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ClusterBusters

Pebblesthecorgi

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  1. Like
    Pebblesthecorgi got a reaction from spiny in Nortryptiline   
    You need a more knowledgeable neurologist.  That was a punt, next....patient.  There is zero evidence that tricyclic antidepressants effectively help clusters or migraines  for that matter.  Your poor excuse for a neurologists wanted to do something to get you out of the office so placated you with a prescription.  An great example of someone who goes the extra distance to be intellectually lazy.
  2. Haha
    Pebblesthecorgi got a reaction from Brain on fire in Ketamine test on Dr.John Lilly   
    Why do I feel like I do after a Jehovah's Witness or Hari Krishna just knocked? 
  3. Thanks
    Pebblesthecorgi got a reaction from Tony Only in Busting with this medication   
    You are presenting a fairly significant list of prescription drugs largely aimed a an individual with  significant reactive airway (or COPD) lung disease.  The asthma meds are a mix of bronchodilators (open up airways), inhaled steroids and a combination of the two.  The medrol is a steroid (fairly equal to prednisone in potency) I would assume being indicated for the lung condition.  Zolt is a proton pump inhibitor similar to protonix which blocks the production of gastric juices irreversibly.  It works through an enzyme system and generally is used in short courses, it does not work right away but you dont want to use it in a sustained manner either.  A beta blocker is usually used for hypertension although it has a role in migraine prevention and heart disease.  The estrogen preparations are used vaginally and have little systemic absorption once used for 6-12 weeks.
    So if you subscribe to the belief steroids are blockers there is a concern about the medrol and some of the inhaled meds.  The bronchodilators can cause feelings of anxiety and a rapid heart rate but should not block.  I doubt the proton pump inhibitor is an issue.  Systemic estrogen can increase drug metabolism in the liver but usually vaginal estrogen doses are insufficient to cause that.  Beta blockers show up on some blocking lists but I doubt its a real issue.
    This is the med list of a person who has significant medical issues.  Would not advise stopping any of the pulmonary drugs without close medical supervision.  If she has been on steroids a long time I suspicion they are required for handling physiologic stress and weaning is probably not practical.
    She needs to be well prepared for the anxiety that can accompany a busting experience and a sitter needs to understand her breathing issues.  Ultimately it is her decision but tread lightly 
    Significant care and caution are urged.
  4. Thanks
    Pebblesthecorgi got a reaction from Tony Only in Busting with this medication   
    Indomethacin is a powerful non steroidal, sort of a super ibuprofen, which is generally taken in a short course.  It is also used by knowledgeable headache experts to distinguish between cluster headaches and another trigeminal autonomic cephalgia (TAC) called hemicranium continuum.  Cephalgia is a fancy name for headache. Para tabs are tylenol (acetaminophen).  Dymista is a combination of steroid and antihistamine for nasal inhalation. Sirdalud is an alpha-2 receptor blocker that can be used to treat muscle spasms.  I do not think any of these medications alone would interfere with a bust.  When you throw a whole bunch of supplements and medications into the mix unpredictable things can happen.  Thoughtful use and proper preparation will handle most adverse side effects.  As a rule its best to reduce expose by limiting non essential medications.. Once her pulmonary health is stable I believe she can consider busting with a certain degree of confidence.  Again, the concern with any non traditional intervention is the unfamiliarity with the experience and potential overreaction to symptoms while in the midst of a psychedelic experience.  The best way to combat or avoid this is by proper preparation by the individual and their sitter.  It can not be emphasized enough the importance of proper set and setting with these molecules.  Of course one does not need a full blown psychedelic experience to benefit cluster headaches in many cases. It is best to be prepared in case the individual gets more than they bargained for with a treatment.  Since things like MM are very variable in content of active ingredient a person might find themselves  further out there than intended.  You are a good soul and friend to translate and help others, it is not an easy task.
  5. Thanks
    Pebblesthecorgi got a reaction from Tony Only in Busting with this medication   
    You are presenting a fairly significant list of prescription drugs largely aimed a an individual with  significant reactive airway (or COPD) lung disease.  The asthma meds are a mix of bronchodilators (open up airways), inhaled steroids and a combination of the two.  The medrol is a steroid (fairly equal to prednisone in potency) I would assume being indicated for the lung condition.  Zolt is a proton pump inhibitor similar to protonix which blocks the production of gastric juices irreversibly.  It works through an enzyme system and generally is used in short courses, it does not work right away but you dont want to use it in a sustained manner either.  A beta blocker is usually used for hypertension although it has a role in migraine prevention and heart disease.  The estrogen preparations are used vaginally and have little systemic absorption once used for 6-12 weeks.
    So if you subscribe to the belief steroids are blockers there is a concern about the medrol and some of the inhaled meds.  The bronchodilators can cause feelings of anxiety and a rapid heart rate but should not block.  I doubt the proton pump inhibitor is an issue.  Systemic estrogen can increase drug metabolism in the liver but usually vaginal estrogen doses are insufficient to cause that.  Beta blockers show up on some blocking lists but I doubt its a real issue.
    This is the med list of a person who has significant medical issues.  Would not advise stopping any of the pulmonary drugs without close medical supervision.  If she has been on steroids a long time I suspicion they are required for handling physiologic stress and weaning is probably not practical.
    She needs to be well prepared for the anxiety that can accompany a busting experience and a sitter needs to understand her breathing issues.  Ultimately it is her decision but tread lightly 
    Significant care and caution are urged.
  6. Like
    Pebblesthecorgi got a reaction from spiny in Just to put it in perspective   
    Personally I am not really into trying to compare pain or trying to "one up" others in the suffering department but this may help some vindicate themselves or at least give perspective when dealing with insensitive partners, colleagues and other riff raff.    https://www.mylondon.news/news/health/nhs-pain-most-painful-conditions-15701223?fbclid=IwAR2zqmTNLdESNWJcLH5nM3yZAz6tqEsXQ0ezoQ6Tm2e03khiXiYeTpe-Lkk
  7. Thanks
    Pebblesthecorgi got a reaction from Brain on fire in What if there WAS a CURE?   
    Four hours of typing to say nothing.  The parasite theory has been floated before and not well received for obvious reasoms not the least of which it is provable by “modern science”.  Being withholding and secretive is the stuff of attention seeking and manipulators.  Folks with quality information are generous and forethcoming.  Batch set the standard for this and many others have done so to a lesser degree .  I am happy you have resolved you CH issue but it seems you have other things to work on.
  8. Haha
    Pebblesthecorgi got a reaction from Brain on fire in Ketamine test on Dr.John Lilly   
    Why do I feel like I do after a Jehovah's Witness or Hari Krishna just knocked? 
  9. Haha
    Pebblesthecorgi got a reaction from Brain on fire in Ketamine test on Dr.John Lilly   
    Why do I feel like I do after a Jehovah's Witness or Hari Krishna just knocked? 
  10. Haha
    Pebblesthecorgi got a reaction from Brain on fire in Ketamine test on Dr.John Lilly   
    Why do I feel like I do after a Jehovah's Witness or Hari Krishna just knocked? 
  11. Like
    Pebblesthecorgi got a reaction from Rod H in My chronic CH are the result of a virus   
    When suffering the unique, not describable pain that cluster headaches inflict it is natural and normal to grasp for whatever explanation makes sense at the time.  We seek to understand lunar cycles, barometric pressures, previous wrongdoings, higher powers, trauma and infectious processes when seeking an explanation.  In reality cluster headaches remain elusive in terms of definitive causes and universally effective treatments.  Cluster headaches were first described hundreds of years ago before food additives and  other entrapments of modern living.  Speculation, deduction and personal anecdote dominate discussions among the afflicted.   A sequence of biochemical events that result from a virus, parasite or bacteria theoretically may trigger a cascade leading to cluster-like headaches.  It is theoretically possible headaches could continued to be triggered after the disease has been treated but this requires a bit of imaginary thinking.  Viral encephalopathies are a completely different animal than C dif infections.  C dif usually occurs when antibiotics have disturbed the bacterial balance of the gut.  Time may tell if there is an infectious disease component to classic cluster headaches but it is more likely the headaches with an identifiable etiology like trauma, infection etc are mimicking clusters.  This is an important distinction because in these cases treatment options discussed here are less likely to work.  In the end information is good and worth discussing.  Who would have thought ulcers would end up being treated as a bacterial disease?  Or Lyme disease being a cause of human suffering?  Or HPV contributing to certain cancers.
  12. Thanks
    Pebblesthecorgi got a reaction from Brain on fire in K Cure for Cluster headache?   
    It would be good if your post was clearer regarding what you choose to cut and paste and what you independently write.  Properly referencing content gives the originator proper credit and allows the reader to understand what is regurgitated, what is the writer opinion and what is someone else's contribution.  Links are posted in the initial post but the text is unclear what is source material and what the originator actual wrote.
    Ketamine has been suggested and used as a treatment for cluster headaches.  No reliable protocols have emerged for treating cluster headaches.  The fractured statements in the original post is basically a bunch of gobbly goop intended to entice the reader to click away.
    The use of ketamine in the treatment of certain psychiatric disorders has been popularized recently and "ketamine clinics" have emerged, some good (and ethical) most I suspicion are not.  Since there are no proven protocols for the use of ketamine in treating cluster headaches its use to treat cluster headaches falls into the category of self experimentation and anecdote.
    I would also suggest that anyone using a psychoactive substance daily (with or without a float tank) has a serious or evolving psychological issue that should be address rather than promoted or admired.
  13. Like
    Pebblesthecorgi reacted to Racer1_NC in Great news about my O2!   
    There are many things I worry about. Starting a car with an O2 tank in the trunk isn't one of them.
    I carry a smaller D tank in my vehicle. It's in a carrying sling with the regulator attached, tank valve off. I wedge it partially under the drivers seat from the rear so it doesn't move around while driving. It can be ready to use in 30 seconds.  
  14. Like
    Pebblesthecorgi got a reaction from jon019 in Pins and needles feeling through body   
    Suggest sticking with the regimen.  Its easy to engage in imaginary thinking about the ill effects of a new treatment.  Once you are at steady state with the new substances the feeling will go away as you body adjusts.  The least favorable thing you can do is not see a course of treatment through
  15. Like
    Pebblesthecorgi got a reaction from kat_92 in Nothing is working headaches getting worse   
    If you are going to pursue a neurologist for verapamil you might consider a boost dose of steroids to help break the cycle.  Verapamil is generally regarded as a preventative rather than a cycle buster.  They can suck but they can be effective in getting you some rest and may arrest a cycle
  16. Like
    Pebblesthecorgi got a reaction from ThatHurtsMyHead in What if there WAS a CURE?   
    Personally I never want to discourage the free exchange of information and ideas because you never know when the next "Flash moment" will appear.  We are all aware that when folks get desperate they are vulnerable to any idea or snake oil salesperson.  Evidence of this includes offering unsubstantiated surgical procedures at great cost and risk which people consider and actually agree to.  In this particular situation I suspicion there may be a mental health issue in play.  Whether the initial poster is attention seeking, manipulative or well intentioned their verbose   nonsensical communication style speaks to a lost soul.  Now that the story is out each person can judge it for themselves, take pity and move on.
  17. Like
    Pebblesthecorgi reacted to ThatHurtsMyHead in What if there WAS a CURE?   
    DK,
    I've been keeping up with the thread, wondering if it was going anywhere.  As others have pointed out.  Someone comes to the board every few weeks announcing a cure.  There is no cure.  Only remission.  I myself have gone 2 years without an attack, then back to episodic then to chronic.  Others 10 years or more and it comes back.  I manage my beast with the natural medicines primarily discussed on this board. 
    That said.  I like to follow Bob's lead and let people speak freely without fear of repercussions.  MM was once thought of as being a quack management technique.  It is now, thanks to Bob and others like him, in my opinion one of the best treatments out there along with Oxygen.  
    If you feel cured, then I'm happy for you.  I'd recommend not claiming a cure though.  Those of us that have been around are sorta tired of people claiming a cure, yet they're clearly simply in remission.  I thought verapamil was a cure many years ago.  The first time my doctor prescribed it for me, my CH disappeared a few weeks later.  I was over the top happy that I finally found something that worked.  The next year my CH came back and I went to the doc for another script of verapamil.  It didn't do anything.  Absolutely nothing accept give me tachycardia.  (A dangerously slow heart beat).  I realized thinking back.  The first year was about 2 months into my cycle.  At the time my cycles ran 2 to 3 months.  I realized then, that my cycle had simply stopped on it's on, and had absolutely nothing to do with the verapamil other than coincidence.  I've read about others having similar experiences with Kudsu, chriopractic care, hot baths, hotsauce up the nose, having the facial nerves cut, Adkins diet, vegetarian diet, etc etc. and the list goes on.  They were not cures, just chance coincidence, or at best something that provided a small bit of help (which we all need at one point or another).  What works for one person, may or may not provide help for another.  
    It's great you're in remission, but people will not take you seriously by claiming a cure.  You're in remission, that's great and happy for you.
    Cheers,
    J
  18. Like
    Pebblesthecorgi got a reaction from ThatHurtsMyHead in What if there WAS a CURE?   
    Personally I never want to discourage the free exchange of information and ideas because you never know when the next "Flash moment" will appear.  We are all aware that when folks get desperate they are vulnerable to any idea or snake oil salesperson.  Evidence of this includes offering unsubstantiated surgical procedures at great cost and risk which people consider and actually agree to.  In this particular situation I suspicion there may be a mental health issue in play.  Whether the initial poster is attention seeking, manipulative or well intentioned their verbose   nonsensical communication style speaks to a lost soul.  Now that the story is out each person can judge it for themselves, take pity and move on.
  19. Like
    Pebblesthecorgi got a reaction from ThatHurtsMyHead in What if there WAS a CURE?   
    Personally I never want to discourage the free exchange of information and ideas because you never know when the next "Flash moment" will appear.  We are all aware that when folks get desperate they are vulnerable to any idea or snake oil salesperson.  Evidence of this includes offering unsubstantiated surgical procedures at great cost and risk which people consider and actually agree to.  In this particular situation I suspicion there may be a mental health issue in play.  Whether the initial poster is attention seeking, manipulative or well intentioned their verbose   nonsensical communication style speaks to a lost soul.  Now that the story is out each person can judge it for themselves, take pity and move on.
  20. Thanks
    Pebblesthecorgi got a reaction from Brain on fire in What if there WAS a CURE?   
    Four hours of typing to say nothing.  The parasite theory has been floated before and not well received for obvious reasoms not the least of which it is provable by “modern science”.  Being withholding and secretive is the stuff of attention seeking and manipulators.  Folks with quality information are generous and forethcoming.  Batch set the standard for this and many others have done so to a lesser degree .  I am happy you have resolved you CH issue but it seems you have other things to work on.
  21. Thanks
    Pebblesthecorgi got a reaction from Brain on fire in What if there WAS a CURE?   
    Four hours of typing to say nothing.  The parasite theory has been floated before and not well received for obvious reasoms not the least of which it is provable by “modern science”.  Being withholding and secretive is the stuff of attention seeking and manipulators.  Folks with quality information are generous and forethcoming.  Batch set the standard for this and many others have done so to a lesser degree .  I am happy you have resolved you CH issue but it seems you have other things to work on.
  22. Like
    Pebblesthecorgi got a reaction from spiny in What if there WAS a CURE?   
    Hmm very logical
  23. Thanks
    Pebblesthecorgi got a reaction from Brain on fire in What if there WAS a CURE?   
    Four hours of typing to say nothing.  The parasite theory has been floated before and not well received for obvious reasoms not the least of which it is provable by “modern science”.  Being withholding and secretive is the stuff of attention seeking and manipulators.  Folks with quality information are generous and forethcoming.  Batch set the standard for this and many others have done so to a lesser degree .  I am happy you have resolved you CH issue but it seems you have other things to work on.
  24. Thanks
    Pebblesthecorgi got a reaction from Brain on fire in What if there WAS a CURE?   
    Four hours of typing to say nothing.  The parasite theory has been floated before and not well received for obvious reasoms not the least of which it is provable by “modern science”.  Being withholding and secretive is the stuff of attention seeking and manipulators.  Folks with quality information are generous and forethcoming.  Batch set the standard for this and many others have done so to a lesser degree .  I am happy you have resolved you CH issue but it seems you have other things to work on.
  25. Like
    Pebblesthecorgi got a reaction from CHfather in Sumatriptan Injection Site (Low BF%)   
    Yes the backside is ok but as others have suggested abdomen and thigh work.  Just pinch the skin to raise it up.  Even if you are 3% body fat there is no way you’ll go intramuscular.  You should be able to get by with 2 mg injections if you get vials
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