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Posts posted by CHfather

  1. Like they said, spiny . . . time for some RC.  Grind 'em up, soak 'em in water for an hour or so, drink 'em down.  Very, very unlikely that you'll experience anything psychedelic, but lots of people report an exceptionally  good night's sleep after a dose (which sounds like it would be much appreciated).  Here's one doctor's report on the effectiveness of the active ingredient in RC. He's reporting on a different kind of seed (HBWR), but with the same active ingredient (LSA).  Most people here find that RC is easier to work with than HBWR.  http://www.maps.org/research/sewell_2008_aha_lsa_poster.pdf

    There are others who share your pessimism about BOL, but the market, worldwide, is big enough to make it worthwhile . . . and while the entrepreneurs behind BOL have bravely restricted clinical trials to CH (rather than including migraine), it is likely that it'll help migraine, too, and that creates a potentially huge market indeed.  If there are no stage II clinical trials of BOL within the next year, you can call me a gullible fool.  Also, other treatment methods are showing good promise, too.  I think there's good reason for hope.

    But in the meantime, RC (or psilo or LSD) is what there is, so why not go there??

    So sorry the D3 regimen isn't helping you. You could PM Batch, who really goes out his way to try to help people adjust it for their needs, and discuss it with him: http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=viewprofile;username=072431262D450

  2. from some quick testing, it seems that anything posted in a category here that says "guests can view" is visible through google, while posts in the two categories that say "login required" ("share your busting stories" and "clusterbuster files") are not accessed by google.

  3. I'm thrilled to see the new search engine here. It will really be helpful -- so much better than what we've had.  Thanks to whoever installed it!  Right now, however, it doesn't seem to be working -- the response to every query I enter is "No Results."  Is there some connection that's missing?

  4. http://psychoactiveherbs.com/

    is this a good site to get them from ...?

    we have had success busting with RC seeds from there.  another popular one is www.iamshaman.com.

    i don't know much about those other vitamins . . . but please read that D3 file i linked you to.  and there was a person here who had great success combining the D3 with the licorice root.  let us know if you're going to try either or both of these.

  5. Demand valve is the key ingredient, but you also need a regulator with a DISS fitting (Diameter Index Safety System).  I am assuming that if your friendly doc prescribes demand valve, that your O2 supplier will know what that is and how to get it to you in functional form.  In my post, I was just mentioning that someone here was able to get that, and have it covered -- but I don't really know all the prescribing/insurance ins and outs.  There are a couple of demand valve threads at ch.com, and there are many dv experts here, so maybe someone will chime in about the doc/insurance interface.



    Your concern about taking hallucinogens is shared by many people here.  One option is to try RC (rivea corymbosa) seeds, which work very effectively for most people (some experts think they're actually better than shrooms) at dosages that involve no psychedelic effects at all, or at most very, very minor effects.  You can start with a low dosage and gradually work your way up, still avoiding those undesired effects--in fact, some people here have reported full relief from dosages that would be considered very small indeed.  It sounds like you have not yet started any of the standard meds that can block busting (verapamil, imitrex), so this could be an ideal time to get some seeds and go for it. Here's the basic file on seeds: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1290128974

    Does the virtually everything that you have tried include the "vitamin D3" protocol and the licorice root/skullcap protocol (two different things)?  Both have worked really well for a lot of people.  The D3 you can do even if on meds; the licorice root is not advised while on some meds.

    D3: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1314134804

    Licorice root: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1298659068

  6. someone here, recently, actually got a demand valve system prescribed and covered by insurance.  so if you've got a friendly doc, maybe you want to try for more than the basics.  at least maybe a higher-flow regulator

    (demand valve is highly praised by everyone who has one, or at least everyone i've heard from who has it.  you can read about it here: http://www.clusterheadaches.com/O2/index.html)

    hey, J'FC, what else are you doing to treat your clusters?

  7. Zac, have you tried the vitamin D3 regimen that has helped many, many people?  It seems to me that before you try something like RC (or another psychedelic) that might have problems associated with it for you, the D3 would be a very sensible thing to look into.  For most people, it has some positive effect; for some people its effects seem quite amazing, ending cycles quickly, even for people with chronic CH.  There have been a small number of people (two or three out of more than 80) who have reported that the D3 approach made their headaches worse, but that effect stopped when they stopped taking the D3 regimen.

    It's relatively inexpensive and easy to do.  Here's a file that will tell you more about it: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1314134804

  8. if I understand well, they are making the patient choice for the phase 2 study ? 

    janste, I just don't know whether it has proceeded that far yet. My understanding from what Dr. Halpern was saying was that full double-blind clinical trials would be held in Germany and that there might be "open label" trials in the US and elsewhere.  I have received no communication from Entheogen that anything has begun, and I would strongly imagine that if it had reached the patient selection stage there would have been some notice about that here at the Clusterbusters site.

  9. Thanks, Ken!  So glad to hear you're getting some relief from this.  From your post, I'm wondering whether you're doing the whole regimen as it is now recommended:

    Precise specifics are a bit of a moving target, as experimentation teaches more about what works and what doesnÂ’t, but here are the elements of what is currently recommended for people who are in cycle.

         1.  About 10,000 international units per day of vitamin

              D3, taken with food.

         2.  2 or 3 calcium citrate tablets per day (at least 500

              mg. of calcium), with or without food. These tablets

              should also contain magnesium and zinc, and they

              often also contain a small amount of vitamin D3.

         3.  2,000-3,000 mg per day of Omega-3 fish oil, with


         4. Two glasses of lemonade or limeade per day, taken

             with meals. (Other high-citrus juices are also

             acceptable, but lemon and lime are said to be higher

             in citric acid content. Batch has said that he also

             favors margarita mix.)

  10. Gord, I can only speak to the D3, where the recommendation is to just stay on it, since (unless you accept jimmy7's perspective) it's not harmful and is probably good for you.  Some people reduce the amounts (to, e.g., 5000IU of D3 and the rest proportionately), others stick with the whole thing.  The level at which possible D3 toxicity sets in is about 40,000IU/day, over several months.

  11. just a small addition to jeebs' advice:  do the redbull immediately, then get on the O2.  the combo is pretty potent, at least for "beginners."  if it works, then stay on the O2 a few minutes (5 minutes is recommended) after the HA has cleared -- helps prevent recurrences.

  12. well, i guess he couldn't cover everything, but the fact that he left out oxygen is pretty creepy.  not having heard of doxepin before, i went over to ch.com to see what i could learn there.  very little discussion of it there, either.  and, isn't the "oftentimes" in what he says here a substantial exaggeration: >>cortical anti-inflammatory steroids will oftentimes stop a cycle of cluster headache within a matter of 24 to 48 hours.<<?

  13. Good on you for hangin' tough with the doc, Brad.  Many people have experienced frustrating slippages between getting an O2 prescription and actually getting the thing set up right.  I have some suggestions about that in that O2 file of mine, so you might want to give it a quick read-through.  http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1299901790

    First thing I recommend is calling the O2 supplier to make sure they're on the right page about what you need. Often a prescription will be quite simple, something like "O2, 12-15 lpm" -- if you have any wiggle room, try to get the highest flow and the best equipment (e.g., a demand valve system) you can.   Be sure you're getting big tanks ("M tanks") and, ideally, also a smaller, portable one for the car (an "E tank"). These usually require different types of regulators (and it's nice to have a mask for each).  You've mentioned that you're not rolling in money, so I guess you have to consider whether the costs would be higher . . . just suggesting that sometimes O2 suppliers know what they're doing regarding CH patients, and often they have no clue.

  14. Primary Medical Doctor, another name for one's Primary Care Physician

    Hence PMD=PCP

    * Psychotic depression, major depression with psychotic features

    * Pre-metal dielectric

    * PageMaker document, file name extension .PMD for Adobe PageMaker

    I'll bet they're going for the one in blue and red up there, and not the Pakistan Meteorological Department. 

    Case closed.

  15. Sounds like you got shuffled from the doc himself (isn't that who Jeebs communicated with?) into the doc's bureaucracy.  Any chance of getting Doc G back into the loop?  What stops can we pull out here to do that?  Halpern always says he's standing ready to help, and that he reads and responds to his emails from Clusterbusters folks.  His relationship with Goadsby isn't perfect (as he reported at the conference), but it seems like Goadsby might respond to a nudge from him on a collegial basis.   

    PMD=PCP is what I said!  I'm wrong enough often enough here not to be wrongly accused of being wrong when wrong is what I wasn't!

    Hopin' that laughing gas works!!!!!!!  That would be cool.    Glad you're going to try it soon.  As always, my best to Michael.

  16. wish I wasnt here!! lol

    One thing that binds us all is the faith that one day, not so far away, nobody will have to be here.  BOL-148 seems to be on the horizon. Other advances that have been discussed here seem to be progressing.  For now we're stuck with the next-best thing, but soon, maybe . . . .  What a day it would be!  (Re BOL: You might as well go here and sign up--doesn't seem like it could do any harm: http://www.entheogencorp.com/community/