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spiny

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Everything posted by spiny

  1. Second that! I understand that Santa likes cheese too. I found a pile of rather rough sliced Cheddar and Merlo (SP?) on the hearth one year!!! Yum. Santa was good to the kids THAT year. 8-)
  2. I second Bejeeber on the bumper sticker. We could actually do this too! I will research the minimum number and cost. Going to have one made up anyway "Odie for President". 8-) The eager to please, drooling, anything you want dog in Garfield.
  3. Done. Too many are oblivious to our shared pain.
  4. If we could actually SAY we were out due to a headache and not risk being docked or let go, they would give a much better picture of the issue at the workplace! Frequently we have to resort to stomach bug or sinus infection as a cover and that sucks! > Our small numbers (CHers) make it almost certain that a med geared for us is not very likely to make it to market unless it helps migraine as well! > So, here's to BOL working for those heads as well. In my book, it will be amazing if we actually get something that was designed for us, not just a side-bar for Rx designed for something
  5. spiny

    Food

    Thanks Chad! I have O2 and have been on the D3, minus the calcium for 6 weeks now. I was on the calcium too, but the Verap I have is ER so the eight hour separation was impossible. Trying to get my idiot Dr. to change it to SR so I can put the calcium back. I will try your method. I just have to remember to keep high protein snacks in my pocket! Not always that smart. Still reading on the other. thanks and PF holiday and New Year to you!
  6. spiny

    Melatonin

    Thanks Bejeeber! On NIH and Wikipedia that is Melatonin apparently. :-[ I could not find the thread with the Latin name, what you gave me I believe!
  7. spiny

    Melatonin

    What brand has the right mix? Mine just says Melatonin, B-6 and fillers. Thanks spiny who is OVER the flu ;D
  8. when you are thru those constant series of CH's ? I seem to get about 4-8 in the evenings and at night. O2 helps for most, but then I just get to where the tank isn't doing it anymore for the series of the day. At that point, I hit the coffee (at 11pm or 1am, depending) and plan on sitting straight up for about 2 hours. Leaning back makes my neck hurt more and lying down will start everything all over again. But, I have noticed a very odd but pleasurable feeling. It is like my brain is relaxing and expanding. I can feel it fill my cranium from side to side again. 8-) Almost a relaxation
  9. spiny

    D3 Update

    Sundown Naturals No Burp 1400mg each. Works. No Burps. They are Enteric Coated. EPA=700mg DHA=280mg. How 1,400mg fish oil = 980mg of Omega-3 fatty acids I don't know. spiny Edit to add: No fish taste either. 8-)
  10. Hi Renee, Depends for me. Sometimes with high Kip which I would call a 10, I am very agitated. I have bent my headboard grabbing a couple of the metal rods and pulled one while pushing the other. Not bad for a shrimp. Others, I am frantically lightly touching my face with a cool washcloth to find the sweet spot of pain relief while the rest of me is in a frenzy waiting for the tub to get enough scalding water in for me to get in and rock. Then, you have the sit with the O2 and gently rock on the floor times too. This go around, my sinuses are so clogged on my CH side that I do not
  11. spiny

    Food

    Mystina, I actually tried that last night and managed 1/2 a sandwich made of their dinner. It did help. Usually I am finished after one bite of their dinner. I appreciate the rest of your advice as well. spiny
  12. spiny

    D3 Update

    Can't ya'll get the 'burpless' kind? No burps with those, but they are rather huge. Kind of like a fat, short, Gummy Worm.
  13. spiny

    Food

    How do you guys EAT when you are going thru this? I am having a hell of a time - don't want to eat - nothing sounds good - my appetite is down to zero. In addition, I need to eat for my head, right? I have taken Magesterol (Megase) in the past for this, but now I don't want to take anything that might mess me up more. Taking the D3 regime (?) has helped. I can even snap out a good one liner and do math, rather complicated math, in my head again!!!!!! 8-) Taking the Calcium midday with juice has helped I think. Any ideas appreciated. By the way, we have one pizza place and two burger pl
  14. spiny

    Nat Geo

    Yep. I got the part where it was in Germany and the poor man on the floor was Martin Crouse I think. Thanks Many thanks AO! 8-) spiny
  15. Ah, tried it ONCE. Total disaster. :'( spiny
  16. spiny

    Nat Geo

    I got to watch part of the segment on LSD today and the 5 out of 6 who got relief from it!!!!!!! I bet I could order a copy from them. Money is money. I fell asleep. Also, I found it by accident and missed the beginning. But, my husband did get to see the man with the high pain CH. Guess I don't look as weird to him now. Any input here? spiny
  17. spiny

    SHHHHHHhhh

    AO, It is also a good idea to get a blood pressure cuff for home use as this stuff lowers blood pressure. That is why I can't take a higher dose. Also, do it right. Sit, take ten deep breaths and then start - that gives you a better idea of your sleeping BP. You might be really surprised at your reading. I was. I too have read about the ER not being as good for us. I am sorry it did not work for you after the ER series. I haven't decided whether to ask for a change or not. It also allows for a higher dose in the evening to help more thru the night. From what you say, I will re-consider c
  18. I'm reading. And waiting for more input. Everyone should jump on the bandwagon and help us 'new to the forum' CHer's. I bet that I am not the only one who needs and would appreciate it. Been in my hole, all alone, because no one else has these and can't fathom the pain and dis-ability we suffer with them. If not for my husband, I would have said Ciao some years ago. spiny
  19. spiny

    SHHHHHHhhh

    Thank You Lieutenant2, I'm not up for anymore pills and do not intend to return to the Idiots office. spiny who has had a pretty good day
  20. spiny

    SHHHHHHhhh

    GOOD Morning! Yesterday sucked, but worked. I napped in the am-woke with the Beast. Hit the o2 and a hot bath with cold cloth on my face. ATE: Read that again, I actually ate real food! 8-) Got hit hard again, twice. Then, down for a nap. I was exhausted. Woke at 6:30pm!!! Small hit so onto the O2 again. Killed it. 8-) Back to sleep at 1:00am. Had to watch The Big Bang Theory for my 'laugh' therapy. I SLEPT ALL NIGHT!!! Yes I am yelling the good news. ;D Maybe today is it-the end of this cycle. Only been going on since Sept 15th. Next week does make three months and that is way to
  21. A very nice nap from 9 to 12. :)My hated head alarm woke me. So, start the coffee and hit the O2. O2 worked again, thank heavens. Then, the coffee kicked in and finished the work. For the moment, I am just jittery and bone tired. After this I will try to eat something. That would be a novel idea. CHfather: Thanks. I am there on everything except the D3. I upped it this morning. The energy drinks make me nauseous, so coffee is my poison. I did not know about offsetting the meds. I will try that today. Thank you. AO: I had a great appetite at full dose of Pred., not when it was lower.
  22. Good Morning, Yup, last night sucked again. First four hits, I hugged my O2. Bet I burned thru 1/2 a tank last two days. After four good hits, I gave up on the O2 and went for coffee. Then a HOT bath to go with the coffee, as I was freezing and the heat pulls my mind to my burning feet and behind in the water. After 1/2 hour and the addition of lots of hot water the octopus climbed back in my temple. Good thing we have a boiler that provides unlimited hot water. 8-)Then, sit up for an hour and when the pain receeds to just sore and hot, I get to lie down with my neck in that special pos
  23. I shoot: competitively and hunting. OK. Now that that is said and out there, I can go on to the rest. I read, raise cows, chickens, and ducks. I garden and plant lots of flowers. 8-) Flowers make me happy. We have two businesses, as well. Currently, my other hobby is napping. :-[ spiny
  24. Lovely, Finished the Pred. Friday. Doing really very well for a few days. Shadows pretty constant, guess that's a Kip3/4. But, actually started back on Benedryl at bedtime for allergies since I am off extra meds. Last night: Hello my beastie. And you are here why? O2 for 10-15 minutes made it all better. Well, the shadow came in a few minutes later. OK. Take my Vits. and Benedryl and hit the sack. Half hour later, ready for sleep, head down and 'Hello my beastie' again! > OK OK Back to the O2 and stay longer after it is gone this time. Good to go. Sit up for 1/2 hour so I don't get a
  25. I volunteer to help. After all, a med made EXPRESSLY for CH would be wonderful, wouldn't it? 8-) I bet it would beat the sometimes lousy seconds we get from the drug companies! > spiny
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