padre
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Posts posted by padre
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Here is the NPR article that I heard. Apparently there are two different studies two different manufacturers both dealing with anti bodies.
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I just heard on NPR radio, today, that there is a new treatment for migraines with a better than 50% success rate for relief of at least a few days. They are treated with antibodies! Anybody "knowed" up on this? I wonder if it was tested on clusters?
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I'm going to try the vitamin D3 regimen. I read the referenced "paper" on the topic. The best that I can say for this paper is that it demonstrates that, anecdotally, someone had success pursuing it. The unfortunate thing, I feel, is that it's dressed up as a scientific paper, a peer reviewed study. It is none of those things. The author is not an Md. He is not an expert in nutrition or cluster headaches or medicine. All sorts of things such as fighter pilot, chemistry degree (B.S.? asdociates?) experience with oxygen and patent holder and such are trotted out as points to support the author's credence when in fact they have no bearing on the thesis. Conversely, would one want to hear a medical doctors dissertation on fighter planes? To reiterate I believe that it muddles rather than clarifies understanding cluster headaches to dress up an anecdote as a scientific paper.
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I agree that the parasitic predators that depend upon people's ill health to exorbitantly profit are very low. I appreciate all your research on the subject and it definitely makes me pause almost as much as the $500 a month makes me pause. Actually $500 a month just keeps me away from it totally. One notion that I have in the back of my assessment of this is that when I showed the medical journal article to my neurologist that specializes in headaches she told me that the lead researcher of the panel who led the FDA approval was her Mentor back when and that she had complete confidence in him. Never the less, I'm not rushing into this by any means and it does sound like there's a large possibility that these guys are scamming us. Thanks again for your research and for relaying it. I apologize for any typos that might be in this message but it's late I'm tired and I do not have the patience to try to edit these little windows.
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Apology accepted. I don't doubt that the gammacore distributor has Serious predatory inclinations. The FDA release must mean something. Short-circuiting three Triple-A batteries to duplicate gammacore's effect sounds untested. Massaging the vagus nerve has had no benefit for me. Thanks again for your interest.
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I appreciate all of the information in response to this post. There is still much to be learned about the gammacore. I don't know that the stimulation to the vagus nerve is electrical or if it's Sonic. I'm not an electrical engineer. Neither am I stupid. I do know how to spell. Keep the discussion going. Thanks, again
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7 hours ago, zgreek said:
I was at my neuro's office on Thursday, the gammacore representative was there to demonstrate the device and answer questions for the doc's, I sat in. I'm not sure the positives for the device outweigh the negatives, but the fact that something new can be added to our arsenal of weapons to fight the beast has to be a good thing. I tried it, feels like small electrical pulse on your neck, while that is going on, the corner of your mouth droops a little.
Positives:
1. Portable, looks like a 2 headed electric razor, sounds like it also.
2. No evasive surgical implant.
3. No side effects (droopy mouth, stops when turned off)
4. No problem with TSA.
5. Shelf life is 18 months, if not turned on, not sure how long it is if turned on.
Negatives:
1. Cost, $575, about 300 "doses" (if it is used up before 30 days, you can a "refill" for free), since this is new to USA, the manufacturer is offering $100 off, and I believe the rep. said the first 2 months are free if you are in the registry.
2. It works only for episodics, and only 47% of the CHer's tested (aborting the CH). There was no data on whether it helped the other 53%, they only measured aborting the CH. The ultimate goal is to expand it to work with migraine patients.
They base the usage on a 30 calendar, once you turn it on, they start counting.
Their representatives with be in Chicago for our conference in Sept.
They are looking for approval for the 2nd generation model, which looks like a cell phone, and has a shelf life of 5 years, The rep. did not know that cost.
I hope I remembered this correctly, a lot was going on. I know this does not answer all the questions.
5 hours ago, urs said:Well...
Short cirquit 3 AAA batteries, hold it a sec to your neck and you are done!
Wy the hell nobody realizeses this huge scam, damm...
WACKE UP GUYS, DON'T BE SO DAM STUPID!!!
On 7/19/2017 at 5:22 PM, urs said:Padre
if you have success abording an attack by massaging the vagnus nerve at the neck I guess the gammacore may be of use if not, I would wait for others confirming so you dońt loose the money!
I appreciate the response to this topic. I'm hoping that if $500 a month can be gotten for this vagus nerve stimulator then somebody else may come up with alternative devices to stimulate the same nerve for similar results. I'm still in shock over the $500 a month cost. I've put myself on the list to be notified when it's actually available here in America but I haven't heard from them to that effect, yet. I will post it when I do.
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I appreciate the response to this topic. I'm hoping that if $500 a month can be gotten for this vagus nerve stimulator then somebody else may come up with alternative devices to stimulate the same nerve for similar results. I'm still in shock over the $500 a month cost. I've put myself on the list to be notified when it's actually available here in America but I haven't heard from them to that effect, yet. I will post it when I do.
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Does anyone have any experience with the newly approved FDA Appliance for cluster headaches the "Gammacore?" It looks like a cordless shaver and you apply it to the vagus nerve and it has had significant impact on cluster headaches, in trial. I looked into it and it was not due to be released in America until the third quarter, which is technically now. It looked as if the cost was going to be around $500. I talked to somebody in England with the manufacturer who said that yes it would be around $500 but that would be $500 a month! I mean who could possibly afford that? Anyway I just want to hear from the Cluster Buster folks.
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Does anyone have any experience with the newly approved FDA Appliance for cluster headaches the "Gammacore?" It looks like a cordless shaver and you apply it to the vagus nerve and it has had significant impact on cluster headaches, in trial. I looked into it and it was not due to be released in America until the third quarter, which is technically now. It looked as if the cost was going to be around $500. I talked to somebody in England with the manufacturer who said that yes it would be around $500 but that would be $500 a month! I mean who could possibly afford that? Anyway I just want to hear from the Cluster Buster folks.
Antibody treatment for migraines
in General Board
Posted
It is very good to know that clusters were included in the study.