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Everything posted by ThatHurtsMyHead

  1. ThatHurtsMyHead

    Rivea Corymbosa banned in UK

    Ahhhhhh, that's horrible... Sorry to hear. Which seeds did they ban? Both Rivea Corymbosa (RC) and Hawaiian Baby Woodrose (HBWR)? J
  2. ThatHurtsMyHead

    I cn't break this cycle

    ++++++ The seed success reports!!!. J
  3. ThatHurtsMyHead

    The beast came back on me on this time

    SOS, I'd say up the dose to wherever you feel comfortable. The general rule most of us have found, is you need a threshold dose for it to work on our CH. Meaning, you should feel the effects, for it to beat down your CH. It's typical for seeds to have little to no LSA if they're old, which is the primary reason I usually recommend to keep upping the dose till you 'feel' it. J
  4. ThatHurtsMyHead

    New to CH, 36 weeks pregnant

    Kelly, I'm at a bit of a loss for words. Lots of people gave you some really great advice here that you chose not to take. yet you sorta back hand them? We're still glad you're getting some pain free time. Seriously. As for the steroids. They can and sometimes do terminate cycles. Other times the CH comes back shortly after stopping the steroids. I didn't see in your post but hope you didn't use the imitrex? That stuff can wreck a healthy person. I couldn't imagine what it would do to an unborn child. Any doctor that says it's ok for someone pregnant is a crack pot...!!! The Vitamin D regimen has helped thousands of people with CH reduce their attacks and pain level. That's a fact. If you really have CH and it comes back, you're always welcome here. (And the alternative treatments are SIGNIFICANTLY better on both your body and alleviating our CH than ANYTHING the doctor can script).. That's also a fact that thousands of us with recurring or chronic CH will swear by. PFW, J
  5. ThatHurtsMyHead

    How to restart the D3 regimen and how long

    It's my understanding as well that the entire list of supplements are important. Some don't absorb as well without the others. Some leach other nutrients out of your body, that's replaced with the companion supplements. J
  6. ThatHurtsMyHead

    Just started taking verpamil and need help with dosage and

    Sous139, Please be very careful with the verapamil. Years ago it gave me heart palpitations called PVC's (Premature Ventricle Contractions). It took 3 YEARS to slowly go away after I quit the verapamil. If you have a healthy heart you need an EKG to ensure it's not bringing your heart rate too low... If you're dizzy it could be causing bradycardia (heart beat too slow), and that's VERY dangerous. Sorry, I don't mean to be negative. We all get enough of that when in cycle. On the positive note you can use LSA seeds (HBWR and RC). They are legal and hardly have any effects when taken in the right dosages. J
  7. ThatHurtsMyHead

    Home from CB conference safe

    Jeffrey, That sounds awesome. I'm a bit jealous J
  8. ThatHurtsMyHead

    Conference takeaways?

    zgreek, I'd start low maybe 30 RC seeds. 1) Grind (coffee grinder works great) 2) Soak for 2 hours in Distilled water with a few drops of lemon (real lemon). Use a shot glass, half filled. 3) drink the entire sludge, slimy stuff down (it's pretty vile) Some people filter the liquid, but I've always had problems getting all the liquid out, as it' makes a sorta slimy jello like almost stuff. Make sure you have some benadryl and emitrol (anti nausea liquid) close by. benadryl if you get any uncomfortable vaso constriction. (I usually get a little). If you get any stomach cramps or nausea, take a few sips of emitrol and it usually leaves in 5 to 10 minutes. If not feeling better by then take more. It's just glucose, so you can take as much as you need to stop the nausea. Some people take it just before bed. I prefer to take it around 3pm. That gives me enough time for it to work through my system before bed (around midnight). Ping with questions. J
  9. ThatHurtsMyHead

    Conference takeaways?

    zGreek, IMHO, I'd start with the RC seeds. They're legal, cheap, easy to dose and little to no psychedelic experience. J
  10. ThatHurtsMyHead

    Conference takeaways?

    CHF, TONS were discussed, but the only take away that I got that seemed to work was "Up the dose". It sounds like more of us that are on MM long term are running into it slowly stopping it's magic. The good news is continuing to change substances seems to help. While psychedelics are cross tolerant for recreational use, they don't seem cross tolerant for our CH. Of course me personally am on my third substance after the first two stopped keeping my CH away. (but I got most of 6 years pain free from the first two!!! Wahoooo). J
  11. ThatHurtsMyHead

    Home from CB conference safe

    Rock on DD!!!!!!!! You da man! J
  12. ThatHurtsMyHead

    Home from CB conference safe

    Ricardo (the REAL Ricardo) , Regional meets would be awesome. I just saw a little while ago that Denver has their own group get togethers. I wish more people were around me (but glad there aren't more people with CH, ha ha). It does sound like there's a lot of people in the NorthEast. J
  13. ThatHurtsMyHead

    Looking for testers

    I'm in!!! You might find light attendance here for a day or two, due to everyone traveling home from the conference. I just got back home late last night. J
  14. ThatHurtsMyHead

    Is Prednisone making it worse? Please help :(

    Erika, Sadly, many of us with CH end up with permanent body damage due to the scripted drugs the docs hand out like tick-tacks... I don't mean to scare you, but hip replacement is a very real issue for many people that take high doses of prednisone. Please have your hip checked. MM can be very challenging to many of us, but it can be a real life saver. NO side effects after you're down from the dose. I'll make a change to that, one side effect many of us feel after several doses is a VERY good sense of well being. It's been documented to last for weeks to months, to years after our doses of MM (seeds, LSD etc). J
  15. ThatHurtsMyHead

    IT guy saying hello :)

    You did a GREAT job!!! Who knows your contribution, might have saved someone's life. J
  16. ThatHurtsMyHead

    Home from CB conference safe

    Made it back just before midnight last night. LONG drive, but well worth it... Loved seeing everyone old and new!! I'm wishing next year's conference was next week J
  17. ThatHurtsMyHead

    Conference Room Share

    Hi friends, It looks like I'll be traveling to TX myself this year. I have a room with 2 twin beds reserved at the conference hotel, and am game to room share. Room is for 3 nights, 15th, 16th and 17th (checkout on 18th). If you don't have a room, or have a room at another hotel, but want to stay at the conference hotel, send me a PM / or post here. I figured with it being last minute, more people would see here than on the room share thread. Cheers! J
  18. ThatHurtsMyHead

    Austin, here I come!!

    Leaving this morning myself! Look forward to seeing you again DD! J
  19. ThatHurtsMyHead

    I cn't break this cycle

    Treelove2, Have you read over the primary methods discussed on this site? Magic mushies, LSD, LSA (legal seeds), etc? Also, Have you tried energy drinks (they really help reduce the pain level of individual attacks)? Do you have 100% high flow O2 (Oxygen)? Do you primarily get the night attacks / day attacks, or mixed? Sorry for the 30 questions, just trying to get an idea where you are in regards to common cycle and attack treatments. J
  20. ThatHurtsMyHead

    Triggers document

    CHF, Rocks!!!!
  21. ThatHurtsMyHead

    Newbie needs help for hubby

    LeanOnMe, Does he have a diagnosis from the doc of having CH? If so, and the doc won't prescribe Oxygen, or refer him to a neurologist then I'd get another doctor. That one is worthless. 100% high flow oxygen works the vast majority of the time to stop the attacks. The doc should be smart enough to open his Merck manual, where 100% high flow oxygen is mentioned not once, but repeatedly throughout the CH treatment description. Some doctors did graduate, but NOT the top of their class, sorry to see you drew the short straw with that doc (I guess someone has to graduate with D's . Sadly it's somewhat common for some doctors to think they're smarter than the collective knowledge contained in the Merck manual. J
  22. ThatHurtsMyHead

    An unknown(?) treatment I'v found..

    MJ, My ex wife stabbed me in the back several times. She didn't use a fork though, she had a lawyer do it for her... ROFL. (ok, back to being serious.) Have you tried the methods primarily described on this site? MM, LSA seeds, 100% high flow Oxygen etc? They all work GREAT (and significantly less damaging than a fork. J
  23. ThatHurtsMyHead

    Next Triggers Draft

    TRIGGERS Many people with CH don’t recognize all the triggers that can bring on an attack. Some participants at the ClusterBusters message board put together this list of their triggers. Not all of these items are triggers for everyone, but we urge you to look over this list to see whether there might be something you are missing. Here are some comments that might encourage you. “It took me a long time to make the connection that I got hit not long after eating chocolate. When I stopped, those hits went away.” “For years I couldn’t understand why I got a headache 30 minutes after I left work regardless of what time I left. I was blaming the dusty atmosphere until I read that relaxation was a trigger. It was an epiphany!” “My ED meds! Who knew?” “I learned the hard way about epinephrine when used as a dental anesthetic. I thought it was the dental work itself that triggered me.” “MSG (monosodium glutamate) is a huge trigger for me, and it is in a lot of foods, such as many soups, flavored chips, and cold cuts. Reading labels carefully has made a very big difference for me.” If you have additional triggers to add, or comments to make, please visit the “ClusterBuster Files” message board at www.clusterbusters.org. Atmospheric Conditions Barometric pressure changes High pollen counts (taking Benadryl along with the Vitamin D3 regimen can help with this one) High temperatures Events and Activities Airplane travel Dental work (When using anesthetics that are triggers. Anesthetics containing epinephrine (such as Xylocaine) and nitrous oxide have been identified by some people as triggers. Ask your dentist to use something else: Prilocaine seems not to cause bad effects.) Foods and Beverages Alcoholic drinks Aspartame (artificial sweetener) BBQ Sauce Caffeine at the wrong time [“My belief that the body maintains stasis when ‘insulted’ continuously....so best to withhold caffeine until needed for maximum effect.”] Cheeses that are fermented [“Bleu, brie, American, Swiss etc.”] Chocolate Flour, bleached white (white bread, cake etc.) Histamines [“Most of the food items on this list release histamine in your body. A low-histamine diet helped me a lot!”] MSG (monosodium glutamate, a food additive found in many products—see additional information at the end of this list) Nitrates and nitrites (often added to processed meats, such as bacon, hot dogs, jerky, and luncheon meats) Shrimp Sugar: high-sugar foods Locations Altitude: high-altitude locations; travel from high altitude locations to lower ones and from lower ones to higher ones Medical conditions Illness [“Any time I get sick I get hits.”] Low blood sugar Medications and Supplements Amoxicillin Amyl nitrate (used medically to treat heart diseases such as angina, and also used as an inhalant drug, often called a “popper,” that induces a brief euphoric state) Epinephrine (anesthetic used often in dental work; see discussion under “Events and Activities”) Erectile dysfunction medications (Viagra, Cialis) Marijuana Nitroglycerine Nitrous oxide [“Dental anesthesia...never experienced personally...but an enlightened anesthesiologist I met told me”] Odors Burning leaves Gasoline Paint Perfumes Smoke Solvents Welding fumes (zinc welding fumes was an INSTANT hit for me) Personal Habits and Activities Changes in routines (eating, sleeping, exercise, etc.) Gum chewing, or excessive jaw movements Strenuous exercise Sleep, Rest, and Relaxation Baths [“Showers have never triggered a cluster for me. It’s about the relaxation.”] Irregular sleep schedule [“Any change in sleep patterns, especially if I am startled awake.”] Napping Relaxing [“For years I couldn’t understand why I got a headache 30 minutes after I left work regardless of what time I left. I was blaming the dusty atmosphere until I read that relaxation was a trigger. It was an epiphany!”] Stress and post-stress [“Coming home from work, finishing a stressful project.”] Taking a bath Additional Information About MSG (Monosodium Glutamate) Many people with CH experience MSG as a trigger. As noted above, MSG appears in many prepared foods, which can include broths and soups, flavored chips, cold cuts, frozen dinners, and ranch dressing. It is a standard ingredient in Chinese restaurant food, but other restaurants may use it, too. You might want to ask and to order food without MSG if it’s a trigger for you. One person provided the following information: “MSG hides in our food supply under many guises. I’d add a caution to research glutamic acid content of foods...same action in the body as MSG. Examples of higher levels include anchovies, tomatoes and mushrooms........ Other Names for MSG: The A to Z Guide: Accent (food additive) Autolyzed Plant Protein Autolyzed Yeast Aginomoto Calcium Caseinate Citric Acid (when processed from corn) Gelatin Glutamate Glutamic Acid Hydrolized Plant Protein (HPP) Hydrolized Vegetable Protein (HVP) Monopotassium Glutamate Monosodium Glutamate MSG Natural Flavoring Natural Meat Tenderizer Sodium Caseinate Senomyx (wheat extract labeled as artificial flavor) Textured Protein Yeast Food or Nutrient Yeast Extract ”
  24. ThatHurtsMyHead

    Is Prednisone making it worse? Please help :(

    ErikaLeigh12890, Silly question, but if the magic M helped you years ago, why not hit it again? Or Change to the RC seeds? PFW, J
  25. ThatHurtsMyHead

    Spousal support?

    AnitaJ, I sure hope you can convince him to hit the O2 again. It would be pretty sad if he decided not to (really) try the #1 abortive most of us use. Since the holes were open on his mask I'd give it a 99% chance that's the reason it didn't work. He really wasn't getting 100% O2 at all. J