Laura401
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Posts posted by Laura401
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Thank you! I know that there are malicious people out there and they have to screen but, I don't have a reason to lie about CCH
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I have been denied from Cluster Headaches three times. I tried again and this past time was sent questions regarding medication etc. I was interested in talking to others that had good experiences with 5meo but, I am not going to beg to be apart of a group.
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So I joined a group on a social site thinking it was the one mentioned previously. Boy was I was I wrong I can't even mention D3
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My initial instinct was SUNCT but, after re-reading, I am unsure if the headache is actually localized behind the eye. Was your CT with angio?
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There is a youtuber that also swears by it. I didn't have much success but my hair and nails grew like crazy!
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Glad to hear that it worked for you jonck. Most of us are familiar with the miserable knot from CH. I truly hope that dry needling and massage works for you when/if your CH starts up again. Some have tried this and found that it did relieve some of the neck pain during cycle.
Most of us have already tried an amazing variety of different meds and treatments from Excedrin to brain surgery. Everyone is looking for relief and pushing for a cure. We are open minded when it comes to CH treatments that have worked for others. It helps us learn new options that might work. It also allows us to share that knowledge and add our own input on its effectiveness.
Sharing is a two way street. When we differ, we keep it polite.
ATB
We have some very excellent and patient moderators!
Thank you.
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I had a block on Thursday and there were minor complications...i.e. Half of my face was the size of a pumpkin. I asked about Botox when I was there but the doctor did not seem to think that it would do much. I know that monitoring is normal for Lithium so, I was prepared for that but, it just seems so outdated... then again none of the new drugs have worked either.
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I am thinking of enrolling in the ATI trial. I already did the initial interview. Has anyone signed up or gone through the process?
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so I am back digging around for more hope and found an article on Botox. Apparently it was like an SPG Block but used Botox instead of steroid/lidocaine. I think I saw only one person had Botox. I may have missed others but was it injections all along the forehead or...?
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anyone else try lithium?
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It's 5am and I am up watching this Love a good educational documentary
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Thank you for providing a way for us all to be included. I was feeling quite sad for being to sick to be able to attend. Hopefully, next year I will be seeing a whole different tune!
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I hope I'm feeling better so I can make it this year!
Chronic to episodic
in General Board
Posted
Hi Everyone! I'm still here...and still chronic. I am having a very rough patch and could use a pick me up. I was wondering how many have gone from chronic to episodic? How long did it take? What did you do to switch?