Jump to content


  • Content count

  • Joined

  • Last visited

  • Days Won


Everything posted by ThatHurtsMyHead

  1. ThatHurtsMyHead

    Work Accommodations

    Keyser, I think I get what you're asking more than others that haven't worked a remote job before. No worries. I worked from home for 8 years. Large portion was due to my CH. Here's a few things to think about that might help. Computer Docking station Monitor Internet (my employer paid for my high speed internet, $40 per month for maybe 4 years My employer had a budget and could have bought me a workstation desk for home, but I didn't need it. Make sure you get into a schedule of meeting with coworkers. Working away from coworkers and a supervisor 100% can create a disconnect in the workplace. Scheduling a weekly or monthly lunch or office visit would help a lot. Cheers, J
  2. ThatHurtsMyHead

    Botox Injections for Cluster Headaches

    Ecaseson, Thanks for the correction. I've luckily been able to stay away from that stuff since starting my MM, and LSA dosing 7(ish) years ago. J
  3. ThatHurtsMyHead

    Ear popping shortly before an attack stops ?

    Archimedes, I think (for me anyway) that what you're experiencing is fairly common. When my CH attacks break I always get a release of sinus / ear pressure on my attack side right as the pain is stopping. I think it has to do with the swelling we get during an attack on our attack side. Causes the sinuses and eustachian tube to swell and reduce (or stop) airflow). When the attack stops, the swelling quickly subsides. I always get a gusher of a nose run also right as my attack stops (on the attack side). J
  4. ThatHurtsMyHead

    Botox Injections for Cluster Headaches

    Gigi, I think the botox injection you're talking about is usually called a nerve block injection. There's several threads with lots of information. Some people it works for, some it doesn't. Even further, some people it worked for one time, didn't a second time. (sorta like all of our treatments accept for mm, lsa, lsd etc). There's also a doctor that gives an injection with Vitamin B along with steroids. Some people say it works as well. You'll see a few discussions on the board calling that the "jesus shot". PFW, J
  5. ThatHurtsMyHead

    I'm rougher than I mean to be. Sorry!

    It's great to see you around the board again Pixie... J
  6. ThatHurtsMyHead

    Dr Elliot Shevel

    I want to try to stay neutral when it comes to people posting on the board, BUT... In situations that someone would post garbage bashing one of the BEST CH doctors there are, is a quack... Plain and simple... Boston Headache Doc listens to his patients, and works toward getting them to better manage their (our) condition.. Shevel for all practical purpose (IMHO) is a quack... There's entirely too many first hand experiences that people are in the poor house (upwards of $50,000 for his procedures) with worse CH because of Shevel's procedures.... J
  7. ThatHurtsMyHead

    scuba diving

    Active diver here. Ask away any questions. Spiny is correct (for me anyway). When in cycle there's NO diving for me. Going down is fine, but guaranteed an attack when I break the surface. When out of cycle, 100% OK. J
  8. ThatHurtsMyHead

    CH side eye

    A good friend at a conference a few years ago pulled a cool magic trick... He bet anyone he could tell them the side they get their CH attacks on.. Everyone he guessed was correct. I asked how he did it. He said, that if you look closely everyone with CH has either a lower eye, sagging eyelid or sagging under eye on the side they get attacks. I did some looking around at people, and he was completely correct. If you look closely most if not all of us are lower on our attack side. I don't know how that relates to those with CH that changes sides, or have attacks on both sides though. J
  9. ThatHurtsMyHead

    New version of Register Your Journey Online

    I just sent an email via the app, but figured I'd jot a few notes here as well. It looks like a potentially great app, but without the ability to free form entries, for me it's not very usefull. Example: For triggers. People could have a button for triggers. That button would open a freeform txt entry window that would allow them to enter a possible trigger they just experienced. Then as they plot potential triggers and CH attacks, the pattern would be evident. They could then click on the potential triggers that happen just before their attacks to figure out what was a "Real" trigger. For Food allergies: I've figured out that I have an allergy to Tyramine (which is also a CH trigger for most people). My allergy has gotten much worse recently for some reason. I need to figure out what foods are triggering my muscle and joint pain. If I could have a button "Food" that allowed me to freeform entry any food I've eaten. Then I could track my muscle and joint aches better to which foods are causing it. I would think the best way to plot the free form is not label every different entry on the chart, but have a single "Food" or "Trigger" color and title for the chart, but allow the person to drill down (click) on the entry to see the detail. App looks great, the above functionality will definitely make it 1,000% better. J
  10. ThatHurtsMyHead

    Help In Florida

    Apples, I'm near Tampa, but still a ways away from S FL. Please post any questions, as everyone here are great at helping. J
  11. ThatHurtsMyHead

    Please help me

    Andrew, mm (and truffles), LSD and LSA definitely help. They've been the only thing that's given many of us our lives back. I was chronic and have been taking regular doses for over 7 years now. I've been pain free a significant amount of that time. I believe truffles are available where you live. Please read the files section on this message board. There's a specific process you need to follow. 1) detox from all triptamine type drugs (Imitrex, maxalt etc. etc). 2) Wait 5 days from he start of detox for your first dose. Take enough for a "threshold" dose. Meaning you get some trip out of it. Most of us find that the stronger the trip the better the medicine works on our CH. 3) You'll likely get what's called "slap backs" after your first dose. Don't worry, the attacks will go down after the 2nd and 3rd doses. Take each dose 5 days apart (not 4, not 6). For some reason 5 days is the sweet spot for something in our brain to reset. After the 2nd dose you should notice the attacks being milder and slightly further apart. After the 3rd dose most people are pain free, but a lot of people also need another dose. It all just depends on your body chemistry, and the strength of the mm. post questions. (but please read the busting files section). :) J
  12. ThatHurtsMyHead

    Message Board Upgrade Complete

    All, The message board has been upgraded to the latest IPBoard version. Please ping any questions or issues here, and myself or someone else will try to help. Thank you! J
  13. ThatHurtsMyHead

    Different Approach

    Snowflake, Have you tried MM, or the seeds Hawaiian Baby Woodrose (HBWR), or Rivea Corymbosa (RC)? They work great for the majority of us long term with no side effects. Welcome to the board!! J
  14. ThatHurtsMyHead

    Message Board Upgrade Complete

    Test, file upload... Halloween.. J
  15. ThatHurtsMyHead

    Message Board Upgrade Complete

    CHF, Ok, I'm poking around in the admin console: For your three issues: 1) I think I've fixed that with a setting to download remote files, (w/o the blanket security alert). 2) The board is already setup to allow any attachments, so I'm not sure what's up with this one. I'll try an attachment in a few mins. 3) It looks like the framework that was originally in place isn't there any longer. I'll see what I can figure out to add a link back to the main board. I'll most likely need to get some help from the web developer, so it could take some time on that one. Keep em coming. J
  16. ThatHurtsMyHead

    Sewell's Original 53

    Geoffmh, Thanks VERY much for your contribution. It was the Dr Sewell study (of which you were one of the 53), that ultimately convinced me to try busting. I've never looked back... Changed my life for the best, forever. J
  17. ThatHurtsMyHead

    Message Board Upgrade Complete

    Actually I'm going to do a check to make sure new posts aren't affected.... '," J
  18. ThatHurtsMyHead

    Message Board Upgrade Complete

    Wanted to keep everyone in the loop. Looks like we have a minor issue that all the apostrophes anywhere on the board were mapped to the wrong control characters. Till we figure out how to fix it please bear with us. It makes some of the posts and documents sorta hard to read, but the context is unchanged. Thanks DD for reporting it! J
  19. ThatHurtsMyHead

    Message Board Upgrade Complete

    Test reply.. J
  20. ThatHurtsMyHead

    Message Board Upgrade Scheduled

    Sorry for the late notice, but the board will be upgraded today (Wed), as a short challenge was encountered yesterday. I expect the upgrade should be short and smooth. Cheers, J
  21. ThatHurtsMyHead

    Message Board Upgrade Scheduled

    All, The coming upgrade of our message board has now been scheduled. Please note that the 24th of January this message board will be down for a short while during the day for a software upgrade. A few things of note before then: 1) Make sure your email address is your currently used email address. If for any reason you need your password reset after the upgrade you'll need access to the email address on your account. 2) After the upgrade, you will only be able to sign in with your display name. (Mine is ThatHurtsMyHead, and is found at the top of any post you've made) 3) If you have any login issues after the upgrade please send an email to - info@clusterbusters.org We plan on this upgrade going much smoother than the last. J
  22. ThatHurtsMyHead

    Message Board Upgrade Scheduled

    Bump... J
  23. ThatHurtsMyHead

    Message Board Upgrade Scheduled

    Bumping to the top. Cheers, J
  24. ThatHurtsMyHead

    Why do I have food triggered CH when in cycle?

    Definitely allergy in my situation. J
  25. ThatHurtsMyHead

    Why do I have food triggered CH when in cycle?

    John, Pebbles, You raise an interesting point. I've realized over the last few months, that ALL of my CH triggers I've known about for years. Those have apparently been causing subtle but very present negative impact to my life when I'm not in cycle. I've started realizing most (if not all) of the aches, pains, irritations, stomach issues etc etc etc. Even though they are mild, that I've had off an on my entire life all seem to be related to one food or another. The one (or could be two), commonalities of all my food triggers is they all contain yeast and/or tyramines (alcohol, chocolate, yogurt, fermented cheese, bbq sauce, preserved meats etc etc). I found by chance a few months ago that if I went a few days of not eating anything with yeast or tyramines in it, that ALL of my body symptoms would go away.. (ALL). I've been experimenting with different foods for a few months now, and everything I'm finding comes back to one or both of those things present in foods I eat. An hour to 12 hours later I get pain, irritation or something bad with my body... Quite interesting, and I'd speculate that we all have similar allergies, but are only VERY mild when not in cycle. J