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ThatHurtsMyHead

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  1. Like
    ThatHurtsMyHead reacted to Pebblesthecorgi in Hello - First timer   
    Since you have gone into episodic remission it would be a good time to study busting type alternative therapy. As an episodic my observations on GammaCre is similar and tend to agree on the Amovig.  Busting clearly helps
  2. Like
    ThatHurtsMyHead reacted to Rod H in Australians beware   
    Well we do live in a nanny state world. Put your seat belt on or you owe us $300. That way we can buy someone who doesn't want to work a 12pk of soda and twinkies. ....
     
  3. Haha
    ThatHurtsMyHead got a reaction from Into Light in info sheet, general and IMPORTANT Oxygen info   
    Or tell anyone you caught crabs in Vegas.. ROFL...
  4. Like
    ThatHurtsMyHead got a reaction from LazyGrind in Chronic Cluster Patient Pain Free for 11 days   
    Group Hug...
    J
  5. Like
    ThatHurtsMyHead reacted to Dana129 in Interesting info on legalization   
    You wouldn’t by chance know if the US is accepting migrants from Australia do you?
  6. Like
    ThatHurtsMyHead got a reaction from LazyGrind in Chronic Cluster Patient Pain Free for 11 days   
    Group Hug...
    J
  7. Like
    ThatHurtsMyHead reacted to Dallas Denny in Interesting info on legalization   
    Yuppers... Oregon is next!!  Who'd a thunk we'd see this...EVER!!!!
  8. Like
    ThatHurtsMyHead reacted to Dana129 in Interesting info on legalization   
    I wish they mentioned cluster headaches in the article, It would be nice to have a bit more recognition in terms of what that means for cluster headache survivors in Denver, in any case, this is a big victory, this is long overdue 
  9. Like
    ThatHurtsMyHead got a reaction from CHfather in Interesting info on legalization   
    Looks like Denver is voting on decriminalizing mm..  WOW!!!
    https://www.reuters.com/article/us-colorado-magic-mushrooms/denver-residents-vote-on-whether-to-decriminalize-magic-mushrooms-idUSKCN1SD16I
    I'm posting this in the general board.  Just for an interesting notice to everyone.  Please no discussion of personal use and we'll leave this in the public board for a bit.
    Cheers,
    J
     
  10. Like
    ThatHurtsMyHead reacted to xBoss in Warning about vaping   
    Vaping has issues, you can get a lung infection as well.
  11. Thanks
    ThatHurtsMyHead got a reaction from Brain on fire in Describing CH to non-believers   
    Maybe a bit of comparison on my Kipp Scale, for those that have a different interpretation:  
    I've broken my wrist before.  It was 10 at night and I didn't feel like going to the emergency room.  I decided to go to bed and go in the morning.  I went right to sleep like a baby 15 minutes after breaking it.  Slept fine got up.  Put my wrist in a tshirt sling and went to the emergency room.  My kipp level was maybe 3 out of 10.
    I've de-gloved 2 fingers on my right hand in a sailing accident.  The index and middle finger had the meat pulled right off the bone.  My middle finger bone was sticking out like a skeleton you see at Halloween.  Of course both fingernails were peeled off as well.  We were docking a large boat and my fingers got caught in a cleat.  I yelled up to the guy on the bow not to dilly dally, that he had to take me to the emergency room as soon as the boat was tied up.  I grabbed a hand towel from the galley and ran back on deck spewing blood everywhere.  I finished securing the stern and port of the boat before showing my friend what happened.  He drove me to the emergency room where they reassembled my fingers.   Oh and without any anesthetic.  I'm immune to the anesthetic they use for nerve blocks.  My peak pain through the entire event was maybe a 4.  My pain tolerance is VERY high due to my years with CH I can only assume.
    I've had 3 kidney stones.  Passed one of them.  Kipp 5 to 6.  Other two had surgery to remove and were maybe Kipp 3 tops. 
    To say my pain levels with a CH K10 are worse than an amputation without anesthetic is a no brainer.  My K10's are much worse.  Everyone is different, but pain is pain.  Support for our CH family here is what's its all about. 
    J
     
  12. Haha
    ThatHurtsMyHead reacted to xBoss in “Cure”   
    Probably need to up the dose.
  13. Like
    ThatHurtsMyHead got a reaction from Rod H in “Cure”   
    I'm feeling some tension in some posts here.  Everyone has a bad day, week, month etc.  Let's not make personal jabs.  I see a lot of good intention on posts that are being interpreted at a different angle.  
    Back on the thread subject:
    I used a very strong mint lotion type stuff on my temples a long long long time ago.  It seemed to help some, but wow...  Don't get it too near your eyes. 
    J
  14. Like
    ThatHurtsMyHead reacted to Mizagorn in Tubing and syringe sizes   
    Hello everyone,
    I found this site a few weeks ago and have been very much appreciating all the wonderful information and advice contained within. It's also very nice to know there is a community of people that have been going through the same types of things. Much love to you all!
    After two trips to the emergency room two nights in a row about 5 weeks ago, I was referred to a neurologist. It took about a month to get the appointment and I was prescribed sumatriptan injections (6mg/0.5ml per injection), oxygen and I was switched back to verapamil 120/mg 3x per day after having been on propranolol a while and verapamil 80mg 3x per day before that by my nurse practitioner.

    Anyway, I'm trying to get myself set up with both. I'm normally pretty good at finding information, but I can't seem to find any reference to either of these questions. I'm willing to bet they have been answered, but my head right now just won't let me investigate and much as normal.


    Sumatriptan
    When I finally got enough money to get a partial fill of my prescription, I was expecting to get the auto-injector form like what was on my GoodRX coupon. When I got home, I found that I had simply received 5 vials each containing 0.5ml. Apparently enough for one dose each. And that was $122.00 haha. Wow. (No insurance, but the coupon sure helped!)

    I've seen on this site where most people say that 3mg is enough for an injection treatment, so I have two questions:
    1) Is it OK to use each vial for two doses?
    2) Is there a certain size/gauge syringe that I need to be looking for?
     
    Tubing size for welding (CGA-540) regulator adapter
    I have ordered the Cluster O2 kit from clusterheadaches.com.  However, I don't see in the description what the inside diameter of the tubing is. I'm going to guess 1/4"?

    I'm going the welding oxygen tank route, because even here in Dallas, TX I'm having a hard time finding large medical oxygen tanks. I can get what's probably an M size tank for $250 with $25 refills.

    But I need to know what size adapter I need to get so that the tubing will connect to the regulator. 

    Does this one look OK? (Dixon OA61 Oxygen Hose Brass Fitting, Coupler, 9/16"-18 UNF Right Hand Female, 1/4" Hose ID Barbed ) https://www.amazon.com/Dixon-OA61-Oxygen-Fitting-Coupler/dp/B007D5KS2A/

    The regulator I am looking at is this one (Victor Technologies 0781-9400 G250-150-540 Medium Duty Single Stage Oxygen Regulator, 150 psig Delivery Range, CGA 540 Inlet Connection) https://www.amazon.com/Technologies-0781-9400-G250-150-540-Regulator-Connection/dp/B00BZFB2TC/
    Thanks!
    Thanks to everyone for all the long-distance support even when you didn't know it. Super glad I found this site.

    Best regards,
    Terry
  15. Haha
    ThatHurtsMyHead reacted to CHfather in “Cure”   
    Reminds me of Woody Allen's joke, "Sex isn't dirty, unless you're doing it right."
    As I recall, one or two posters have suggested that not actually completing the act is the secret to stopping an attack.  So actually doing it "wrong" might in fact be the secret to doing it "right."  (This might also be within the posted materials, but I'm not going to look.) 
  16. Like
    ThatHurtsMyHead reacted to Dallas Denny in Micro Dosing   
    G'mornin Phil 
    As a guy about to turn 72, I can so relate....unfortunately, in my opinion, there's just not enough anecdotal evidence yet to show that micro dosing is an effective treatment for clusters.....a scant few claim success but 1/10th to 1/20th of a recreational dose (175 - 350mg) is not enough for most folks to reach a therapeutic trip level !
    Dallas Denny 
  17. Like
    ThatHurtsMyHead got a reaction from MoxieGirl in Describing CH to non-believers   
    The reality is everyone has a different pain level from their CH.  They also have different pain tolerances.  I'm one of the people that have attempted suicide due to my CH.  When I get a K10, it IS a K10...  I've passed kidney stones and they were a walk in the park compared to my K10 attacks.  I've beat my head on the floor till I've passed out.  
    Because some people with CH don't really get K10's doesn't mean others don't.  I wouldn't downplay any description.  Otherwise you shouldn't complain if someone just tells you to go take an aspirin when YOU have an attack.  (see the comparison?)
    I've spoken with people that can't understand why some of us use indole ring hallucinogens to treat our CH.  They've said.  "CH isn't that bad.  Just wait till the attack passes".  "Why would anyone take an illegal substance to treat their CH.  It's not that bad"...   The examples go on and on.  To those people...  I seriously question if you really have CH.  I KNOW how bad mine was before I started self treatment.  I'd never go back to that world, or I'd be outa here if I did.
    I think healthy debate is healthy.  Let's just not downplay someone else's description just because your pain isn't as bad as theirs.  You might wake up one day and find your pain IS as bad as theirs and reassess your own Kipp scale.  (I certainly hope not though).
    Cheers,
    J
  18. Thanks
    ThatHurtsMyHead got a reaction from Brain on fire in Describing CH to non-believers   
    Maybe a bit of comparison on my Kipp Scale, for those that have a different interpretation:  
    I've broken my wrist before.  It was 10 at night and I didn't feel like going to the emergency room.  I decided to go to bed and go in the morning.  I went right to sleep like a baby 15 minutes after breaking it.  Slept fine got up.  Put my wrist in a tshirt sling and went to the emergency room.  My kipp level was maybe 3 out of 10.
    I've de-gloved 2 fingers on my right hand in a sailing accident.  The index and middle finger had the meat pulled right off the bone.  My middle finger bone was sticking out like a skeleton you see at Halloween.  Of course both fingernails were peeled off as well.  We were docking a large boat and my fingers got caught in a cleat.  I yelled up to the guy on the bow not to dilly dally, that he had to take me to the emergency room as soon as the boat was tied up.  I grabbed a hand towel from the galley and ran back on deck spewing blood everywhere.  I finished securing the stern and port of the boat before showing my friend what happened.  He drove me to the emergency room where they reassembled my fingers.   Oh and without any anesthetic.  I'm immune to the anesthetic they use for nerve blocks.  My peak pain through the entire event was maybe a 4.  My pain tolerance is VERY high due to my years with CH I can only assume.
    I've had 3 kidney stones.  Passed one of them.  Kipp 5 to 6.  Other two had surgery to remove and were maybe Kipp 3 tops. 
    To say my pain levels with a CH K10 are worse than an amputation without anesthetic is a no brainer.  My K10's are much worse.  Everyone is different, but pain is pain.  Support for our CH family here is what's its all about. 
    J
     
  19. Thanks
    ThatHurtsMyHead got a reaction from Brain on fire in Describing CH to non-believers   
    Maybe a bit of comparison on my Kipp Scale, for those that have a different interpretation:  
    I've broken my wrist before.  It was 10 at night and I didn't feel like going to the emergency room.  I decided to go to bed and go in the morning.  I went right to sleep like a baby 15 minutes after breaking it.  Slept fine got up.  Put my wrist in a tshirt sling and went to the emergency room.  My kipp level was maybe 3 out of 10.
    I've de-gloved 2 fingers on my right hand in a sailing accident.  The index and middle finger had the meat pulled right off the bone.  My middle finger bone was sticking out like a skeleton you see at Halloween.  Of course both fingernails were peeled off as well.  We were docking a large boat and my fingers got caught in a cleat.  I yelled up to the guy on the bow not to dilly dally, that he had to take me to the emergency room as soon as the boat was tied up.  I grabbed a hand towel from the galley and ran back on deck spewing blood everywhere.  I finished securing the stern and port of the boat before showing my friend what happened.  He drove me to the emergency room where they reassembled my fingers.   Oh and without any anesthetic.  I'm immune to the anesthetic they use for nerve blocks.  My peak pain through the entire event was maybe a 4.  My pain tolerance is VERY high due to my years with CH I can only assume.
    I've had 3 kidney stones.  Passed one of them.  Kipp 5 to 6.  Other two had surgery to remove and were maybe Kipp 3 tops. 
    To say my pain levels with a CH K10 are worse than an amputation without anesthetic is a no brainer.  My K10's are much worse.  Everyone is different, but pain is pain.  Support for our CH family here is what's its all about. 
    J
     
  20. Like
    ThatHurtsMyHead got a reaction from MoxieGirl in Describing CH to non-believers   
    The reality is everyone has a different pain level from their CH.  They also have different pain tolerances.  I'm one of the people that have attempted suicide due to my CH.  When I get a K10, it IS a K10...  I've passed kidney stones and they were a walk in the park compared to my K10 attacks.  I've beat my head on the floor till I've passed out.  
    Because some people with CH don't really get K10's doesn't mean others don't.  I wouldn't downplay any description.  Otherwise you shouldn't complain if someone just tells you to go take an aspirin when YOU have an attack.  (see the comparison?)
    I've spoken with people that can't understand why some of us use indole ring hallucinogens to treat our CH.  They've said.  "CH isn't that bad.  Just wait till the attack passes".  "Why would anyone take an illegal substance to treat their CH.  It's not that bad"...   The examples go on and on.  To those people...  I seriously question if you really have CH.  I KNOW how bad mine was before I started self treatment.  I'd never go back to that world, or I'd be outa here if I did.
    I think healthy debate is healthy.  Let's just not downplay someone else's description just because your pain isn't as bad as theirs.  You might wake up one day and find your pain IS as bad as theirs and reassess your own Kipp scale.  (I certainly hope not though).
    Cheers,
    J
  21. Thanks
    ThatHurtsMyHead got a reaction from Brain on fire in Describing CH to non-believers   
    Maybe a bit of comparison on my Kipp Scale, for those that have a different interpretation:  
    I've broken my wrist before.  It was 10 at night and I didn't feel like going to the emergency room.  I decided to go to bed and go in the morning.  I went right to sleep like a baby 15 minutes after breaking it.  Slept fine got up.  Put my wrist in a tshirt sling and went to the emergency room.  My kipp level was maybe 3 out of 10.
    I've de-gloved 2 fingers on my right hand in a sailing accident.  The index and middle finger had the meat pulled right off the bone.  My middle finger bone was sticking out like a skeleton you see at Halloween.  Of course both fingernails were peeled off as well.  We were docking a large boat and my fingers got caught in a cleat.  I yelled up to the guy on the bow not to dilly dally, that he had to take me to the emergency room as soon as the boat was tied up.  I grabbed a hand towel from the galley and ran back on deck spewing blood everywhere.  I finished securing the stern and port of the boat before showing my friend what happened.  He drove me to the emergency room where they reassembled my fingers.   Oh and without any anesthetic.  I'm immune to the anesthetic they use for nerve blocks.  My peak pain through the entire event was maybe a 4.  My pain tolerance is VERY high due to my years with CH I can only assume.
    I've had 3 kidney stones.  Passed one of them.  Kipp 5 to 6.  Other two had surgery to remove and were maybe Kipp 3 tops. 
    To say my pain levels with a CH K10 are worse than an amputation without anesthetic is a no brainer.  My K10's are much worse.  Everyone is different, but pain is pain.  Support for our CH family here is what's its all about. 
    J
     
  22. Like
    ThatHurtsMyHead got a reaction from MoxieGirl in Describing CH to non-believers   
    The reality is everyone has a different pain level from their CH.  They also have different pain tolerances.  I'm one of the people that have attempted suicide due to my CH.  When I get a K10, it IS a K10...  I've passed kidney stones and they were a walk in the park compared to my K10 attacks.  I've beat my head on the floor till I've passed out.  
    Because some people with CH don't really get K10's doesn't mean others don't.  I wouldn't downplay any description.  Otherwise you shouldn't complain if someone just tells you to go take an aspirin when YOU have an attack.  (see the comparison?)
    I've spoken with people that can't understand why some of us use indole ring hallucinogens to treat our CH.  They've said.  "CH isn't that bad.  Just wait till the attack passes".  "Why would anyone take an illegal substance to treat their CH.  It's not that bad"...   The examples go on and on.  To those people...  I seriously question if you really have CH.  I KNOW how bad mine was before I started self treatment.  I'd never go back to that world, or I'd be outa here if I did.
    I think healthy debate is healthy.  Let's just not downplay someone else's description just because your pain isn't as bad as theirs.  You might wake up one day and find your pain IS as bad as theirs and reassess your own Kipp scale.  (I certainly hope not though).
    Cheers,
    J
  23. Thanks
    ThatHurtsMyHead got a reaction from Brain on fire in Describing CH to non-believers   
    Maybe a bit of comparison on my Kipp Scale, for those that have a different interpretation:  
    I've broken my wrist before.  It was 10 at night and I didn't feel like going to the emergency room.  I decided to go to bed and go in the morning.  I went right to sleep like a baby 15 minutes after breaking it.  Slept fine got up.  Put my wrist in a tshirt sling and went to the emergency room.  My kipp level was maybe 3 out of 10.
    I've de-gloved 2 fingers on my right hand in a sailing accident.  The index and middle finger had the meat pulled right off the bone.  My middle finger bone was sticking out like a skeleton you see at Halloween.  Of course both fingernails were peeled off as well.  We were docking a large boat and my fingers got caught in a cleat.  I yelled up to the guy on the bow not to dilly dally, that he had to take me to the emergency room as soon as the boat was tied up.  I grabbed a hand towel from the galley and ran back on deck spewing blood everywhere.  I finished securing the stern and port of the boat before showing my friend what happened.  He drove me to the emergency room where they reassembled my fingers.   Oh and without any anesthetic.  I'm immune to the anesthetic they use for nerve blocks.  My peak pain through the entire event was maybe a 4.  My pain tolerance is VERY high due to my years with CH I can only assume.
    I've had 3 kidney stones.  Passed one of them.  Kipp 5 to 6.  Other two had surgery to remove and were maybe Kipp 3 tops. 
    To say my pain levels with a CH K10 are worse than an amputation without anesthetic is a no brainer.  My K10's are much worse.  Everyone is different, but pain is pain.  Support for our CH family here is what's its all about. 
    J
     
  24. Like
    ThatHurtsMyHead got a reaction from MoxieGirl in Describing CH to non-believers   
    The reality is everyone has a different pain level from their CH.  They also have different pain tolerances.  I'm one of the people that have attempted suicide due to my CH.  When I get a K10, it IS a K10...  I've passed kidney stones and they were a walk in the park compared to my K10 attacks.  I've beat my head on the floor till I've passed out.  
    Because some people with CH don't really get K10's doesn't mean others don't.  I wouldn't downplay any description.  Otherwise you shouldn't complain if someone just tells you to go take an aspirin when YOU have an attack.  (see the comparison?)
    I've spoken with people that can't understand why some of us use indole ring hallucinogens to treat our CH.  They've said.  "CH isn't that bad.  Just wait till the attack passes".  "Why would anyone take an illegal substance to treat their CH.  It's not that bad"...   The examples go on and on.  To those people...  I seriously question if you really have CH.  I KNOW how bad mine was before I started self treatment.  I'd never go back to that world, or I'd be outa here if I did.
    I think healthy debate is healthy.  Let's just not downplay someone else's description just because your pain isn't as bad as theirs.  You might wake up one day and find your pain IS as bad as theirs and reassess your own Kipp scale.  (I certainly hope not though).
    Cheers,
    J
  25. Thanks
    ThatHurtsMyHead got a reaction from Brain on fire in Describing CH to non-believers   
    Maybe a bit of comparison on my Kipp Scale, for those that have a different interpretation:  
    I've broken my wrist before.  It was 10 at night and I didn't feel like going to the emergency room.  I decided to go to bed and go in the morning.  I went right to sleep like a baby 15 minutes after breaking it.  Slept fine got up.  Put my wrist in a tshirt sling and went to the emergency room.  My kipp level was maybe 3 out of 10.
    I've de-gloved 2 fingers on my right hand in a sailing accident.  The index and middle finger had the meat pulled right off the bone.  My middle finger bone was sticking out like a skeleton you see at Halloween.  Of course both fingernails were peeled off as well.  We were docking a large boat and my fingers got caught in a cleat.  I yelled up to the guy on the bow not to dilly dally, that he had to take me to the emergency room as soon as the boat was tied up.  I grabbed a hand towel from the galley and ran back on deck spewing blood everywhere.  I finished securing the stern and port of the boat before showing my friend what happened.  He drove me to the emergency room where they reassembled my fingers.   Oh and without any anesthetic.  I'm immune to the anesthetic they use for nerve blocks.  My peak pain through the entire event was maybe a 4.  My pain tolerance is VERY high due to my years with CH I can only assume.
    I've had 3 kidney stones.  Passed one of them.  Kipp 5 to 6.  Other two had surgery to remove and were maybe Kipp 3 tops. 
    To say my pain levels with a CH K10 are worse than an amputation without anesthetic is a no brainer.  My K10's are much worse.  Everyone is different, but pain is pain.  Support for our CH family here is what's its all about. 
    J
     
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