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Posts posted by kika

  1. Hi,


    I have been approved to participate in this study, but am having some serious reservations about doing so. I'm not sure what I am hoping to gain from posting here, but a sounding board would be most appreciated.


    I think my biggest reservation is being unable to use LSA or MM to abort the cycle that is about to start any day now. Being a licensed health care professional, I am not exactly at liberty to disclose that to the MD, but I would like to know if it is an absolute exclusion criteria. I am allowed to use O2 and Zomig to abort, and had little luck with either RC seeds or MM in the winter cycle, so maybe I am making more out of htis than need be.


    I have never been in a clinical study before and am a bit nervous about having an unknown substance injected into me. If there are side effects, I'm stuck with them until the drug wears off.


    Any advice, suggestions, or thoughts?





  2. I am wondering if there is, or could be, a section here where current literature on the various treatments could be stored for reference. I would like to be able to present my MD with credible articles on subjects like vitamin D, testosterone, oxygen, etc.... but searching for them here is challenging.

  3. Is anyone aware of any CHers who have found indo to be helpful for our condition? It's one of the few drugs that I have not yet tried as a preventative.

    My youngest daughter was diagnosed with hemicrania continua and has been on indo for years. I find it odd that the literatures says that A) women arent affected by CH as often as men and B) clusters are not familial, when my mom and I have them and my daughter has this seemingly related condition....

    Our headaches are so similar, yet hers do not respond to RC seeds, mushrooms, triptans or O2. Indo and Red Bull are the mainstays.

    I live in fear that, one day, her headaches will morph into cluster headaches.

  4. Wow to the Al Jazeera one!!!!

    I can't describe the emotions I feel watching others suffer from this. My heart aches with empathy & races with fear at the same time, but I feel so much less alone.

  5. I got my first CH exactly one year after my husband ended his life.

    I have had CH episodically for 13 years now and for the first 5-6 years they always started around that time, the last week of June. There were a few years where they showed up in the fall, or late spring, but, given the apparent connection between serotonin and CH, I have always wondered if the reactive depression I developed following my husband's death was the trigger for me. I am happily remarried now and the depression has resolved, so am not sure how much weight to put on that theory.

    It was interesting to see some other stories here of others for whom extreme stress precipitated their CHs.

  6. I had some O2 tanks delivered to my work in downtown Toronto today and the delivery guy mentioned that he delivers to a few other CHers in the area.

    I am hoping to connect with someone local A) because a burden shared is a burden halved and B) I am having very little luck with he RC seeds and was hoping to learn more about growing and using mushrooms.

    I am very conscious of the need for confidentiality BTW.


  7. The obvious question, kika -- Are your seeds fresh?  Even if they are, maybe you should order some from a different vendor, since batches vary.  Are you float-testing them?  If you're not getting any undesirable psychedelic effects from 50, maybe take a substantial jump (to 65 or 70 or even more) to make up for possible low LSA content in this batch?  Are you crushing them the same way this year as in the past (I'm among those who think that they shouldn't be ground in anything potentially heat-producing, like an electric coffee grinder)?

    Thanks for replying. Yes, they're a new batch, same vendor as always. I grind them with a mortar and pestle, so no heat.

    I am not float testing them so will do that for the next bust on Thurs.

    No psych effects, but bad diarrhea last time ( first time for that).

    Do you know if it matters whether or not I swallow the crushed seeds vs just drinking the tea that they're brewed in?

    Thanks again

  8. For some reason I am having no luck with busting this year and I'm wondering if I need to make some changes to my method.

    I typically use 50 RC seeds, crushed and soaked in about 1 ounce of (cooled) peppermint tea for three hours.

    In the past this has bought me anywhere from 1-3 weeks of PF time between attacks, but this year I am still getting them daily.

    Any suggestions?

    Thanks much

  9. My &^%$## insurance company is denying me coverage for O2 this year as well for the first time. Had I not found CB and been converted to busting I would be completely screwed because of it.

    I hear you about wanting to have it just in case. I have 2 E tanks at home ( first year without an M tank at home) that I have not had to use yet because of busting and I keep wondering if I should return them. I have decided to wait until I am waaaaaaaaaaaay out of cycle first though and if it costs $100.00/month for that peace of mind then so be it. However I am episodic, not chronic ( Thank God!).

  10. Of all the prevents I've tried prednisone is the only drug that actually worked. However I found the side effects (wild mood swings being the worst of them) bad enough not to use it again. It IS a miracle drug, but as with many drugs there is a price to pay for the relief it brings.

    Best of luck to you!

  11. I can't stress strongly enough that you should not pick your own mushrooms unless you are a mycologist. A small amount of the wrong one and your liver is done. Others cause seizures or kidney failure.

    I totally get your concerns about growing, but its just not worth the risk of picking the wrong one in my opinion.

    Have you checked out erowid.org? They are a great resource for all things drug related and may even have specific info on the legalities of  growing in ON.

  12. You could just mention that it seems you have gone into remission (no need to mention that the remission was caused by x or y or z).

    "I think I'll hold off on refilling these Rx's, but I'd like to keep the O2 on hand just in case - since it's the best abortive I have available to me."

    Not every truth needs to be spoken.

    I ended up taking your advice. Thanks all.

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