alleyoop
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Posts posted by alleyoop
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Alleyoop: Nope, geocentric isn't CH inspired.
OK x6th. Probably some anomaly in my brain
, but it brought to mind an eyeball with the stabbing pain radiating out from it. bobb
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Love your artwork!
Ditto!
Tell me, was "Geocentric" CH inspired?
bobb
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About the Benadryl, they dont have it in my country, do you people know if there`s another name on it, also in youre country?Â
From PubMed:
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000704
Benadryl - Diphenhydramine
"Diphenhydramine is used to relieve red, irritated, itchy, watery eyes; sneezing; and runny nose caused by hay fever, allergies, or the common cold. Diphenhydramine is also used to relieve cough caused by minor throat or airway irritation. Diphenhydramine is also used to prevent and treat motion sickness, and to treat insomnia (difficulty falling asleep or staying asleep). Diphenhydramine is also used to control abnormal movements in people who have early stage parkinsonian syndrome (a disorder of the nervous system that causes difficulties with movement, muscle control, and balance) or who are experiencing movement problems as a side effect of a medication.
"Diphenhydramine will relieve the symptoms of these conditions but will not treat the cause of the symptoms or speed recovery. Diphenhydramine should not be used to cause sleepiness in children. Diphenhydramine is in a class of medications called antihistamines. It works by blocking the action of histamine, a substance in the body that causes allergic symptoms."
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Lacrimation (the flow of tears), eyelid edema (swelling/”puffiness” of the eyelid from excessive watery fluid collection), nasal congestion, rhinorrhea (nasal discharge/”runny nose”) are all associated with Cluster Headache, as well as: forehead and facial sweating, miosis (excessive constriction/tightening of the eye’s pupil), ptosis (drooping of the upper eyelid).
The 'normal' headache could be what they call med-overuse headache possibly from the Goody powders. (See attachment)
I'm not sure what the cloudy urine is about, but it might well be from some other issue.Â
bobb
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These pictures are not opening in my browser.
Maybe save them in another format?
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We all know that wine, and especially red wine is a major trigger for CH. It seems there are different concentrations of melatonin and serotonin in various stages of ripening wine grapes:
http://www3.interscience.wiley.com/journal/123487046/abstract?CRETRY=1&SRETRY=0
"Abstract: Melatonin and serotonin have previously been described in mature wine grapes and finished wines, but the metabolism of these signalling molecules in the development of wine grapes has not previously been investigated. We harvested wine grapes at different stages of development from lag phase through véraison from eight different commercial vineyards representing a diversity of growing conditions, management practices, merlot varietals and localized ecosystems to determine whether different patterns in melatonin and serotonin can be found in wine grapes during seed development and berry maturation. Melatonin was detected in 45% of the fully developed purple, postvéraison grapes but only found in 23% of prelag phase samples. However, the actual concentration of melatonin was highest in wine grapes harvested at the early stage of véraison when the seed is developing. Serotonin was not detected in any of the prelag phase grapes but was consistently detected in 30–35% of grapes harvested during the véraison transition at consistent levels of about 8–10 [ch956]g/g. Interestingly, the nitrogen storage compound [ch947]-aminobutyric acid was also found at about 115 [ch956]g/g in 77% of early stage green grapes and declined in both prevalence and concentration with ripening. Together, these data are indicative of a potential role for these molecules in the development and maturation of wine grapes."
bobb
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That is so cool Leslie!!! I wish I could have been there too!
I'm glad that you made the trip without incident.
bobb
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Carole,
Jay & Leslie both have given good advice. Listen to them.
Knowledge is power -- use it. Educate yourself on CH. Read everything you can. You can start with the following links (be sure to open each attachment):
http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1270936757
http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1269811715
Ask all the questions you want. That's what we are here for -- to give each other answers and support.Â
bobb
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Of course there is the option of not giving a damn what others think.......
I think I probably take this option way too far.
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I asked her how much time during her nursing training did she spent on headaches alone, and cluster headaches specifically.She admitted she could not remember anything about clusters but they did spend a day or so on headaches.I said "go back to school".
LMAO!!!!! ;D ;D ;D ;D ;D
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I agree with you Donnie. The bag is an overlooked, but important component of the non-rebreather mask. I use a gallon size freezer bag attached, as you said, with a rubber band. It allows you to have plenty of "breathing room."
I usually try to see that I have at least a half-gallon of O2 in the bag for the next hit. This also allows you to adjust your regulator up or down without losing any oxygen. The whole point of high flow oxygen therapy is to have what you are breathing as close to pure O2 as possible.
bobb
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And then I found this Cephalgia article by Dr. Rozen:
Melatonin: Case Studies Indicate Hormone May Relieve Cluster Headaches
"Two case studies suggest that melatonin may have an ability to provide relief from cluster headaches.
"Physicians at the Thomas Jefferson University Hospital in Philadelphia report administering melatonin to two patients with long-standing chronic cluster headaches. The patients pain disappeared after melatonin treatment, the physicians reported in the journal Cephalalgia.
"For both patients, the scenario was the same: they experienced daily headaches and nightly headaches within 40 minutes to an hour after falling asleep.
"The first patient was a 38-year-old male who had been experiencing approximately six headaches per day for at least 10 months a year for the past 20 years. Fourteen days was the longest remission he had experienced. The authors treated the man with 9 mg of melatonin daily at bed time in conjunction with his usual anti-headache medication. Two days later the headaches disappeared and remained gone for the 6 months follow-up.
"The second patient, 40 years old, had suffered from excruciating headaches 3 times a day for 8 years. Two weeks was the longest hed gone without experiencing a headache, even on his medication. The subject began taking 9 mg daily of melatonin, along with his pharmaceutical headache medication. For the eight months of follow-up, he remained headache free.
"Although these patients reported upon in Cephalalgia also took pharmaceutical agents in addition to melatonin, study author Dr. Rozen has had success treating headache patients with melatonin alone. Hes also successfully used melatonin to treat other types of headaches, including migraines."
Reference:
Peres MFP, Rozen TD. Cephalgia. 2001;21:993-995.
bobb
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This from The Lancet:
Cluster headache and melatonin
"The causes of cluster headache are still unknown; the temporal pattern of the cluster periods suggest the involvement of central structures in particular the hypothalamus, which regulates circadian rhythms. The pineal gland through melatonin secretion plays a central part in the circadian organisation of biological rhythms. Evidence obtained in animals suggests that the pineal gland and melatonin may be related to the regulation of core body temperature. Dependent on the species considered, melatonin has a part in the generation of seasonal rhythms of daily torpor and hibernation, in heat stress tolerance, and in setting the core body temperature set point. In human beings, the circadian rhythm of melatonin is closely associated with that of core body temperature, the nocturnal decline of this temperature being inversely related to the rise of melatonin.2
Chazot and colleagues3 reported lower melatonin concentrations in cluster-headache patients than in controls. Waldenlind and colleagues4 also show lower concentrations in the cluster period than remission.
Increased body heat might precipitate cluster-headache attacks by alteration of melatonin concentrations, leading to hypothalamic dysregulation and chronobiological dysfunction. These findings also support a therapeutic option of melatonin in the prophylaxis of cluster headache5."
http://www.thelancet.com/journals/lancet/article/PIIS0140-6736%2805%2972062-6/fulltext
bobb
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i point the finger at head trauma at a young age/ puberty
From Headache magazine:
Cluster Headache After Head Injury
ABSTRACT
SYNOPSIS
"Four patients developed cluster headaches after minor head injuries that caused no permanent neurologic or CT abnormalities. None had had headaches previously. The headaches of the three whose histories were known in detail either corresponded to the injury site or evolved from an earlier headache that did. Nerve injury is suggested as the mechanism by which trauma could initiate cluster headache."
http://www3.interscience.wiley.com/journal/119469165/abstract
bobb
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that steel head is huge - dam
Yea, it is!
Nice walleye too though AO!
Our Fearless Leader is a walleye fisherman. 8-)
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One day in the near future, I see you looking back on all this pain as history.
Hang in there buddy,
bobb
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Does everyone recommend going back on the prednisone?
If it was me in your position, I think that is what I would do, and then taper off of it.
Listen to Mad6string. He has been through all of this. He went into adrenal shock when he tried to taper off of the pred too quickly. It damn near killed him. He had been taking the pred for quite a while, but still, prednisone is nothing to mess with. It should always be tapered.
My two cents,
bobb
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You've got some nice fish pics Joe!
All I have are stories. 8-)
bobb
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WOW!!
Those are some BIG gar!!
What river is that?
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And if you want more reading material on this subject, check out the attached article on the SCN in Science Direct article.
bobb
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tingeling,
I couldn't find anything on increased hypothalamus size or mass, but this caught my eye --
From an excellent Medscape article on headache (full text attached):
Recent PET studies on cluster headache have reported blood flow changes that suggest, in part, a response that is not primarily generated by the pain.[31]Â In this study, the anterior cingulate cortex was activated, as would be expected, as part of the affective response. Activation was also seen in the frontal cortex, and insulae and ventroposterior thalamus contralateral to the side of the pain. [highlight]The only activated area that is particular to cluster headache is the ipsilateral hypothalamus gray matter region.[31] This region is important in the control of circadian rhythm of neurons and thus can be linked to the neurohormonal imbalance seen in cluster headache. This raises the possibility that the pathophysiology of cluster headache is driven partially or entirely from the CNS.[/highlight]
bobb
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5447 attacks in a decade sounds like a lot, but it breaks down to about 45.39 attacks in a month. As you and I both know Ben, this is unfortunately quite reasonable for CCH. Although I have been chronic since 2000, I have kept a diary for less than half that time. It would be interesting, and someday I'll have to go back and total up the number of hits I recorded.
BTW Ben, I know that you once told me that you hadn't posted in a while because you were like so many CBs - busy having a life. I hope that these posts don't mean renewed activity for you. And of course, I am certainly not complaining about the wealth of information you post on these boards. I think we all owe you a debt of gratitude for all your research.
bobb
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Hi Tuckerman!Â
I live in one of the southern suburbs of Atlanta, Peachtree City. You'll have to PM me, and we can try & get together sometime.
I'm a 61 year old male - 6 ft, 195 lbs in pretty good health, except for CH. I was diagnosed CCH in 2000. Before being diagnosed correctly, I went through major sinus surgery, being wrongly diagnosed with sinus problems. The surgery was no picnic, so when the ENT wanted to "go in again", I asked to see a neurologist and the rest, as they say, is history.
I can also remember having a brief episode when I was about 12 years old. I believe it was CH because I remember banging my head on the floor. After a few weeks, they went away and didn't come back again until almost 40 years later.
I think mine were inherited. I'm the 3rd generation sufferer.spooky huh?We (my family of ch) is prob. rare I would guess.ÂNot as rare as you may think skull buster. (BTW, I am originally from Tuscaloosa.Â
) Like donna mae, I think that my paternal grandmother had CH. Although never diagnosed, I remember my father talking about how she tied cayenne peppers around her head for her "headaches." I also have two younger brothers diagnosed ECH. (One has been in total remission for over ten years.) I definitely think that there is a genetic factor to CH.I smoke about a pack of cigarettes daily and drink only occasionally, though I tend to overdo it when I do drink. But then, anything that I do, I tend to overdo. I have long thought that there could be a connection between CH and addictive personalities.
Clustermom, I feel your pain. Thankfully, my two daughters who are in their 20's, have so far been CH free. But my greatest fear is one or both may develop it. Or worse yet would be seeing my grandkids have to deal with this horrific pain. That is the main reason that I have become so pro-active in trying to understand this disease and why I have been an active supporter of Clusterbusters through the years. I think that eventually a genetic component will be found and that may be our best shot at an actual cure. But short of that, I believe this treatment is by far the most promising one to date. Bob Wold is my mentor and hero!
bobb
New guy here
in General Board
Posted
The "third eye," aka the pineal gland is located in the hypothalamus. It is responsible for producing melatonin and serotonin among other things.
From Wikipedia:
"Some writers and researchers, including H. P. Blavatsky[8] and Rick Strassman, have suggested that the third eye is in fact the partially dormant pineal gland, which resides between the two hemispheres of the brain. The pineal gland is said[who?] to secrete dimethyltryptamine (DMT) [9][improper synthesis?] which induces dreams, near-death experiences, meditation, or hallucinations. Various types of lower vertebrates, such as reptiles and amphibians, can actually sense light via a third parietal eye—a structure associated with the pineal gland—which serves to regulate their circadian rhythms, and for navigation, as it can sense the polarization of light."
http://en.wikipedia.org/wiki/Third_eye
And then there is this:
http://www.vivo.colostate.edu/hbooks/pathphys/endocrine/otherendo/pineal.html
Very nice piece of art at any rate! I really like it.
bobb