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Everything posted by ThatHurtsMyHead

  1. ThatHurtsMyHead

    Newbie looking for any advice on obtaining O2

    Oh funny.. Ignore my links below. The Amazon link FunTimes posted above is by far much much better! J Ebay is also a great place to get regulators. At a minimum I'd get a 15 liter per minute, or the best regulators will go up to 25 lpm. It's very likely the oxygen company will only stock 8 lpm regulators (I've had this issue with every O2 company I've dealt with over the years). For the most part 8 lpm doesn't do anything for our CH. Buying your own is cheap and you'll never be without it! 25 liter per minute - https://www.ebay.com/itm/medical-oxygen-regulator/323535378941?hash=item4b543619fd:g:Kb4AAOSwRxJb4H1E:rk:22:pf:0 15 lpm - https://www.ebay.com/itm/NEW-Drive-Medical-Oxygen-Tank-Regulator-Model-18301GM-0-15-LPM-Barb-Outlet/352326271208?epid=2254403594&hash=item52084840e8:g:UvoAAOSwCZ5VfLl3:rk:9:pf:0 Cheers, J
  2. ThatHurtsMyHead

    coming off high dose Topiramate advice needed

    Boston Doc Rocks!!! J
  3. ThatHurtsMyHead

    Newbie looking for any advice on obtaining O2

    Vanessa, I second / third etc.. The above comments about your doctor. Get a new one... Any doctor that isn't smart enough to READ in the AMA etc documentation that 100 percent high flow O2 is the #1 abortive... Well he's just an idiot, and shouldn't be practicing medicine. PFW, J
  4. ThatHurtsMyHead

    Thank God for this forum and a few questions!

    Racer1 ---- Spot On! J
  5. ThatHurtsMyHead

    What is the divorce rate?

    +1 J
  6. ThatHurtsMyHead

    Thank God for this forum and a few questions!

    Amy, Imitrex and Verapamil did some terrible stuff to me many years ago. I'll never touch that stuff again. One of them (most likely the Verapamil) gave me PVC's (Premature Ventricle Contractions). It's a type of heart palpitation that's scary as $%&#. I didn't read anything in your post about energy drinks. Most of us are avid energy drink users when getting visits by the beast. Anytime I feel an attack coming on, I slam half a can of Monster or other energy drink that has caffeine and Taurine in it. Then immediately get on the O2. For some reason the combination of the caffeine and taurine helps the O2 work much better. I do the same for any night attacks. Never had an issue falling asleep after an attack no matter how much energy drink I had. If you ever get to the point of busting, I'm confident you'd never look back. Myself and thousands of others now have found busting to work better than anything the doc ever prescribed. Most of us are able to stay pain free by taking single doses at the time our CH is going to start. Cheers, J
  7. ThatHurtsMyHead

    Message Board SSL Certificate Issue

    I'm not sure which browsers are experiencing what I am, so I must apologize first for any issues. Our SSL certificate for clusterbusters.org seems to have expired. It is making navigating the board VERY challenging. I've reached out to Bob to see if he can get the person that updates the certs to see what's wrong. Please be patient. We'll get it resolved as quickly as we can. PFW, J
  8. ThatHurtsMyHead

    Message Board SSL Certificate Issue

    Looks like Bob got it fixed. Post if anyone is still experiencing SSL errors. Cheers, J
  9. ThatHurtsMyHead

    Message Board SSL Certificate Issue

    Everyone, Sorry for the issues. Bob is getting it looked at. The cert isn't updating for some reason. I'll keep updates posted here (for those that can get in). J
  10. ThatHurtsMyHead

    any success stories of being CH free for good?

    Jimmy, Sadly CH doesn't go away. It can go into remission, but I've not heard of a single person that it went away forever. CH can go into remission for several years at a time on it's own. I myself had a two year remission for no reason at all. Others might take one of the busting substances and get years between CH episodes, due to preventative dosing. I know of two people that had approx 10 year remissions while taking a recreational substance (unknowingly preventative dosing). While others may take the ultimate route out. I've read over and over of doctors telling patients that they'll eventually outgrow their CH. That in most people, it goes away as we get older. That's pretty much been proven as Horse $#%&. People stop going to the doc because their was nothing the doc ever did to help them. That's why the doctors think it goes away.. IT does't go away, the patients do. (Sorry don't mean to be a downer. There's only a handful of doctors that I like Most others are useless or worse, counter productive to helping those of us with CH. The good news is, busting really works and has saved many, many lives (mine included). PFW, J
  11. CHF, Thanks for the correction. I corrected my post. You're spot on. J
  12. Cheryl, Yep Pred tapers work great, but the problem is our bodies can't stay on Pred due to the wake of destruction it does to us. If you're still in cycle, once you come off the pred, sadly the CH comes back. Normally Pred isn't used alone due to CH returning after the dose pack is done. It's often prescribed with verapamil to temporarily stop our CH while the verapamil builds up in your system. (for those that verapamil works) J
  13. ThatHurtsMyHead

    Do I have a cluster headache?

    Kbee11, Some of your symptoms sound like Cluster Headache (CH), but not completely. I agree with Siegfried, please share more specifics about your symptoms. While a diagnosis from those of us with CH isn't a Dr diagnosis, at least we might be able to provide you with some information to take to your doctor to get a correct diagnosis. Cheers, J
  14. ThatHurtsMyHead

    Help needed!!!!

    Jebstuart888, IMHO - Energy Drinks!, 100% high flow Oxygen, and Busting. These three are my go to. Also - Stay away from known triggers - Alcohol, Chocolate, Fermented Cheeses or Preserved meats. ANY aged or overripe foods. Stay far away from these and you should see a noticeable drop in your attacks. PFW, J
  15. ThatHurtsMyHead

    My how time flys!

    DD!!!! I'm sensing a belated birthday party... Wahooo.. We'll definitely have to do something next year. Give away or something... J
  16. ThatHurtsMyHead

    Cleaning O2 Mask and hose

    Jeff, IMHO, I'd get a new mask. Most oxygen companies give them out for free if you get home Oxygen delivery. Also, like CHF above said. They're $5 to $7 on Amazon. Not worth the risk of getting some nasty bacteria those things can harbor. Moisture in a closed compartment for a long time breeds nothing good. J
  17. ThatHurtsMyHead

    My experience with CH

    Brendan, I'm sorry to read your story. It sounds a lot like my employer some years ago. The best thing you can do is work as hard as you can when not getting visits from the beast. Show them that you're more than worth it to keep on staff. If you can get detox from any scripted garbage and bust following the tested methods, I'm positive you'll quickly get your life back on track. The busting method entails taking a threshold dose of any of these hallucinogens (LSA, LSD, Magic Mushrooms). You need to detox from most dr scripted meds that are proven blockers (Imitrex is the most common). After a 5 day detox, take a threshold dose (a dose strong enough to feel the effects, but not so strong that you'll visit god. God doses are normally only needed for those of us with really hard cases of CH). After your dose you will most likely get what's called Slap Backs. These are CH attacks that hit at odd times and might be a little harder than your normal hits. Not to worry, that's just the medicine pissing off your beast. Wait 5 days and take another threshold dose. After the second dose most of us have lighter and less frequent hits. Wait 5 days and take a 3rd threshold dose. Most of us are pain free after the 3rd dose. Recap - 3 doses 5 days apart with a 5 day detox period before the first dose. PFW (pain free wishes) J
  18. ThatHurtsMyHead

    Open letter to major chemical companies (BOL-148)

    Tony, I'll try and see what happens. I might need to joggle some settings if it's a settings issue. Looks like I get the same message. looks like facebook is blocked by the message board security software. Trying removing content and just using the link: https://www.facebook.com/clusterbusters/posts/1738710686237791 Ok, the message board security software is blocking embedded content. Once you add a link look at the bottom of the content box and there's an option to just post as a link. Should be good. J
  19. ThatHurtsMyHead

    hi guys. questions

    Jimmys, I've never had an attack during dosing. I've read a few that have, but not many. From what I remember, they aren't very bad, but I have no idea if they had O2. J
  20. ThatHurtsMyHead

    Cannabis - Sativa or Indica?

    AndrejVoorhees, Welcome to the board. Please start a thread and introduce yourself. We're pretty much family here and like to get to know each other. We get spammers on here from time to time. Having a link to a site selling something in your first post feels like spam, but I suspect you're not. I removed the link, but left the rest of your post. Tell us about you, we'd like to get to know you. Cheers, J
  21. ThatHurtsMyHead

    After Cluster Headache - Help Please!

    A-Z, Over the years there have been two people that joined the board that were either partially or completely blind from taking Lithium. I can only guess their doctor didn't monitor them correctly. J
  22. ThatHurtsMyHead

    Back Again, but Good news

    CoryAnn, does he have high flow Oxygen for an abortive? At the first sign of an attack he can slam half (or all) of an energy drink. For some reason they take the edge off the attack and seem to help the Oxygen work better. Glad to see a supporter on here. If he's getting K10's then you're his lifeline to sanity. I'd send you a badge if i could J
  23. ThatHurtsMyHead

    After Cluster Headache - Help Please!

    A-Z, My doc recommended Lithium many years ago. After reading the side effects I decided it wasn't worth it, when Oxygen works as good as it does. IMHO, I'd stay away from it also. J
  24. ThatHurtsMyHead

    O2 prescription

    Great news Rose!!!!! J
  25. ThatHurtsMyHead

    O2 prescription

    Rose, Here's the exact same article on pubmed. National Institute of Health (NIH.Gov). https://www.ncbi.nlm.nih.gov/pubmed/19996400 You should print it and TELL the doctor you want a script for Oxygen. There are a lot of doctors that are ignorant of how effective Oxygen is and try to pass it off that we don't know what we're talking about. The truth is WE know a lot more than the majority of doctors out there about CH and what works (and doesn't work). Keep us posted how it goes! J