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ThatHurtsMyHead

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Everything posted by ThatHurtsMyHead

  1. ThatHurtsMyHead

    Scuba Diving

    HazBaz, When in cycle I'm guaranteed an attack when I break the surface coming up. Going down on a dive is fine. I learned the hard way a long time ago, when my CH is around then SCUBA is off the schedule. J
  2. ThatHurtsMyHead

    Dreams and clusters

    Siegfried, I would concur if the lucid dreams some of us have were not worse than nightmares. Having a lucid nightmare is not fun... J
  3. ThatHurtsMyHead

    CH triggers

    Here's the link to CHFathers triggers list he put together. He posted a survey and compiled the results. https://clusterbusters.org/forums/topic/4568-triggers/ J
  4. ThatHurtsMyHead

    CH triggers

    Typically most of our food triggers for CH are foods high in Tyramine. Chocolate, Alcohol, Any preserved or aged meats (salami etc), Any fermented foods (Aged Cheese, soy sauce, etc). Tyramine is a byproduct of food breaking down and triggers inflammation in some people. There's a common trigger list CHFather put together some time back. When my CH hits, if I conform to a strict diet I can significantly reduce my attacks. J
  5. Definitely not heard of rebounds from O2. As for cycle changes, yes. I think quite a few of us have had our cycles change (or extend some) after starting O2 therapy. That said, I'd definitely rather have the Oxygen than not. Keeping my attacks to a K4 for 20 minutes instead of K10 for 2 hours is a complete game changer. 100 percent high flow Oxygen is a life saver. J
  6. ThatHurtsMyHead

    Liver and busting

    AlexItalian, Going on almost 10 years since I started busting, and I'm more healthy physically now than I was 10 years ago. No known physical harm mm does that I'm aware of. It's been taken for thousands of years. J
  7. ThatHurtsMyHead

    Dreams and clusters

    I get several weeks of VERY vivid dreams a few weeks before my CH comes back. Bad dreams, like pretty terrible stuff. Always first person. When I'm PF, I either don't remember my dreams or have normal dreams. I've spoken with a few others that have a similar experience with their CH. J
  8. ThatHurtsMyHead

    POSSIBLE FIX

    Sadly Verapamil while likely one of the most prescribed drugs for CH, has terrible efficacy. Through data compilation of Dr's Halpern (etc) Verapamil has shown to have about a 5 percent efficacy. I'd suspect diet and a simple termination of peoples cycles are more the cause and not the Verapamil itself. The first year I tried it, I thought it was a miracle drug. The second year it didn't work at all and instead It gave me heart palpitations (PVC's). Glad it's doing good for you. J
  9. ThatHurtsMyHead

    Successful reduction of headaches with diet update

    JohnCluster, Sorry to hear you're back in the throws of the beast. A low tyramine diet should definitely help reduce your attack frequency and intensity. Busing is definitely the best cycle terminator around. PFW, J
  10. ThatHurtsMyHead

    Successful reduction of headaches with diet update

    JohnCluster, Sounds like you're going about it the right way. Try one thing, then another. Keep good notes. On Tyramine: It's the chemical created when food breaks down. Anything fermented is high in tyramine, alcohol, fermented cheese, aged and preserved meats etc. A person could eat a really... really fresh steak and be just fine, but have one that's close to it's expiration date and it'll be high in tyramine and would be a trigger. Bananas are the same. Eat them when they're almost green and all's ok. Eat banana bread and watch out... I think that's why some people find some odd foods are triggers, but the same food isn't a trigger for another person. It's more about the age of the food, not necessarily what it is. But again, anything that's fermented or aged, is going to be high on the trigger list. Cheers, J
  11. Batch, Spot on!! Their breakthrough is really no breakthrough if it only has a positive efficacy for 2 out of 10 people. I'd be curious how it works long term. I'd bet massage has about the same efficacy.. ha ha.. I'll give them this though, at least someone is doing something... I'm sure their results will swing quite wildly with a larger test group. If they did a 50/50 split (I didn't read the details) of the control from test subjects then out of 53 people they only had approx 10 that responded to the treatment positively. That's not going to provide very accurate results. J
  12. ThatHurtsMyHead

    Cluster rules

    SwiftLaw must be a sailor. I don't think anyone else would get that. ha ha... Always Reef Early. That, and make sure you watch the wind direction. Never had an accidental jib, and don't want one either. (ok sorry, I'll get back on the thread subject, ha ha) J
  13. ThatHurtsMyHead

    Successful reduction of headaches with diet update

    JohnCluster, I don't mean to be a downer, but it sounds like your cycle just came back, regardless of diet. I can say diet can make a positive impact to reducing the severity and frequency of attacks. (Staying away from any foods with tyramine in them). If you look at any common trigger list, you'll see the worst triggers are always the highest in tyramine. Tyramine being a trigger for individual attacks, but not a trigger for the core cause of our condition. It's good you had such a long time pain free. Diet can definitely make a positive difference. Our cycles change over time. I've gone 2 years without a single attack, then out of the blue I had 2 cycles in one year. It constantly changes. (as does our brain chemistry). PFW, J
  14. ThatHurtsMyHead

    Pre Episode symptoms: do you have them?

    CatCha, For me, the symptoms you describe pre CH starting are spot on. I snap at people for no reason. I don't feel like myself, but there's no specific reason for it, etc. J
  15. ThatHurtsMyHead

    2019 Patient Conference

    I'm still looking for that Florida conference. ha ha... Might try to make this one. Long drive... Anyone posting room shares yet? J
  16. ThatHurtsMyHead

    CH with debilitating anxiety/PTSD, seeking doctor

    You might want to send a PM to BostonHeadacheDoc. He's a headache specialist that frequents the board and regularly speaks at CH conferences. He's helped many of us with CH. J
  17. ThatHurtsMyHead

    How was your weekend?

    FunTimes, Hmmmm, only steak for your wife. Maybe Lobster. mmmm, now we're talking. Glad to hear you made it through a rough one and out the other side. ; ) J
  18. ThatHurtsMyHead

    Upper Cervical Chiropractor worked for me

    I'm glad you're getting some pain relief. I don't want to be a buzz kill, but Chiropractic adjustments have been debunked over and over and over. It's more likely your cycle has just changed on it's own. It happens quite often. I know we're all looking for a quick cure, but chiropractic adjustments isn't it. Just like I thought Verapamil was a miracle drug the first time I took it. I took it for a few weeks and POW.. My CH stopped. I thought WOW., this stuff is awesome... It's a miracle cure!!! The next year (when I was episodic) I went back to the neurologist and got another script for Verapamil. This time it didn't to anything. Not even the slightest help. Instead I got PVC's (Premature Ventricular Contractions) (Heart palpatitations). They took about 2 years to go away after stopping the Verapamil. Again, glad you're getting some pain free time, but I can guarantee you, the chiropractor didn't have anything to do with it. People have tried it over and over. J
  19. ThatHurtsMyHead

    Please Help

    Oh, and any foods high in Tyramine are trigger foods for most of us with CH. Anything fermented or high in preservatives. Alcohol, Cheese, preserved meats, over ripe fruits or vegetables etc. J
  20. ThatHurtsMyHead

    Please Help

    MaskedMarvel, Also never heard of CH having anything to do with the Liver. I'm thinking someone is toking a little to deep on that one. : ) As moxie mentioned, for busting our CH, it's best to stick to 5 days. For some reason the medicine is less effective with shorter or longer time spaces. PFW, J
  21. ThatHurtsMyHead

    Headaches when everything is good.

    Mit12, Yea, over the years lots of people report more or worse attacks when they're relaxing. Vacation, home from work etc. J
  22. ThatHurtsMyHead

    My Face Hurts

    CHF, Yea, I remember reading an article years ago. The prevalence of CH is greater the closer to the poles you get, and less the closer to the equator. J
  23. ThatHurtsMyHead

    Oxygen supplier

    One VERY important key to using O2 is get on it before the pain kicks in. As soon as you feel the attack coming. Slam the energy drink, and get on the O2. If you can do that before the pain kicks in, I'd bet you the O2 will work better. For me, if I can't get to the O2 till the pain starts, it takes 45 mins to work, if it even works at all. J
  24. ThatHurtsMyHead

    My Face Hurts

    CHF, Interesting read, though it seems the article may be grabbing at straws when it comes to CH. There's only a handful of individual cases and the writer's terminology uses "may be responsive" several times. Just based on this article and others that have tried it, I'd guess the responsiveness is no better than placebo. IMHO. J
  25. ThatHurtsMyHead

    My Face Hurts

    Elrik, I'm unsure if your doc doesn't know what he's doing or he's trying an experiment on you. Indomethacin doesn't work on CH. That's not opinion, just fact. It does work on a similar condition called Hemicrania Continua. Some doctors use a short script to see which condition the patient has. If it works you don't have CH. If it doesn't work, then likely it is CH. https://en.wikipedia.org/wiki/Hemicrania_continua If he says you definitely have CH and prescribed Indomethacin then he's not done his research. J
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