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Posts posted by alleyoop

  1. Big big Kudos to your doc for recognizing the critical nature of your CH, getting you in there immediately, and being willing to do what it takes.

    For sure, and of course BIG, BIG Kudos to Dan and his epiphany!  I am very, very interested in the longer term results,          but am also very impressed with the results that he has had thus far!

  2. I got hit at the dentist once.   This was due to administration of Xylocaine

    w/EPI in the dentist's office. This stuff triggered me hard. In

    dentist visits thereafter, I was given Citanest (Prilocaine) without

    EPI and did not get triggered with this. If anybody has problems with

    attacks while at the dentist, it may be worthwhile to inquire about

    what they're using on you.

    EPI = epinepherine

  3. I agree that it is a step in the right direction for US drug policy.  Of course the elephant in the room is that dietary drugs are BIG BUCKS for big pharma. 

    That is why it is so vital that all primary headache sufferers join together in lobbying for congressional support.  The larger the target group, the better chance it has of attracting the $$ of big pharma.

  4. I would like to believe that I just pissed him off so he slammed me last night, but with that said I'd also like to think I put a little hurt on him, and that maybe if I just stay strong stay off meds and dose again in 5 days maybe that will be a kill shot or at least a heavy wound, 3rd bust maybe the kill shot......Is this the right thinking about the seeds?

    Sounds right to me.  :)

  5. Cassidy,

    I think your concerns are warranted.  I would suggest that dainbread get in touch with Teri Robert.  I am not that familiar with Relpax to give an educated answer as to the proper way to detox from this drug, but I feel confident that Teri would or at least could refer him to someone that does know.  You can contact Teri here: http://www.terirobert.com/contact.htm

  6. Ann,

    So glad you found us, but so sad that you had the need.

    Just curious, but what kind of specialist did you see? 

    The bad news is that you have been diagnosed with CH.  The good news is that finding this site is a great starting point in the long road that is probably, but not necessarily

    ahead of you. 

    I think that most here will tell you that with this disease, it is of utmost importance to advocate for yourself, since the medical community worldwide, for the most part, is woefully uneducated, and thus inept at treating CH.

    Please read, read, read.  The best place I can recommend you start is The Clusterbuster Files.  Click on the "Forum Jump" menu at the bottom right side of this page.  Under the General Category" click "CluserBuster Files".

    Stay in touch and ask any question, no matter what it is.  There are no stupid questions.

    We're here for you,


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