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ThatHurtsMyHead

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Everything posted by ThatHurtsMyHead

  1. ThatHurtsMyHead

    Message Board Issue and Upgrade

    Test post... J
  2. ThatHurtsMyHead

    Message Board Issue and Upgrade

    Jon, If I remember right, I think the system only sends notifications once a day. I'll look into it. J
  3. ThatHurtsMyHead

    Message Board Issue and Upgrade

    Friends, Wed 27 June the message board will be down for a few hours during the day for software upgrades. We'll get it back up as soon as possible after the update and testing. Hopefully this will resolve the signup issues some have experienced. Cheers, J
  4. ThatHurtsMyHead

    Attachments ??????

    CHF, Sorry, it took me a little while to figure it out. I bumped the storage limit up. Try now. Cheers, J
  5. Hi everyone, I'm posting this for Eileen (Cluster Busters, Communication and Education Director). This company is recruiting research subjects for a CH treatment. If interested, you can signup at the following link. https://www.science37.com/participants/neurology/cluster-headaches/?utm_source=ClusterBusters&utm_medium=Research PFW to all, J
  6. ThatHurtsMyHead

    Douglas mclauchlan

    Douglas, What level of "trip" effects are you getting? I'm curious if you're getting a strong enough dose? Also what other meds are you taking? Some meds (especially imitrex) block the help mm gives us. Please post details and I'm sure someone will come along that can provide some better coaching on using mm more effectively. PFW, J
  7. ThatHurtsMyHead

    MASSIVE APPOLOGY

    All, Massive Apology to everyone. I made a security change a few days ago in response to someone that was spamming board members. When I did that, I didn't set some security setting correctly. So, so sorry to everyone. You're welcome to start the wet noodle floggings. Everyone should be fixed, now. J
  8. ThatHurtsMyHead

    MASSIVE APPOLOGY

    All, I'm blushing as I read the replies. Thanks everyone. Love to all! J
  9. ThatHurtsMyHead

    Board Messaging System

    Spiny, Do you have a camera in my office? I've already done something similar, and will send you the details. Cheers J
  10. ThatHurtsMyHead

    Board Messaging System

    All, I want to start my post with an apology to everyone. It was brought to my attention that a spammer sent messages to some users of the board. The content of the spam was explicitly against Cluster Busters ethics. If you received a message with links to go to web addresses to purchase anything, please DO NOT click any of the links. Just delete the message. I believe I removed them already, but might have not been successful in removing all of them. The user has also been banned from the board. Reluctantly I've had to make a change to the messaging system in response to this persons activity. To reduce the likelihood that a spammer would take advantage of the board messaging system again I've made some changes. Going forward any users in the Member group will only be allowed to start 3 new messages to other users per day. You should be able to respond to unlimited conversations (same as it is now). Also I've reduced the maximum number of recipients per message to 3. This should allow users to continue to send new (and respond to) messages, but also provide a bottleneck to potential spammers that would attempt to abuse the system. Please feel free to provide any feedback as I really appreciate hearing from you guys and gals on how any changes affect you. If you think this is too restrictive on the messaging I'm ok loosening it up if you use more messages or regularly send to more than three users in each message. Also, thanks to the mods for the quick action as well as several users for reporting the abuser. It's much appreciated! You guys and gals ROCK!! Cheers! J
  11. ThatHurtsMyHead

    What a terrible year.... (off topic)

    Sending you Love and positive vibes MG. Wish I could send more. Sometimes the best things in our lives come right after the toughest. PFW, J
  12. ThatHurtsMyHead

    Can't paste

    (I'm pasting my reply from the issue report form) MG, I haven't used this reporting forum before. (hope I'm doing this right, ha ha).. Someone reported something similar a while back. It ended up being a special character being pasted in. Some special characters are hidden (like VBCRLF in code is a carriage return and line feed). I'd bet there's something hidden (html most likely) in what you're trying to paste. Also could be formatting, that isn't compatible with the forum input box. J
  13. ThatHurtsMyHead

    verapamil question

    GreenEyes, Since you have a healthy heart, I'd highly recommend picking up your own wrist blood pressure monitor (they also monitor heart rate). CVS and Walgreens has them for around $30 I think. Blood pressure isn't the only danger with verapamil. Heart rate drop is just as big of an issue to watch for. I have a healthy heart and my heart rate is normally 40 to 50 beats per minute. Even a low dose of veramamil for me could be deadly. Organs can be damaged if your heart rate drops too low (bradycardia is what it's called). Again, I really don't want to scare you, just want you to be safe. J
  14. ThatHurtsMyHead

    verapamil question

    I don't know about dose as It's been years since I took Verapamil BUT.. Please be very careful. If you have a healthy heart, that stuff can be terrible on someone that's healthy. It gave me PVC's (premature ventricle contractions), that took several years to go away after stopping the Verapamil. (That stuff is poison in my opinion). Some studies show it only has around 5% efficacy as well. Sorry not meaning to give bad news. Just want anyone taking it to be very careful of the negative side effects. They can be deadly. J
  15. ThatHurtsMyHead

    2017 Conference Review (Chicago)

    I recognise so many faces. Love all you guys and gals. Wish I could have been there this year. Hurricane season has been a bear this year. Just glad I'm not one of the people living in the Keys right now. J
  16. ThatHurtsMyHead

    2017 Conference Room Share Thread

    amon10, Sorry to hear you're canceling. Sadly I won't be able to get there this year either. +++ hoping it's on for 2018 though J
  17. ThatHurtsMyHead

    tkummer

    tkummer, Sorry, but I've not heard of that specific start to a CH attack. It might not be that out of the ordinary, but you might want to see the doc. Since you've been in remission for so long, and I'm guessing your previous attacks didn't start this way, means there could be something else going on. J
  18. ThatHurtsMyHead

    Oxygen question

    Mit12, ++ CHF's post. Staying on the O2 for 10 to 15 mins after the attack is gone most always keeps the attack from coming back (for me). J
  19. ThatHurtsMyHead

    Desperately Seeking Help

    Kaaiohelo, ++++ Everyone's post above. I left the military in 93' and was never properly diagnosed while in service. To be honest, I don't know how I held it together while I was in service with my CH. My attacks weren't as frequent or painful, but got worse over the years. I would be a strong advocate for seeking medical discharge due to his CH. I hid my attacks because I was on flight status. I didn't know what caused them, but knew I'd be grounded if the flight surgeon figured out they were as debilitating as they were. That BAD decision on my part seriously hurt me for the rest of my life.... I didn't have my condition properly documented, nor did I allow it to be part of my discharge reason. For some reason vets have a significantly higher incidence of CH. I'd suspect it's something that we're exposed to in service that triggers it. I've read of others having anywhere from 80% to 100% disability through the VA for service connected CH. That's a LOT better than any retirement he could get by staying in. (IMHO). Accolades to you for being a good supporter! PFW, J
  20. ThatHurtsMyHead

    New2Site - migraines and CH - HELP

    D, Glad you found us. Sorry you're having a bad go of it. LSA is a great place to start. When I started unconventional meds 8 years ago, LSA seeds were first thing I tried (and for the most part work GREAT!) In a nut shell the two most common sources of LSA is via Hawaiian Baby Woodrose or Rivea Corymbosa seeds. They can be legally purchased over the internet. A VERY easy water extract process can be used to get the LSA out of the ground up seeds. Here's a link directly to the LSA / seed overview and process here on ClusterBusters. (odd, the site won't let me paste the link in Here's how you get to it: 1) On the top click "Forums" 2) Click the second forum called "ClusterBuster Files" 3) Scroll down to #5 " 5. - LSA - SEEDS OF THE VINE" PFW, J
  21. ThatHurtsMyHead

    Finally! I have found way out!

    I have to agree with everyone else here. there's no way I'd take some unknown compound from an unknown source... Who's to say it isn't lethal??? Not to mention giving my home address out to a complete stranger on the internet is a bit scary. kokoreli, I for one am definitely happy that you're pain free. But, the "stuff" you have is pretty useless if it can't be 1) proven and 2) reproduced J
  22. ThatHurtsMyHead

    First time on this board

    Jacob, Sorry to hear you're in a bad place. It does get better. There are thousands of us now that can attest to that! As far as I'm concerned mm is magic at kicking our CH to the curb. Have you tried sleeping sitting up in recliner? That's magic for me at reducing the frequency and intensity of the night attacks. I started taking mm, and LSA (seeds) about (hmm maybe 8) years ago now and it's completely changed my life for the better. I'm curious, where in the states are you? PFW, J
  23. ThatHurtsMyHead

    New CB with a question.

    Ecaseson, There are lots of headache conditions very similar to CH, but with a different location, type or pattern of pain. I'm no doctor, but I'd say you have a very close variant of CH. Maybe someone else will chime in soon on your question. PFW, J
  24. ThatHurtsMyHead

    Cluster Headache Followed by Migraine?

    rscham, Never had something like that myself. I'd second Pixie's post. We all know what our CH is like. Something different should be investigated. PFW, J
  25. ThatHurtsMyHead

    Pain level

    Dane, You're correct. Passing out would be the best thing in the world. I think the nature of our pain (originates inside our brain) is why we don't pass out. J
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