male, and have facial hair, you may have trouble getting a full seal around the mask.  You may want to just remove the mask, itself, and breathe straight from the plastic valve mechanism.<<<

    Eventually, you might want to get the O2ptimask, which is made specifically for people with CH and is very highly regarded.  http://www.clusterheadaches.com/khxc/index.php?app=ccp0&ns=catshow&ref=LifeGas

    A lot of people here have said that drinking ginger tea helps them with shadows.

  9. B, just a couple of quick thoughts.

    1. You should probably send a PM (private message) to Les to get answers to your licorice root questions.  Can't say for sure that Les will respond, but here's the way to send that PM: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?action=imsend;to=464F59754D4F44594F582A0

    2. (This actually should be #1)  Since your new PCP didn't know the difference between TN and CH, you want to see a headache specialist ASAP. (Not just a neurologist, but preferably a headache specialist.)  If you have CH, you will, as you say, want to get oxygen prescribed right away.  For most people, it's a very effective abortive.  But there are other conditions that look like CH but are something else, and require different treatment.  So a good diagnosis is absolutely essential.  Here's a US list of doctors recommended by people with CH: http://www.ouch-us.org/chgeneral/OUCH%20DOCS%20-%20US%2001-27-2012.pdf

    There are separate lists of Canadian and "worldwide" doctors at the same site.

    (BTW, my daughter lived with a TN diagnosis for several years before we researched and found she had CH, not TN. Also, in the beginning, my daughter's experience was like yours -- she could just endure her attacks, which didn't last too long.  Then they stretched to hours.  So get on top of this now.  We're all hoping that a "cure" is on the horizon, but in the meantime, you want to be fully armed.)

    3. There are some documents in this file that might help your PCP--if you want to go back to him/her and request oxygen--to understand how fundamental O2 is for treating CH (you could print out the JAMA article and bring it with you, for example): http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1299901790

    4. Did your doctor prescribe anything for the TN?  Some drugs prescribed for TN (such as the antiseizure drugs Neurontin and Lyrica) can also sometimes help with CH.  Not many people would recommend them, if only because the side effects are so awful, but you might consider trying them if you feel the need for something in the short run that might help.

    5. Smoking isn't good (in case you were wondering :)), and some people (including Les Genser) argue strongly that stopping smoking is important for a systematic treatment of CH.  So quitting is a good idea.  But most people who have quit have not found that it affected their CH much.  Alcohol is a much more common trigger, but lots of things are triggers for lots of people.

    5. If your system can handle it, drinking an "energy drink" at the start of an attack can be quite effective for quelling them.  RedBull or Monster, for example -- something high in caffeine and taurine.

    Good for you for finding this site and reading and asking questions!  Keep it up.  The great folks here will help you.

  10. Anyway, anybody have any thoughts on Depakote?Thanks!

    You may get some fresh thoughts on depakote here, but if you type it into the search bar (top left), you'll see quite a bit about it -- most not positive.

  11. How stupid of me! I didn't realize that RC seeds were actually flowers! If its similar to morning glory then I can def get it because I think my mum has planted morning glory in our garden! But please let me know, how are we supposed to take it? 

    You probably don't want to use the seeds that are meant for planting in a garden, because they're often treated with some nasty chemicals (others please correct me if I'm wrong).  Longshot:  I have read that there is a Pakistani strain of Hawaiian baby woodrose: maybe someone's growing that and you can snag some seeds???  Meanwhile, check with tranceplants, allsalvia, etc.

    How to take them.  General instructions here: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1290128974

    Some specifics in this recent thread: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1329318355

    You might be able to use morning glory seeds.  I assume the "fresh" ones from growing plants are safe.  See the posts after that "LSA" file I linked you to.  Ricardo's the main man on morning glories, so maybe he'll pop in here, or you can PM him.

    When it comes time, check in with us.

    Recently a person here said that RedBull made his heaches worse.  That's the only person I've ever read saying that -- for most people, it helps a lot.  That fellow said that on the other hand Monster did help him.

    There's a "proper" mask and there's a really good mask, the O2ptimask.  Worth considering.  See the file I linked you to.

  12. Isnt there a floating seeds trick I should do first to filter out the bad seeds?

    Yes, you can do that.  Then get rid of/replace the floaters.  Then pat dry all the seeds.  Then grind, then soak, then drink.  Don't grind with anything that gets too hot (e.g., coffee grinder).  I think the typically preferred method is more "crushing" than grinding -- with a mortar and pestle, for example -- but a hand-operated spice grinder is also fine.

    There was a time when 50 was considered a high first dose.  I guess we've seen enough now to think that it's unlikely that you'll really "trip" at all from that number of seeds.  I think around 35 is still the recommended first dose (up from about 20-25 when I first got here 18 months ago), but if you're comfortable with 50, go for it.

    Let us know how all this, and/or how the licorice root, D3, etc., goes.  Are you off the verap now?  If not, you might want to start with D3 rather than licorice root, and heed the verap procedure related to D3.

    Also -- you have oxygen?

    PF wishes!

  13. [edited: well i see purp is right in top of some of this.  nice going, purp!! thanks.]

    well, RC seeds are very light, so if they are legal to receive, the shipping cost from anyplace would not be very high.  you might try contacting the very helpful folks at www.tranceplants.net

    thay are in canada, there's also, in england,  http://www.allsalvia.co.uk

    is your oxygen flow rate at least 15 liters per minute, and do you have a non-rebreather mask?  if yes to both of those, many people find that they need flow rates that are higher than that, or that a top-quality mask helps a lot.  you can find more about that here: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1299901790

    whooligun mentioned some other things that have worked for many people, including licorice root and vitamin d3.  you can read more about those things here:

    d3: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1314134804

    licorice root: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1298659068

    have you tried drinking an "energy drink," high in caffeine and taurine, at the start of an attack?  that helps a lot of people (in the US, the typical brands are redbull and monster).

    hang in there; it'll get better!